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Brain Mets are Back
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Brain Mets are Back

› Forums › General Melanoma Community › Brain Mets are Back

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    • May 2, 2017 at 4:52 pm
    RitysMom
    Participant

      I'm at MDA this week with my daughter, Kristine. She was supposed to begin a clinical trial Thursday with pembro/azacitidine. She met with the dr yesterday and shared that she's been having headaches for a couple weeks now. He sent her for a CT of the brain and we just got the news that there are lesions on her brain. The dr is trying to get her into a neurosurgeon. It looks like this disqualifies her for the trial. We're devastated…I don't know what this means for her. Four weeks ago her brain was clear. She went off the taf/mek at that time and now they're back. I don't even know what to ask except where do we go from here?

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        • May 2, 2017 at 5:03 pm
        sgreenberg
        Participant

          Sorry to hear – these setbacks are like a punch in the gut, aren't they? I can tell you that my wife has been living – working, vacationing, driving, everything – with 7+ brain mets for over a year now. She was on Taf/Mek, which stopped working, and now she's transitioning to Keytruda – which is showing preliminary positive signs. I'm sure your onco will have suggestions – but just keep in mind that this isn't the end of the road. Good luck!

            • May 2, 2017 at 11:59 pm
            RitysMom
            Participant

              Thank you…that's good to hear. Her oncologist mentioned restarting taf/mek and adding something to that…he wants to wait til she consults with neuro and radiation oncology first. One of the brain mets is bleeding. Not sure what that means for treatment.

            • May 3, 2017 at 11:14 am
            raun cesar
            Participant

              Really sorry to hear, its very similar when my love was diagnosed after early testing. Keep in touch with oncologist they were the best people to guide you. There is light at the end of tunnel so fingers crossed

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