Chroroidal melanoma, I´
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Chroroidal melanoma, I´

› Forums › General Melanoma Community › Chroroidal melanoma, I´

  • Post
    • May 1, 2016 at 12:02 am
    Mimi1974
    Participant

      Hi,

       

      I´ve just been diagnosed with chroroidal melanoma one week ago.

      It has had a very hard impact on me during the first two days, I just felt like I´m gonna die right away.

      I actually went to the doc

    Viewing 2 reply threads
    • Replies
        • May 1, 2016 at 12:22 am
        Mimi1974
        Participant

          Ok, sorry it did not work out to write it all. 

          Ím gonna be 42 in Summer and I´ve always been healthy, except of having a balanced transolacation of chromosome 1 to 20, what made it a bit difficult to have children (what we managed to have after loosing 9, now we have 2 healthy girls). It is something rare – haha, like chroroidal melanoma……

          I´ve been seeing white flashes for some time, what I´ve told my kids Eye DOC.

          She sent me after the finding a naevus to the Hospital for more investigations.

          After two days of beeing checked, I´ve got the diagnose.

          We are about to move to China…So everything is very busy here.. House is already rented to some new tenants, we are/have been kind of ready and eager to move.

          Yesterday I´ve had a radio of my Chest and will have ultrasound on Monday, Monday in one week my big appointment with the specialist for proton treatment takes place.

          My Melanoma is on the small side – 1.56 deep, 9.96/7.56.

          So, thats why no MRI or CT will take place. But I´m still worried about Metastases.

          I´d like to know about treatment for the primary tumor and as well about how it goes, if Metastases are found?

          I´ve been reading here very positiv things.

          After staying in bed the two first days after the diagnose, I´ve felt like living a new LIfe..

          I can not explain what it is, but it is not my time to give in now. I am going on and I am a very Happy person, so why change this?

          I´m investigating for new treatment and so on, so any help, and positiv input is very welcome.

          Here, they call the prognose for it – not good. Bad.

          I know. But, I´d like to here anything else as well 😀

           

          Mimi

          • May 1, 2016 at 12:22 am
          Mimi1974
          Participant

            Ok, sorry it did not work out to write it all. 

            Ím gonna be 42 in Summer and I´ve always been healthy, except of having a balanced transolacation of chromosome 1 to 20, what made it a bit difficult to have children (what we managed to have after loosing 9, now we have 2 healthy girls). It is something rare – haha, like chroroidal melanoma……

            I´ve been seeing white flashes for some time, what I´ve told my kids Eye DOC.

            She sent me after the finding a naevus to the Hospital for more investigations.

            After two days of beeing checked, I´ve got the diagnose.

            We are about to move to China…So everything is very busy here.. House is already rented to some new tenants, we are/have been kind of ready and eager to move.

            Yesterday I´ve had a radio of my Chest and will have ultrasound on Monday, Monday in one week my big appointment with the specialist for proton treatment takes place.

            My Melanoma is on the small side – 1.56 deep, 9.96/7.56.

            So, thats why no MRI or CT will take place. But I´m still worried about Metastases.

            I´d like to know about treatment for the primary tumor and as well about how it goes, if Metastases are found?

            I´ve been reading here very positiv things.

            After staying in bed the two first days after the diagnose, I´ve felt like living a new LIfe..

            I can not explain what it is, but it is not my time to give in now. I am going on and I am a very Happy person, so why change this?

            I´m investigating for new treatment and so on, so any help, and positiv input is very welcome.

            Here, they call the prognose for it – not good. Bad.

            I know. But, I´d like to here anything else as well 😀

             

            Mimi

              • May 1, 2016 at 12:27 am
              Mimi1974
              Participant

                Oh, and not to forget . I am soooo scared and worried as well. It is like being on a rollercoaster.

                 

                • May 1, 2016 at 12:27 am
                Mimi1974
                Participant

                  Oh, and not to forget . I am soooo scared and worried as well. It is like being on a rollercoaster.

                   

                  • May 16, 2016 at 9:17 pm
                  Mimi1974
                  Participant

                    Hi again,

                     

                    Now, I do have a second diagnose – just the same – by Lausanne in Switzerland.

                    The good thing is, they are responsible and they do have a lot of experience.

                    I will have my Eye surgery next Tuesday, to fix the protecting plate around the melanoma, and I will get Protonen radiatorn two weeks later in Villingen.

                    My Melanoma is very thin, less than 2mm, but my mole is very big… The part what has gone "bad""maligne" is not so big, so maybe my chances are quit good, god knows.

                    The prognoses for my vision on my left Eye are very bad, thought. So they say, I will become blind on my left Eye most probably.

                    How are you all doing? How are you all living with it? What do you experience?

                    I feel quit lonely – what is strange, because I get a lot of support of my family and friends.

                    Hope to hear back from someone….

                    Mimi

                    • May 16, 2016 at 9:17 pm
                    Mimi1974
                    Participant

                      Hi again,

                       

                      Now, I do have a second diagnose – just the same – by Lausanne in Switzerland.

                      The good thing is, they are responsible and they do have a lot of experience.

                      I will have my Eye surgery next Tuesday, to fix the protecting plate around the melanoma, and I will get Protonen radiatorn two weeks later in Villingen.

                      My Melanoma is very thin, less than 2mm, but my mole is very big… The part what has gone "bad""maligne" is not so big, so maybe my chances are quit good, god knows.

                      The prognoses for my vision on my left Eye are very bad, thought. So they say, I will become blind on my left Eye most probably.

                      How are you all doing? How are you all living with it? What do you experience?

                      I feel quit lonely – what is strange, because I get a lot of support of my family and friends.

                      Hope to hear back from someone….

                      Mimi

                      • May 16, 2016 at 9:17 pm
                      Mimi1974
                      Participant

                        Hi again,

                         

                        Now, I do have a second diagnose – just the same – by Lausanne in Switzerland.

                        The good thing is, they are responsible and they do have a lot of experience.

                        I will have my Eye surgery next Tuesday, to fix the protecting plate around the melanoma, and I will get Protonen radiatorn two weeks later in Villingen.

                        My Melanoma is very thin, less than 2mm, but my mole is very big… The part what has gone "bad""maligne" is not so big, so maybe my chances are quit good, god knows.

                        The prognoses for my vision on my left Eye are very bad, thought. So they say, I will become blind on my left Eye most probably.

                        How are you all doing? How are you all living with it? What do you experience?

                        I feel quit lonely – what is strange, because I get a lot of support of my family and friends.

                        Hope to hear back from someone….

                        Mimi

                        • May 1, 2016 at 12:27 am
                        Mimi1974
                        Participant

                          Oh, and not to forget . I am soooo scared and worried as well. It is like being on a rollercoaster.

                           

                        • May 1, 2016 at 12:22 am
                        Mimi1974
                        Participant

                          Ok, sorry it did not work out to write it all. 

                          Ím gonna be 42 in Summer and I´ve always been healthy, except of having a balanced transolacation of chromosome 1 to 20, what made it a bit difficult to have children (what we managed to have after loosing 9, now we have 2 healthy girls). It is something rare – haha, like chroroidal melanoma……

                          I´ve been seeing white flashes for some time, what I´ve told my kids Eye DOC.

                          She sent me after the finding a naevus to the Hospital for more investigations.

                          After two days of beeing checked, I´ve got the diagnose.

                          We are about to move to China…So everything is very busy here.. House is already rented to some new tenants, we are/have been kind of ready and eager to move.

                          Yesterday I´ve had a radio of my Chest and will have ultrasound on Monday, Monday in one week my big appointment with the specialist for proton treatment takes place.

                          My Melanoma is on the small side – 1.56 deep, 9.96/7.56.

                          So, thats why no MRI or CT will take place. But I´m still worried about Metastases.

                          I´d like to know about treatment for the primary tumor and as well about how it goes, if Metastases are found?

                          I´ve been reading here very positiv things.

                          After staying in bed the two first days after the diagnose, I´ve felt like living a new LIfe..

                          I can not explain what it is, but it is not my time to give in now. I am going on and I am a very Happy person, so why change this?

                          I´m investigating for new treatment and so on, so any help, and positiv input is very welcome.

                          Here, they call the prognose for it – not good. Bad.

                          I know. But, I´d like to here anything else as well 😀

                           

                          Mimi

                      Viewing 2 reply threads
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