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BRAF/MEK Trial Scan Results – Disappointing
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BRAF/MEK Trial Scan Results – Disappointing

› Forums › General Melanoma Community › BRAF/MEK Trial Scan Results – Disappointing

  • Post
    • August 14, 2012 at 6:04 pm
    Eileen L
    Participant

      Just got my scan results from this past Friday, after being on the BRAF/MEK Roche trial (Zelboraf and a MEK inhibitor) for 12 weeks. The good news: The adrenal gland tumor shrank a bit more and the nodule in the lingular area of my lung is stable, both are basically non-reactive. The bad news, there is a new small lung nodule in my right upper lobe, just 8 mm.  Although non-reactive on the PET, apparantly mets this small frequently don't light up on the PET. Awaiting call form my doctor to discuss.

      Just got my scan results from this past Friday, after being on the BRAF/MEK Roche trial (Zelboraf and a MEK inhibitor) for 12 weeks. The good news: The adrenal gland tumor shrank a bit more and the nodule in the lingular area of my lung is stable, both are basically non-reactive. The bad news, there is a new small lung nodule in my right upper lobe, just 8 mm.  Although non-reactive on the PET, apparantly mets this small frequently don't light up on the PET. Awaiting call form my doctor to discuss. I know that there are frequently non-specific lung nodules that turn out not to be mets, but I am bummed out!!!!!! Will post again when I know more.

      Eileen L

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    • Replies
        • August 14, 2012 at 6:14 pm
        natasha
        Participant

          Hi Eileen !

          May I ask you what Breslow did you have in your   diagnosys?

            • August 14, 2012 at 6:46 pm
            Eileen L
            Participant

              My Stage I diagnosis was over 11 years ago. Breslow thickness was 0.53, so fairly shallow with no ulceration.

              Eileen L

              • August 14, 2012 at 6:55 pm
              JC
              Participant

                I'll bet they all said, "Don't worry, this is low risk."  I hear that all the time, but look at the reality of your case.  It's not "don't worry, this is thin, low risk."  It was something to worry about, it turned out not to be low risk even though it was thin.

                • August 14, 2012 at 7:27 pm
                natasha
                Participant

                    We can worry as much as we like ,but would it help all us with ''low risk'' tumors??

                  It would not help .There is no treatment to prevent spreading even in 10 years time..

                  So if we were diagnosed ,we can worry or not – it does not depend on us what will happen in future and it is nothing we can do about it now.

                  • August 14, 2012 at 7:27 pm
                  natasha
                  Participant

                      We can worry as much as we like ,but would it help all us with ''low risk'' tumors??

                    It would not help .There is no treatment to prevent spreading even in 10 years time..

                    So if we were diagnosed ,we can worry or not – it does not depend on us what will happen in future and it is nothing we can do about it now.

                    • August 14, 2012 at 7:27 pm
                    natasha
                    Participant

                        We can worry as much as we like ,but would it help all us with ''low risk'' tumors??

                      It would not help .There is no treatment to prevent spreading even in 10 years time..

                      So if we were diagnosed ,we can worry or not – it does not depend on us what will happen in future and it is nothing we can do about it now.

                      • August 14, 2012 at 6:55 pm
                      JC
                      Participant

                        I'll bet they all said, "Don't worry, this is low risk."  I hear that all the time, but look at the reality of your case.  It's not "don't worry, this is thin, low risk."  It was something to worry about, it turned out not to be low risk even though it was thin.

                        • August 14, 2012 at 6:55 pm
                        JC
                        Participant

                          I'll bet they all said, "Don't worry, this is low risk."  I hear that all the time, but look at the reality of your case.  It's not "don't worry, this is thin, low risk."  It was something to worry about, it turned out not to be low risk even though it was thin.

                          • August 14, 2012 at 6:46 pm
                          Eileen L
                          Participant

                            My Stage I diagnosis was over 11 years ago. Breslow thickness was 0.53, so fairly shallow with no ulceration.

                            Eileen L

                            • August 14, 2012 at 6:46 pm
                            Eileen L
                            Participant

                              My Stage I diagnosis was over 11 years ago. Breslow thickness was 0.53, so fairly shallow with no ulceration.

                              Eileen L

                            • August 14, 2012 at 6:14 pm
                            natasha
                            Participant

                              Hi Eileen !

                              May I ask you what Breslow did you have in your   diagnosys?

                              • August 14, 2012 at 6:14 pm
                              natasha
                              Participant

                                Hi Eileen !

                                May I ask you what Breslow did you have in your   diagnosys?

                            Viewing 2 reply threads
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