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CLEAR SCANS!

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    • July 17, 2018 at 6:38 pm
    JuTMSY4
    Participant

      Looks like I'm back to NEAD/NED!  Got the final part of my CT scan yesterday and there's nothing there.  Plus, I've lost a little weight (on purpose) that's reduced some fatty tissue around my liver which makes things that might have been cancer far less conspicuous (they probably were never cancer as far as anyone can tell, right now).

      We're going to keep "re-doing" pembro for probably 9 months, although my doc said she had my DNA sequenced since I signed off on a variety of research forms and that I might be a prime candidate for a small study on vaccines.  

      https://www.nature.com/articles/d41586-017-08706-3

      Not sure if anyone has ANY experience with this (looks like maybe 30 people have tried it in one study or another).  We're not sure if it's gonna happen or if I'm going to stop Pembro or pause it or anything.  I'll keep everyone posted!

      -j

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        • July 17, 2018 at 7:54 pm
        ed williams
        Participant

          Hi Jutmsy4, what is interesting about the neoantigens is that it would be specific to you personally and being NEAD might be the perfect time to try something that could aid in long term success for you. I would want to see the side effect profile of the others that have tried the vaccine before you, and if it seems reasonable then starting the process would make sense. If I understand the process, it does take quite some time to develop the vaccine which will give you more time to process the data and make an informed decision. Best Wishes!!!Ed

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