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Blue Spots on skin after Ipi/Nivo treatment
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Blue Spots on skin after Ipi/Nivo treatment

› Forums › General Melanoma Community › Blue Spots on skin after Ipi/Nivo treatment

  • Post
    • September 5, 2018 at 1:45 am
    NEDnotDead
    Participant

      Anyone else have multiple blue spots appear on skin after Ipi/Nivo treatment?  I had at least 30 appear after 1st treatment and after the 4 combos, now have a white halo around the larger spots.

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    • Replies
        • September 5, 2018 at 2:12 am
        MelanomaMike
        Participant
          Hay brother NednotDead (love yer handle), well damn man, thats a first! Atleast from what im aware of since i began my Immunol adventure in Nov2017. I to just wrapped up 4 infusions of Yervoy (with Opdivo) and this Friday will be my 5th infuse with out Yervoy but so far so good, nothing blue yet brother!..definitely see yer Onco!…Mike
            • September 5, 2018 at 2:40 am
            NEDnotDead
            Participant

              Hi Mike, I'm not supprised you were the 1st to resopnd. Been following this forum for months and appreciate your input. My Onc is aware and said it is very rare and isn't concerned, was just wondered how rare.

              • September 5, 2018 at 2:55 am
              ed williams
              Participant

                This is a first time I have heard of this condition, with melanoma and immunotherapy you learn something new every day!!! I think you should give this condition a name!!!  I have a couple of ideas if you are interested.

                • September 5, 2018 at 5:35 pm
                MelanomaMike
                Participant
                  Little Boy Blue Syndrome? Blue Bayou Titis? Haha..we gotta laugh! Were all in the same boat so we, unlike Non Melanoma patients, we have the right & privlidge to poke fun at each other! Lol..we love you NedNotDead (cheer up! dont be so Blue!
                  • September 5, 2018 at 9:55 pm
                  ed williams
                  Participant

                    Mike, I was thinking more along the lines of having 'Smurf' some where in the name!!! Any thoughts???

                    • September 6, 2018 at 12:33 am
                    NEDnotDead
                    Participant

                      thanks for the laughs boys! With my new white beard, thanks to the Ipi, I could almost pass as papa smurf!

                      • September 6, 2018 at 2:25 am
                      ed williams
                      Participant

                        I think we have a winner, Papa Smurf you shall be from now till the end of time, or at least the end of the MRF.  Now if we could only get Anon's to take up the idea of having an original MRF name like Papa Smurf, life would be so much easier!!! May be it is just me but ever since that cyberknife experience I had, I have had a hard time following conversations with more than one Anon talking!!!

                        • September 6, 2018 at 2:26 am
                        ed williams
                        Participant

                          I think we have a winner, Papa Smurf you shall be from now till the end of time, or at least the end of the MRF.  Now if we could only get Anon's to take up the idea of having an original MRF name like Papa Smurf, life would be so much easier!!! May be it is just me but ever since that cyberknife experience I had, I have had a hard time following conversations with more than one Anon talking!!!

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