MRF-Logo2019-Horizontal-RGB
Confused and frustrated
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Confused and frustrated

› Forums › General Melanoma Community › Confused and frustrated

  • Post
    • August 29, 2015 at 2:10 am
    evieg
    Participant

      My husband just finished 3 weeks of Whole Brain Radiation… When we first found out about his more than 20 brain tumors the Dr said, "This is a serious situation, I am suggesting WBR and when you are finished we need to be very aggressive and do Biochemotherapy … We have run out of treatments so I am afraid it is the Biochemo or hospice" … We were devastated!

      now that the radiation is over… Whole game plan is different, because my husband looks and feels ok????…"let's  do CT  scans first of the neck to pelvis and see if you are stable Everywhere else"…. Unbelievable!

      For three weeks my husband has been so down and depressed because of our prior conversation….We are so confused…. to go from Biochemo or hospice…. to let's see where we are at…. Do not know how to feel about this…,do not get me wrong, my husband is happy no Biochemo..for now, but just so confused.. 

      Anyone have any input on WBR and response rates?

       

    Viewing 2 reply threads
    • Replies
        • August 30, 2015 at 11:53 pm
        Fen
        Participant

          I'm sorry I don't have an answer to your question about WBR but it sounds like there is a communication problem.  Where are you being treated?  Have you had good conversations with your dr. before?  What previous treatments have you done?    

          Fen

          • August 30, 2015 at 11:53 pm
          Fen
          Participant

            I'm sorry I don't have an answer to your question about WBR but it sounds like there is a communication problem.  Where are you being treated?  Have you had good conversations with your dr. before?  What previous treatments have you done?    

            Fen

            • August 30, 2015 at 11:53 pm
            Fen
            Participant

              I'm sorry I don't have an answer to your question about WBR but it sounds like there is a communication problem.  Where are you being treated?  Have you had good conversations with your dr. before?  What previous treatments have you done?    

              Fen

          Viewing 2 reply threads
          • You must be logged in to reply to this topic.
          About the MRF Patient Forum

          The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

          The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

          Popular Topics