› Forums › General Melanoma Community › Blood Tests…….
- This topic has 15 replies, 5 voices, and was last updated 8 years, 7 months ago by
WallyE.
- Post
-
- October 6, 2016 at 2:41 am
So……..hope is funny. I have read of those with great blood tests, low ldh, nothing sticking out of the ordinary raising red flags……….is it dangerous to put to much emphasis on blood work? Could the Mel still be there even though the blood looks normal? I know…..impossible question.
Rita
- Replies
-
-
- October 6, 2016 at 12:46 pm
Maybe it is / maybe it isn't.
NED is about as good as it gets and I will be grateful for everyday that has that label, and anyway if it is too small to be detected it isn't causing too much trouble and maybe my immune system will mop it up ?
Got to throw the welcome mat out to " hope" as having hope as a travelling companion is what I need right now and beats the alternatives in an uncertain world.
Best wishes
Deb
-
- October 6, 2016 at 12:46 pm
Maybe it is / maybe it isn't.
NED is about as good as it gets and I will be grateful for everyday that has that label, and anyway if it is too small to be detected it isn't causing too much trouble and maybe my immune system will mop it up ?
Got to throw the welcome mat out to " hope" as having hope as a travelling companion is what I need right now and beats the alternatives in an uncertain world.
Best wishes
Deb
-
- October 6, 2016 at 12:46 pm
Maybe it is / maybe it isn't.
NED is about as good as it gets and I will be grateful for everyday that has that label, and anyway if it is too small to be detected it isn't causing too much trouble and maybe my immune system will mop it up ?
Got to throw the welcome mat out to " hope" as having hope as a travelling companion is what I need right now and beats the alternatives in an uncertain world.
Best wishes
Deb
-
- October 6, 2016 at 2:01 pm
From my personal experience, blood work is difficult to put much stock in. Yet again, like everything else with melanoma, we find differences with each individual. In the nastiest throws of my melanoma, my oncologist looked at me on more than one occasion, and proclaimed "My God… you're like a machine." My labs were always a lovely line of "in range". Over three years later, with only one teeny speck of an already treated brain lesion left anywhere in my body (basically NED)…. my blood labs aren't so perfect every three weeks. After dealing with this diagnosis for so long now, we've learned not to panic until a trend lasts for several tests. There is most certainly cautious watching, and without being a hypochondriac, paying attention for any physical symptoms that might indicate what the blood test was hinting at. While watching the labs is useful and handy, my docs always default to how I am looking and how I am feeling.
You're correct, it does seem an impossible question. Most days, I wake up and live as though my world is a perfectly normal place. The melanoma isn't going to worry me until I have hard visual proof that there is something to worry about. With every passing day, we grow steps closer to new research and new possibilities. I hope that I will never need them….. but if/when the time comes… I will hang my hat on the new hope. If I had been told 3 1/2 year ago, what I would have to go through to come out the other side, I might have curled up into a ball and surrendered. But hey… looking back and taking it one bite at a time… here I still am.
Hang onto hope, it's your ticket off of the crazy train.
-
- October 6, 2016 at 2:15 pm
Thank you so much for your reply – I think that we have been living in limbo fear for so long that the feeling I have now that it will all be good just feels "strange". Thank you Niki – safe travels on your mel journey!
-
- October 6, 2016 at 2:15 pm
Thank you so much for your reply – I think that we have been living in limbo fear for so long that the feeling I have now that it will all be good just feels "strange". Thank you Niki – safe travels on your mel journey!
-
- October 6, 2016 at 2:15 pm
Thank you so much for your reply – I think that we have been living in limbo fear for so long that the feeling I have now that it will all be good just feels "strange". Thank you Niki – safe travels on your mel journey!
-
- October 6, 2016 at 2:01 pm
From my personal experience, blood work is difficult to put much stock in. Yet again, like everything else with melanoma, we find differences with each individual. In the nastiest throws of my melanoma, my oncologist looked at me on more than one occasion, and proclaimed "My God… you're like a machine." My labs were always a lovely line of "in range". Over three years later, with only one teeny speck of an already treated brain lesion left anywhere in my body (basically NED)…. my blood labs aren't so perfect every three weeks. After dealing with this diagnosis for so long now, we've learned not to panic until a trend lasts for several tests. There is most certainly cautious watching, and without being a hypochondriac, paying attention for any physical symptoms that might indicate what the blood test was hinting at. While watching the labs is useful and handy, my docs always default to how I am looking and how I am feeling.
You're correct, it does seem an impossible question. Most days, I wake up and live as though my world is a perfectly normal place. The melanoma isn't going to worry me until I have hard visual proof that there is something to worry about. With every passing day, we grow steps closer to new research and new possibilities. I hope that I will never need them….. but if/when the time comes… I will hang my hat on the new hope. If I had been told 3 1/2 year ago, what I would have to go through to come out the other side, I might have curled up into a ball and surrendered. But hey… looking back and taking it one bite at a time… here I still am.
Hang onto hope, it's your ticket off of the crazy train.
-
- October 6, 2016 at 2:01 pm
From my personal experience, blood work is difficult to put much stock in. Yet again, like everything else with melanoma, we find differences with each individual. In the nastiest throws of my melanoma, my oncologist looked at me on more than one occasion, and proclaimed "My God… you're like a machine." My labs were always a lovely line of "in range". Over three years later, with only one teeny speck of an already treated brain lesion left anywhere in my body (basically NED)…. my blood labs aren't so perfect every three weeks. After dealing with this diagnosis for so long now, we've learned not to panic until a trend lasts for several tests. There is most certainly cautious watching, and without being a hypochondriac, paying attention for any physical symptoms that might indicate what the blood test was hinting at. While watching the labs is useful and handy, my docs always default to how I am looking and how I am feeling.
You're correct, it does seem an impossible question. Most days, I wake up and live as though my world is a perfectly normal place. The melanoma isn't going to worry me until I have hard visual proof that there is something to worry about. With every passing day, we grow steps closer to new research and new possibilities. I hope that I will never need them….. but if/when the time comes… I will hang my hat on the new hope. If I had been told 3 1/2 year ago, what I would have to go through to come out the other side, I might have curled up into a ball and surrendered. But hey… looking back and taking it one bite at a time… here I still am.
Hang onto hope, it's your ticket off of the crazy train.
-
- October 6, 2016 at 7:41 pm
Unless a blood test is specifically run as a biomarker for cancer the results you are lookin at don't mean anything.
My Mom had perfect, and I mean perfect, blood tests when she was Stage IV with brain mets before any treatment. Nothing was elevated and she felt great, but she was a ticking time bomb… Melanoma wasn't playing havoc with anything that the blood tests were run for.
During treatment with ipi she had a few blood tests that were out of range, but that was years ago and temporary. Today she is back to excellent blood work and has a year to go on Keytruda.
-
- October 9, 2016 at 5:32 am
It probably differs from person to person but in my circumstances blood count tests mean zilch. In 2011 I had a melanoma tumor removed from the middle lobe of my right lung. The primary was a mole behind my right ear lobe which was removed in 2006. The histological report indicated In Situ Melanoma with clear margins. Apart from the usual scans and x-rays every 6 months thereafter I also had blood tests. In 2015 the blood test, as usual, indicated no cause for alarm and I was told that I could reduce my visits to annual as I was considered NED. What a relief!. Two weeks later I developed severe stomach cramps in my stomach with blood in my stool. I was tested for a hernia, heart disease, reflux – you name it, I was tested for it. It got to the point where a scope had to be done and I was told I had an unusually large stomach ulcer. Luckily the surgeon who did the scope had a sample biopsied for "just in case" The blood he tested at that stage was also tested or a PSA reading at my request as I had never had this tested before. Prostate cancer was detected and while I was waiting to be discharged from hospital after a Brachytherapy procedure on my prostate, the surgeon rocked up to inform me that what was thought to be an ulcer was, in fact, a melanoma tumor in my stomach. The result was total removal of my stomach as the tumor was 7×4 cm so they could not remove it in isolation.I had chemo for 6 months and so far am NED. I lost 30 Kg in the process since November last year. I have not gained any weight since then.
So, in my opinion and my personal circumstances blood count cannot be relied on in isolation and I now insist on full pet scans / MRI / X-rays every 6 months.
I am not saying the same will apply to you as I do believe that in countries other than South Africa the tests are probably more sophisticated than ours. We do not, as far as I have been able to establish, have any Mel Specialists in this country, only ordinary Oncologists who deal with all facets of cancer.
-
- October 9, 2016 at 5:32 am
It probably differs from person to person but in my circumstances blood count tests mean zilch. In 2011 I had a melanoma tumor removed from the middle lobe of my right lung. The primary was a mole behind my right ear lobe which was removed in 2006. The histological report indicated In Situ Melanoma with clear margins. Apart from the usual scans and x-rays every 6 months thereafter I also had blood tests. In 2015 the blood test, as usual, indicated no cause for alarm and I was told that I could reduce my visits to annual as I was considered NED. What a relief!. Two weeks later I developed severe stomach cramps in my stomach with blood in my stool. I was tested for a hernia, heart disease, reflux – you name it, I was tested for it. It got to the point where a scope had to be done and I was told I had an unusually large stomach ulcer. Luckily the surgeon who did the scope had a sample biopsied for "just in case" The blood he tested at that stage was also tested or a PSA reading at my request as I had never had this tested before. Prostate cancer was detected and while I was waiting to be discharged from hospital after a Brachytherapy procedure on my prostate, the surgeon rocked up to inform me that what was thought to be an ulcer was, in fact, a melanoma tumor in my stomach. The result was total removal of my stomach as the tumor was 7×4 cm so they could not remove it in isolation.I had chemo for 6 months and so far am NED. I lost 30 Kg in the process since November last year. I have not gained any weight since then.
So, in my opinion and my personal circumstances blood count cannot be relied on in isolation and I now insist on full pet scans / MRI / X-rays every 6 months.
I am not saying the same will apply to you as I do believe that in countries other than South Africa the tests are probably more sophisticated than ours. We do not, as far as I have been able to establish, have any Mel Specialists in this country, only ordinary Oncologists who deal with all facets of cancer.
-
- October 9, 2016 at 5:32 am
It probably differs from person to person but in my circumstances blood count tests mean zilch. In 2011 I had a melanoma tumor removed from the middle lobe of my right lung. The primary was a mole behind my right ear lobe which was removed in 2006. The histological report indicated In Situ Melanoma with clear margins. Apart from the usual scans and x-rays every 6 months thereafter I also had blood tests. In 2015 the blood test, as usual, indicated no cause for alarm and I was told that I could reduce my visits to annual as I was considered NED. What a relief!. Two weeks later I developed severe stomach cramps in my stomach with blood in my stool. I was tested for a hernia, heart disease, reflux – you name it, I was tested for it. It got to the point where a scope had to be done and I was told I had an unusually large stomach ulcer. Luckily the surgeon who did the scope had a sample biopsied for "just in case" The blood he tested at that stage was also tested or a PSA reading at my request as I had never had this tested before. Prostate cancer was detected and while I was waiting to be discharged from hospital after a Brachytherapy procedure on my prostate, the surgeon rocked up to inform me that what was thought to be an ulcer was, in fact, a melanoma tumor in my stomach. The result was total removal of my stomach as the tumor was 7×4 cm so they could not remove it in isolation.I had chemo for 6 months and so far am NED. I lost 30 Kg in the process since November last year. I have not gained any weight since then.
So, in my opinion and my personal circumstances blood count cannot be relied on in isolation and I now insist on full pet scans / MRI / X-rays every 6 months.
I am not saying the same will apply to you as I do believe that in countries other than South Africa the tests are probably more sophisticated than ours. We do not, as far as I have been able to establish, have any Mel Specialists in this country, only ordinary Oncologists who deal with all facets of cancer.
-
- October 6, 2016 at 7:41 pm
Unless a blood test is specifically run as a biomarker for cancer the results you are lookin at don't mean anything.
My Mom had perfect, and I mean perfect, blood tests when she was Stage IV with brain mets before any treatment. Nothing was elevated and she felt great, but she was a ticking time bomb… Melanoma wasn't playing havoc with anything that the blood tests were run for.
During treatment with ipi she had a few blood tests that were out of range, but that was years ago and temporary. Today she is back to excellent blood work and has a year to go on Keytruda.
-
- October 6, 2016 at 7:41 pm
Unless a blood test is specifically run as a biomarker for cancer the results you are lookin at don't mean anything.
My Mom had perfect, and I mean perfect, blood tests when she was Stage IV with brain mets before any treatment. Nothing was elevated and she felt great, but she was a ticking time bomb… Melanoma wasn't playing havoc with anything that the blood tests were run for.
During treatment with ipi she had a few blood tests that were out of range, but that was years ago and temporary. Today she is back to excellent blood work and has a year to go on Keytruda.
-
- You must be logged in to reply to this topic.