Colitis and prednisone
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Colitis and prednisone

› Forums › General Melanoma Community › Colitis and prednisone

  • Post
    • May 26, 2018 at 4:26 pm
    tedtell1
    Participant

      Hey melanomies;

      I had to start on 100mg prednisone this morning due to colitis from the opdivo. My belly has been really bad lately…wondering how quickly the steroid kicks in and starts working. Any experiences from any one would be appreciated. Thanks, keep on fighting warriors!

      Ted

    Viewing 1 reply thread
    • Replies
        • May 27, 2018 at 9:17 am
        Shade
        Participant

          It depends on how activated your immune system is and for how long. I received 2 shots of ippilimumab before falling out of a drug trial for immune toxicity.

          The colitis for me went away in a few days after starting on prednisone, but the damaged colon seemed to take awhile to recover so bowel movements weren't normal for at least a couple weeks if not longer in each instance.

          I had a few rounds of colitis, as I started to taper off prednisone the first time (100mg down to 60mg) the immune system roared back into action damaging liver and colon and landed me in the hospital, dehydrated and lacking electrolytes.

          Prednisone saved my life, but the long term effects of prednisone are no joke. 

          I started prednisone 100mg within a week after second ippi treatment (due to extreme chills and colitis).  Was on prednisone for 5 1/2 months  It will take at least that much time to regain the strength I lost. Prednisone in high enough doses for long enough can cause muscle deterioration.

          • May 30, 2018 at 3:20 pm
          Hukill
          Participant

            I had 5 combos and 46 nivo and no stomach issues. I don't know if what I do helps or not. I try to eat at least 1 pb&j sandwich and a banana everyday and anything else that makes you thick. I am also on hydrocodine for other issues and that probably helped also. I avoid foods that in the past messed up my stomach.

        Viewing 1 reply thread
        • You must be logged in to reply to this topic.
        About the MRF Patient Forum

        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.