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Brain mets…WBRT or SRT?

Forums General Melanoma Community Brain mets…WBRT or SRT?

  • Post
    bdhf
    Participant

      For those of you who have either dealt with this or have some base knowledge, I would love some advice!  I had one 3 cm brain met in Dec 2011 which was resected and so far we have not found any other mets.  I am being offered radiation and have to choose between whole brain radiation therapy (WBRT) or Sterotactic Radio therapy (SRT or gamma knife).  I am not quite sure which to choose at this point.  Since there were no other mets it seems reasonable to me that the SRT is a better option as I am leary of the WBRT when there is no other measureable disease.

      For those of you who have either dealt with this or have some base knowledge, I would love some advice!  I had one 3 cm brain met in Dec 2011 which was resected and so far we have not found any other mets.  I am being offered radiation and have to choose between whole brain radiation therapy (WBRT) or Sterotactic Radio therapy (SRT or gamma knife).  I am not quite sure which to choose at this point.  Since there were no other mets it seems reasonable to me that the SRT is a better option as I am leary of the WBRT when there is no other measureable disease.  My thought, and that of one of th two radiation oncologists that I have spoken with, is that I could do the SRT for the tumor bed and then if there are any other mets in the future I can get the WBRT for that, particularly if I am unlucky enough to get brain mets that are inoperable.  I have a call in to my oncologist so that I can speak with her about it but I know I need to make a decision soon and I am just stumped.  Any thoughts or input would be greatly appreciated.  

      Thanks!

      Brenda

    Viewing 17 reply threads
    • Replies
        lhaley
        Participant

          SRT!!!!  

          Save WBR if needed when you have several mets.  While sometimes you don't have a choice you have to think of damage to healthy cells.   I was offered SRS as a first choice because my tumor was so deep that a crainectomy would cause damage.  My issues now are edema but the tumor itself is dying.  Tomorrow I have an appointment with my team to discuss the next step. 

          My local oncologist is the only medical person that I consulted that even brought WBR up.  I talked to 5 other medical Doctors that I had worked with in the past with melanoma or were the current nuerosurgeon.

          Whatever you choose, you cannot look backwards. 

          Good luck and it would be worth it for an appointment with another institution to get another  opinion if your not feeling sure. 

          Linda

          lhaley
          Participant

            SRT!!!!  

            Save WBR if needed when you have several mets.  While sometimes you don't have a choice you have to think of damage to healthy cells.   I was offered SRS as a first choice because my tumor was so deep that a crainectomy would cause damage.  My issues now are edema but the tumor itself is dying.  Tomorrow I have an appointment with my team to discuss the next step. 

            My local oncologist is the only medical person that I consulted that even brought WBR up.  I talked to 5 other medical Doctors that I had worked with in the past with melanoma or were the current nuerosurgeon.

            Whatever you choose, you cannot look backwards. 

            Good luck and it would be worth it for an appointment with another institution to get another  opinion if your not feeling sure. 

            Linda

              bdhf
              Participant

                Linda,

                Thank you!  I agree with your thought process completely!  I don't want to delay treatment any longer and I think that we have decided to go with SRT.  Just need to decide which provider to go with!  

                Brenda

                bdhf
                Participant

                  Linda,

                  Thank you!  I agree with your thought process completely!  I don't want to delay treatment any longer and I think that we have decided to go with SRT.  Just need to decide which provider to go with!  

                  Brenda

                  bdhf
                  Participant

                    Linda,

                    Thank you!  I agree with your thought process completely!  I don't want to delay treatment any longer and I think that we have decided to go with SRT.  Just need to decide which provider to go with!  

                    Brenda

                  lhaley
                  Participant

                    SRT!!!!  

                    Save WBR if needed when you have several mets.  While sometimes you don't have a choice you have to think of damage to healthy cells.   I was offered SRS as a first choice because my tumor was so deep that a crainectomy would cause damage.  My issues now are edema but the tumor itself is dying.  Tomorrow I have an appointment with my team to discuss the next step. 

                    My local oncologist is the only medical person that I consulted that even brought WBR up.  I talked to 5 other medical Doctors that I had worked with in the past with melanoma or were the current nuerosurgeon.

                    Whatever you choose, you cannot look backwards. 

                    Good luck and it would be worth it for an appointment with another institution to get another  opinion if your not feeling sure. 

                    Linda

                    Janner
                    Participant

                      No experience, but I believe WBR can only be done once.  SRS can be done on individual mets so may be done more than once. Just another point to discuss with your doctor.

                      Best wishes,

                      Janner

                      Janner
                      Participant

                        No experience, but I believe WBR can only be done once.  SRS can be done on individual mets so may be done more than once. Just another point to discuss with your doctor.

                        Best wishes,

                        Janner

                        Janner
                        Participant

                          No experience, but I believe WBR can only be done once.  SRS can be done on individual mets so may be done more than once. Just another point to discuss with your doctor.

                          Best wishes,

                          Janner

                          jag
                          Participant
                            SRS
                            Read my patnet, radiation can have negative side effects. If your 1 tumor has been resected, are they offering wait and see as an option? Remember, it is your choice. Surgery can sometimes be curative.
                            jag
                            Participant
                              SRS
                              Read my patnet, radiation can have negative side effects. If your 1 tumor has been resected, are they offering wait and see as an option? Remember, it is your choice. Surgery can sometimes be curative.
                                bdhf
                                Participant

                                  Believe it or not, I haven't met with my new oncologist to even discuss overall treatment options.  The radiation oncologists I have met with do not recommend wait and see, though it has crossed my mind.  My husband would freak out if I did that!  I know it is my choice but with 2 small kids at home and only being 36 years old, I really think it would be worth my while to fight and try some of the treatments, just don't want to cause long term damage if it isn't necessary.  

                                  Thanks for the input!  

                                  Brenda

                                  bdhf
                                  Participant

                                    Believe it or not, I haven't met with my new oncologist to even discuss overall treatment options.  The radiation oncologists I have met with do not recommend wait and see, though it has crossed my mind.  My husband would freak out if I did that!  I know it is my choice but with 2 small kids at home and only being 36 years old, I really think it would be worth my while to fight and try some of the treatments, just don't want to cause long term damage if it isn't necessary.  

                                    Thanks for the input!  

                                    Brenda

                                    bdhf
                                    Participant

                                      Believe it or not, I haven't met with my new oncologist to even discuss overall treatment options.  The radiation oncologists I have met with do not recommend wait and see, though it has crossed my mind.  My husband would freak out if I did that!  I know it is my choice but with 2 small kids at home and only being 36 years old, I really think it would be worth my while to fight and try some of the treatments, just don't want to cause long term damage if it isn't necessary.  

                                      Thanks for the input!  

                                      Brenda

                                    jag
                                    Participant
                                      SRS
                                      Read my patnet, radiation can have negative side effects. If your 1 tumor has been resected, are they offering wait and see as an option? Remember, it is your choice. Surgery can sometimes be curative.
                                      davidfromsingapore
                                      Participant

                                        Hi Brenda

                                         

                                        I was faced with the same probelm.  I had 3 mets – 2 that were removed via crainiotomy and 1 that was zapped with SRT. My radiation oncologist said after that the standard was to do WBR and my neurosugeon said the same.  But I was not satisfied with this as I did some research to find that WBR has many more long term side effects and does NOT increase life expectancy.  All it does is keep the melanoma at bay for a longer time.  What my radiation oncologist and surgeon did not know (or at least they had not been epxposed to it) was the fact that I was going to take the new BRAF drug Zelboraf.  While the clinical trials are still underway, what I am hoping for is that Zelboraf does the same thing (keeps the mets at bay) – with fewer long term side effects.  There are indeed short term side effects, but I can deal with them.  I don't want to tell you what to do – but I would consider getting tested for Braf mutation and if you are indeed positive – maybe go with Zelboraf or another Braf inhibitor.  It will at least give you time.  My plan is to stay on Zelboarf until it doesn't work, or long enough until I am strong again and able to go after the disease with ipi or another chemo agent that has the potential for a durable long term response.  I hope that helps Brenda.  Feel free to contact me and ask follow up questions.  I hope and pray for the best for you. 

                                         

                                        David

                                        davidfromsingapore
                                        Participant

                                          Hi Brenda

                                           

                                          I was faced with the same probelm.  I had 3 mets – 2 that were removed via crainiotomy and 1 that was zapped with SRT. My radiation oncologist said after that the standard was to do WBR and my neurosugeon said the same.  But I was not satisfied with this as I did some research to find that WBR has many more long term side effects and does NOT increase life expectancy.  All it does is keep the melanoma at bay for a longer time.  What my radiation oncologist and surgeon did not know (or at least they had not been epxposed to it) was the fact that I was going to take the new BRAF drug Zelboraf.  While the clinical trials are still underway, what I am hoping for is that Zelboraf does the same thing (keeps the mets at bay) – with fewer long term side effects.  There are indeed short term side effects, but I can deal with them.  I don't want to tell you what to do – but I would consider getting tested for Braf mutation and if you are indeed positive – maybe go with Zelboraf or another Braf inhibitor.  It will at least give you time.  My plan is to stay on Zelboarf until it doesn't work, or long enough until I am strong again and able to go after the disease with ipi or another chemo agent that has the potential for a durable long term response.  I hope that helps Brenda.  Feel free to contact me and ask follow up questions.  I hope and pray for the best for you. 

                                           

                                          David

                                          davidfromsingapore
                                          Participant

                                            Hi Brenda

                                             

                                            I was faced with the same probelm.  I had 3 mets – 2 that were removed via crainiotomy and 1 that was zapped with SRT. My radiation oncologist said after that the standard was to do WBR and my neurosugeon said the same.  But I was not satisfied with this as I did some research to find that WBR has many more long term side effects and does NOT increase life expectancy.  All it does is keep the melanoma at bay for a longer time.  What my radiation oncologist and surgeon did not know (or at least they had not been epxposed to it) was the fact that I was going to take the new BRAF drug Zelboraf.  While the clinical trials are still underway, what I am hoping for is that Zelboraf does the same thing (keeps the mets at bay) – with fewer long term side effects.  There are indeed short term side effects, but I can deal with them.  I don't want to tell you what to do – but I would consider getting tested for Braf mutation and if you are indeed positive – maybe go with Zelboraf or another Braf inhibitor.  It will at least give you time.  My plan is to stay on Zelboarf until it doesn't work, or long enough until I am strong again and able to go after the disease with ipi or another chemo agent that has the potential for a durable long term response.  I hope that helps Brenda.  Feel free to contact me and ask follow up questions.  I hope and pray for the best for you. 

                                             

                                            David

                                              bdhf
                                              Participant

                                                David,

                                                Thank you so much for your input!  I had the BRAF test done but I don't know the results yet.  I have done some research and have been really nervous about the possible long term effects of WBR.  Especially if it doesn't increase life expectancy, though no one has even talked about that with me as we are still trying to determine if there is any other mets in my body (looking at lungs and thyroid).  I have a simulation appointment tomorrow with local radiation oncologist who really strongly recommended WBR.  I have the option of going to Bethesda Naval Hospital for SRT with the first radiation oncologist that I met with immediately after surgery.  I am really leaning towards that, especially if the local guy doesn't support SRT.  

                                                Thanks so much again for your info and input!  I will probably get in touch with you for questions…our cases seem fairly similar and I would love to, pardon the pun, pick your brain a bit.  

                                                Brenda

                                                bdhf
                                                Participant

                                                  David,

                                                  Thank you so much for your input!  I had the BRAF test done but I don't know the results yet.  I have done some research and have been really nervous about the possible long term effects of WBR.  Especially if it doesn't increase life expectancy, though no one has even talked about that with me as we are still trying to determine if there is any other mets in my body (looking at lungs and thyroid).  I have a simulation appointment tomorrow with local radiation oncologist who really strongly recommended WBR.  I have the option of going to Bethesda Naval Hospital for SRT with the first radiation oncologist that I met with immediately after surgery.  I am really leaning towards that, especially if the local guy doesn't support SRT.  

                                                  Thanks so much again for your info and input!  I will probably get in touch with you for questions…our cases seem fairly similar and I would love to, pardon the pun, pick your brain a bit.  

                                                  Brenda

                                                  bdhf
                                                  Participant

                                                    David,

                                                    Thank you so much for your input!  I had the BRAF test done but I don't know the results yet.  I have done some research and have been really nervous about the possible long term effects of WBR.  Especially if it doesn't increase life expectancy, though no one has even talked about that with me as we are still trying to determine if there is any other mets in my body (looking at lungs and thyroid).  I have a simulation appointment tomorrow with local radiation oncologist who really strongly recommended WBR.  I have the option of going to Bethesda Naval Hospital for SRT with the first radiation oncologist that I met with immediately after surgery.  I am really leaning towards that, especially if the local guy doesn't support SRT.  

                                                    Thanks so much again for your info and input!  I will probably get in touch with you for questions…our cases seem fairly similar and I would love to, pardon the pun, pick your brain a bit.  

                                                    Brenda

                                                  jmmm
                                                  Participant
                                                    My husband had the exact same thing, except his brain met was twice the size. He had a craniotomy, then 3 weeks later had gamma knife (same as SRS, or at least similar). The oncologist and neurosurgeon were sure this was the right plan, since he had no more brain mets. The thought is to save WBR until necessary for unressectable mets. There are some pretty scary side effects from WBR, and minimal from SRS. FYI…my husband had his craniotomy on Nov. 30 and gamma knife on Dec. 22. He’s doing great…still tired, but feeing good.
                                                    jmmm
                                                    Participant
                                                      My husband had the exact same thing, except his brain met was twice the size. He had a craniotomy, then 3 weeks later had gamma knife (same as SRS, or at least similar). The oncologist and neurosurgeon were sure this was the right plan, since he had no more brain mets. The thought is to save WBR until necessary for unressectable mets. There are some pretty scary side effects from WBR, and minimal from SRS. FYI…my husband had his craniotomy on Nov. 30 and gamma knife on Dec. 22. He’s doing great…still tired, but feeing good.
                                                      jmmm
                                                      Participant
                                                        My husband had the exact same thing, except his brain met was twice the size. He had a craniotomy, then 3 weeks later had gamma knife (same as SRS, or at least similar). The oncologist and neurosurgeon were sure this was the right plan, since he had no more brain mets. The thought is to save WBR until necessary for unressectable mets. There are some pretty scary side effects from WBR, and minimal from SRS. FYI…my husband had his craniotomy on Nov. 30 and gamma knife on Dec. 22. He’s doing great…still tired, but feeing good.
                                                        kylez
                                                        Participant

                                                          Brenda, you might want to check this webinar out tomorrow (Thur):

                                                          https://www1.gotomeeting.com/register/271562473

                                                          It's put on by one of the other large melanoma patient advocate web sites.

                                                          That's the live webinar, they usually post an archive for replay a few days later.

                                                            kylez
                                                            Participant

                                                              Should have put in description:

                                                              Veronica Chiang, MD, neurosurgeon, and director of the Gamma Knife Program at Yale's Cancer Center will present:  Radiation Treatment of Brain Metastases in Melanoma on January 19th at 5pm EST.  

                                                               

                                                              When you go to the page, there's still a chance to submit questions if they have time to take some.

                                                              kylez
                                                              Participant

                                                                Should have put in description:

                                                                Veronica Chiang, MD, neurosurgeon, and director of the Gamma Knife Program at Yale's Cancer Center will present:  Radiation Treatment of Brain Metastases in Melanoma on January 19th at 5pm EST.  

                                                                 

                                                                When you go to the page, there's still a chance to submit questions if they have time to take some.

                                                                kylez
                                                                Participant

                                                                  Should have put in description:

                                                                  Veronica Chiang, MD, neurosurgeon, and director of the Gamma Knife Program at Yale's Cancer Center will present:  Radiation Treatment of Brain Metastases in Melanoma on January 19th at 5pm EST.  

                                                                   

                                                                  When you go to the page, there's still a chance to submit questions if they have time to take some.

                                                                kylez
                                                                Participant

                                                                  Brenda, you might want to check this webinar out tomorrow (Thur):

                                                                  https://www1.gotomeeting.com/register/271562473

                                                                  It's put on by one of the other large melanoma patient advocate web sites.

                                                                  That's the live webinar, they usually post an archive for replay a few days later.

                                                                  kylez
                                                                  Participant

                                                                    Brenda, you might want to check this webinar out tomorrow (Thur):

                                                                    https://www1.gotomeeting.com/register/271562473

                                                                    It's put on by one of the other large melanoma patient advocate web sites.

                                                                    That's the live webinar, they usually post an archive for replay a few days later.

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