Coming up on 5 years NED – Still alive and kicking

I know my story is totally anecdotal and I don't intend to try to convince people not to pursue medical options with this disease, certainly anyone reading this who has active Mel should seek the advice of qualified oncologists but I like to check in from time to time here since I got some fantastic ideas from this forum many years ago from a gentleman named James Sennel whom I thought was a total quack when I first read what he wrote here. Turns out he was on the right track however and I just want to continue the discussion for current readers.  

I never took Chemo (Inf) or Yervoy but my stage 4 melanoma vanished in 2011 and never came back. I was waiting for yervoy to get FDA approved back in 2011 but I never needed to take it because there was no longer any detectable tumors after my last sterotactic procedure in Nov 2011. I had a total of seven surgeries or radiation procedures to remove or kill melanoma tumors in my lymph system over the course of about 3 years from 2008-2011 and thought I would be dead from this cancer.  I was very lucky this never invaded any significant internal organs or my brain, it did grow in my gallbladder (removed) and about 1/2 inch from my heart (near my Aorta – fried by gamma radiation beam)

I think it was the following changes I made in lifestyle that cause a remission:  I purchased a Vitamin D/ UVB lamp from a company called Sperti and used it 3 times a week for about 10 min time, perhaps 30 minutes total each week. I ceased bathing my skin with soap other than the parts that really needed it, this increased sebum on the skin surface which really helped raise my vitamin D levels. My VD level was always low even though I took pretty large doses of vitamin D in pill form, upto 6000iu per day but it was when I started using this lamp the levels really raised up to mid 50s and sometimes 60+ while before that was always around 20 or so.  This is not a tanning lamp which is mostly UVB and is meant for very short duration use, not enough to seriously damage your skin cell dna, UVB does not penetrate skin as deeply as does UVA.

In addition to using this sort of UVB lamp, I ceased using fluoride toothpaste and began really scrubbing any produce I ate to remove any pesticide or fumigant residue which is also very high in Fl. Anyone that gets cancer should be aware of the degrading effect that this stuff has on mitochondrial enzyme production which is how vitamin D is modified to become active in the kidneys and liver. Also I would point out nearly all our steroidal hormones are the result of enzymatic processes so if these enzymes are not effectively working due to fluoride interference you will become low in some very important endocrine hormones.

I also ceased eating pretty much all processed dairy products such as cheese (I loved cheese before), skim milk, basically anything with high levels of casein protein. Casien protein is a sticky molecue which I think gums up your lymphatic flow and can prevent your immune cells from mounting an effective attack on tumors. This is because casein protein is highly imflammatory to the immune system resulting in reduced effectiveness of your T and NK cells whcih will usually wipe out cancer growths. Casein I would also point ouit is used in medical research to actually induce inflammatory responses for cellular research so you need to curtail most processed dairy products as you want your low level inflammation gone. 

I know people that get this disease are also super worried about sun exposure and sunscreens, I went thru the same thing.  I have not worn sunscreen at all in 5 years and havn't taken a vitanin D supplement in all this time yet my bloodwork shows I have super high vitamin D levels FWIW. Sunscreen is a very stupid product since it will generally prevent you from being able to produce any vitamin D since this is formed when UVB light wavelength catabolyses the cholesterol in your sebum and upper skin levels, that is this light frequency opens up the steroidal ring by removing a chemical bond in that hydrocarbon ring structure. That precursor is then reabsorbed into your skin since it is a lipid and makes its way to your liver for further modification by cellular enzymes. I used to grow all sorts of weird skin lesions and strange moles but that has ceased and my skin has actually improved a lot in 5 years. 

One other thing I feel is important is you must supplement your trace mineral intake including magnesium, zinc, iodine, boron, etc as all these substances are really important building blocks for all your hormones. Steroidal hormones are a controlling agent for genetic expression affectinve many bodily functions and feedback mechanisms. Get plenty of raw green leafy vegetables in your diet as well, they are high in Mg, vitamin A and C along with vitamin K, all of these are necessary in your fight.

The warnings about sunburn and UVB rays may have some merit but if you over-react by wearing sunscreen all the time and thus never receive enough mid-day sunlight which is highest in UVb contect you are asking for further cancer growth IMO. Apparently some people (like me) cannot absorb the pill form of vitamin D for some reason. Anyway, please just consider my message which I know seems implausible but yet here I am still alive and doing pretty well. My bloodwork today shows an LD reading below 20 which is awesome, it was well over 70 when I had active tumors. My wbc's are upto 25% levels from a low of less than 10%, my vitaminD is over 50 from around 20 previously, my blood sugar is much lower now, usually high 80's (early morn) and was always 110-115 range when I had active disease. (BTW – keep all of your bloodwork in a binder for later reference – the above markers are great for following progress in your fight)

IMO and based on my own experience with this thing, Mel is actually a reversible condition and not a death sentence. BTW-none of what I recommend will interfere with chemo or gene therapy medicines, higher vitamin D level will absolutely help all of these efforts for you to become health again. Good luck