› Forums › Cutaneous Melanoma Community › cancelled lung surgery
- This topic has 15 replies, 5 voices, and was last updated 12 years ago by
flvermonter.
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- June 8, 2013 at 8:47 pm
Hello,
My husband had the radical lymphdectomny on Thursday at MOffit in Tampa. Dr Zager advised that he "..has alot of disease". I asked what the prognosis is and he said "fair". Also, that maybe he should not have the surgery to remove the lung cancer stage i. He was going to talk to his thorasic surgeon. I just went on the Moffit site and his appt for the surgery has been removed. However, the pulmanary and CT scans are still set for next week.
Hello,
My husband had the radical lymphdectomny on Thursday at MOffit in Tampa. Dr Zager advised that he "..has alot of disease". I asked what the prognosis is and he said "fair". Also, that maybe he should not have the surgery to remove the lung cancer stage i. He was going to talk to his thorasic surgeon. I just went on the Moffit site and his appt for the surgery has been removed. However, the pulmanary and CT scans are still set for next week.
On Thursday after the surgery, Dr Z said he had ordered testing for genes and mutations. Our appt with him is not until 6/24. I think i will call him on Monday and ask the questions I am asking here.
When he said he had alot of disease, he went on to say some people have genes that impact how melanoma spreads and the speed at which it does. He said that maybe do radiation for the lung and he could go locally for that (Moffit is 1.5hrs one way for us). I am "assuming" the gene testing will determine which treatment he will get in pill form.
Again I am scared and did not tell all the information to my husband. He does not know yet the surgery has been cancelled for the lung. I thought I would wait till Monday when we can talk to the dr. Why worry him over the weekend when we can't talk to them.
Question, why not do the lung surgery? It was all set to go.
What did he mean by " has alot of disease".. I know these may sound lame, but there is still so much I don't know.
Thanks and hugs to all, Mary
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- June 8, 2013 at 10:52 pm
Mary, I am sorry that you and your husband are having to go through all this. It is a lot to handle. And I admire your strength in not yet telling your husband about the canceled surgery. There is absolutely nothing he can do about it over the weekend except wonder and worry. Discretion at this time is a selfless act.
You say that you saw on the Moffitt patient portal that your husband's surgery has been canceled. Therefore, you must have registered for this service. You can go on your patient portal and read your husband's reports– office visits, radiology reports, etc. Most Moffitt doctors do post the reports, some do not (which pisses me off royally). Once you have read the available reports, you may understand more about the surgeon's findings and why the lung surgery was canceled. Please advise us about what you find out.
However, remember that melanoma and its treament is hard on the body. Even treatments that work can have a lot of difficult side effects, nausea or loss of appetite, and extreme fatigue. Lung surgery is also hard on the body. Why make your husband more miserable and un comfortable and make it harder for his body to fight the melanoma if it's not absolutely necessary at this time?
Furthermore, if he has surgery, he will probably have to heal for at least 3 or 4 weeks before he can start any melanoma treatment. That's a scary thought, too. You will know for sure when you talk to your doctor on Monday. But my guess is not that the doctors are throwing up their hands and saying, "Why bother with the lung surgery? This guy is a goner." They're probably saying, "Since the lung cancer is only Stage 1, let's get this melanoma under control first and then turn our attention to the lung cancer." That would be my guess.
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- June 8, 2013 at 10:52 pm
Mary, I am sorry that you and your husband are having to go through all this. It is a lot to handle. And I admire your strength in not yet telling your husband about the canceled surgery. There is absolutely nothing he can do about it over the weekend except wonder and worry. Discretion at this time is a selfless act.
You say that you saw on the Moffitt patient portal that your husband's surgery has been canceled. Therefore, you must have registered for this service. You can go on your patient portal and read your husband's reports– office visits, radiology reports, etc. Most Moffitt doctors do post the reports, some do not (which pisses me off royally). Once you have read the available reports, you may understand more about the surgeon's findings and why the lung surgery was canceled. Please advise us about what you find out.
However, remember that melanoma and its treament is hard on the body. Even treatments that work can have a lot of difficult side effects, nausea or loss of appetite, and extreme fatigue. Lung surgery is also hard on the body. Why make your husband more miserable and un comfortable and make it harder for his body to fight the melanoma if it's not absolutely necessary at this time?
Furthermore, if he has surgery, he will probably have to heal for at least 3 or 4 weeks before he can start any melanoma treatment. That's a scary thought, too. You will know for sure when you talk to your doctor on Monday. But my guess is not that the doctors are throwing up their hands and saying, "Why bother with the lung surgery? This guy is a goner." They're probably saying, "Since the lung cancer is only Stage 1, let's get this melanoma under control first and then turn our attention to the lung cancer." That would be my guess.
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- June 8, 2013 at 10:52 pm
Mary, I am sorry that you and your husband are having to go through all this. It is a lot to handle. And I admire your strength in not yet telling your husband about the canceled surgery. There is absolutely nothing he can do about it over the weekend except wonder and worry. Discretion at this time is a selfless act.
You say that you saw on the Moffitt patient portal that your husband's surgery has been canceled. Therefore, you must have registered for this service. You can go on your patient portal and read your husband's reports– office visits, radiology reports, etc. Most Moffitt doctors do post the reports, some do not (which pisses me off royally). Once you have read the available reports, you may understand more about the surgeon's findings and why the lung surgery was canceled. Please advise us about what you find out.
However, remember that melanoma and its treament is hard on the body. Even treatments that work can have a lot of difficult side effects, nausea or loss of appetite, and extreme fatigue. Lung surgery is also hard on the body. Why make your husband more miserable and un comfortable and make it harder for his body to fight the melanoma if it's not absolutely necessary at this time?
Furthermore, if he has surgery, he will probably have to heal for at least 3 or 4 weeks before he can start any melanoma treatment. That's a scary thought, too. You will know for sure when you talk to your doctor on Monday. But my guess is not that the doctors are throwing up their hands and saying, "Why bother with the lung surgery? This guy is a goner." They're probably saying, "Since the lung cancer is only Stage 1, let's get this melanoma under control first and then turn our attention to the lung cancer." That would be my guess.
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- June 9, 2013 at 12:48 am
I agree with POW. They are basically trying to take care of the most pressing medical issues first and stage IV melanoma trumps stage I lung cancer. Get the melanoma under control and then deal with the lung cancer. No reason to do a highly invasive surgery at this point in time. My father had his stage I lung cancer radiated and basically had fatigue and a skin burn as the only side effects. That was close to 4 years ago and the lung cancer has remained stable. They monitor it, but concentrate more on my Dad's stage IV melanoma. He has chosen no treatment at this time, however, at age 88.
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- June 9, 2013 at 12:48 am
I agree with POW. They are basically trying to take care of the most pressing medical issues first and stage IV melanoma trumps stage I lung cancer. Get the melanoma under control and then deal with the lung cancer. No reason to do a highly invasive surgery at this point in time. My father had his stage I lung cancer radiated and basically had fatigue and a skin burn as the only side effects. That was close to 4 years ago and the lung cancer has remained stable. They monitor it, but concentrate more on my Dad's stage IV melanoma. He has chosen no treatment at this time, however, at age 88.
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- June 9, 2013 at 12:48 am
I agree with POW. They are basically trying to take care of the most pressing medical issues first and stage IV melanoma trumps stage I lung cancer. Get the melanoma under control and then deal with the lung cancer. No reason to do a highly invasive surgery at this point in time. My father had his stage I lung cancer radiated and basically had fatigue and a skin burn as the only side effects. That was close to 4 years ago and the lung cancer has remained stable. They monitor it, but concentrate more on my Dad's stage IV melanoma. He has chosen no treatment at this time, however, at age 88.
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- June 9, 2013 at 4:39 pm
Seems that everything I’m reading about the anti-PD-1 treatments indicate that it may be effective as a treatment for lung cancer as well as melanoma… I don’t know whether –given all the new trials being initiated by the drug companies to get FDA approval this might offer a way to provide comprehensive treatment? -
- June 9, 2013 at 4:39 pm
Seems that everything I’m reading about the anti-PD-1 treatments indicate that it may be effective as a treatment for lung cancer as well as melanoma… I don’t know whether –given all the new trials being initiated by the drug companies to get FDA approval this might offer a way to provide comprehensive treatment? -
- June 9, 2013 at 4:39 pm
Seems that everything I’m reading about the anti-PD-1 treatments indicate that it may be effective as a treatment for lung cancer as well as melanoma… I don’t know whether –given all the new trials being initiated by the drug companies to get FDA approval this might offer a way to provide comprehensive treatment? -
- June 10, 2013 at 2:48 am
They told me that I had too many fast growing/spreading tumors to operate on my lungs, that it would be better to start systemic treatment as soon as possible. I jumped immediately for IL-2 (the only systemic available then). I'm still here over 6 years later. No holes in my chest due to melanoma yet.
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- June 10, 2013 at 2:48 am
They told me that I had too many fast growing/spreading tumors to operate on my lungs, that it would be better to start systemic treatment as soon as possible. I jumped immediately for IL-2 (the only systemic available then). I'm still here over 6 years later. No holes in my chest due to melanoma yet.
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- June 10, 2013 at 2:48 am
They told me that I had too many fast growing/spreading tumors to operate on my lungs, that it would be better to start systemic treatment as soon as possible. I jumped immediately for IL-2 (the only systemic available then). I'm still here over 6 years later. No holes in my chest due to melanoma yet.
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- June 10, 2013 at 9:46 am
thanks so much for sharing and I think that is it with my husband too. -
- June 10, 2013 at 9:46 am
thanks so much for sharing and I think that is it with my husband too. -
- June 10, 2013 at 9:46 am
thanks so much for sharing and I think that is it with my husband too.
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Tagged: cutaneous melanoma
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