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Daughter’s biopsies returned benign!!
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Daughter’s biopsies returned benign!!

› Forums › General Melanoma Community › Daughter’s biopsies returned benign!!

  • Post
    • February 15, 2013 at 3:08 pm
    shep
    Participant

      my daughter's 4 lymph nodes found to be sentinals two each under her arms were returned negative!!! her WLE from primary and 4 other dysplastic nevi all returned benign also. she was diagnosed melanoma positive on 1/22, had her SLNB and WLE surgeries on feb 7 and drove with us 5 1/2 hours south the next morning to help coach her sister thru her first child's birth… very proud of her. we were so worried because the radioctive isotopes only took 15 minutes to reach the sentinals. results came back on tues 2/12 and i burst into tears at the news.

      my daughter's 4 lymph nodes found to be sentinals two each under her arms were returned negative!!! her WLE from primary and 4 other dysplastic nevi all returned benign also. she was diagnosed melanoma positive on 1/22, had her SLNB and WLE surgeries on feb 7 and drove with us 5 1/2 hours south the next morning to help coach her sister thru her first child's birth… very proud of her. we were so worried because the radioctive isotopes only took 15 minutes to reach the sentinals. results came back on tues 2/12 and i burst into tears at the news. we are so thankful and am wishing well to all in this forum who have helped me get a handle on this disease. now she realizes how important it is to keep up on her nevi conditions.                                

                                                                       

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    • Replies
        • February 15, 2013 at 4:04 pm
        POW
        Participant

          That's great news, Shep. Thank you for posting it. 

          I am glad that your daughter will be getting thorough check-ups to keep an eye on her dysplastic nevii. Very good! She is still a Stage II melanoma patient, however. If it were me, I would want a CT scan or at least a PET scan at least once a year for the next couple of years to be certain that that one melanoma has not spread. The chances of that are very slight, especially since her SNB was negative. However, you can't tell by looking at the skin whether the original melanoma has spread. I would feel more secure with a periodic scan, even if I had to pay for it myself. It's not worth actively worrying about, but why not make use of these new imaging technologies as part of a rational approach to vigilance? 

          • February 15, 2013 at 4:04 pm
          POW
          Participant

            That's great news, Shep. Thank you for posting it. 

            I am glad that your daughter will be getting thorough check-ups to keep an eye on her dysplastic nevii. Very good! She is still a Stage II melanoma patient, however. If it were me, I would want a CT scan or at least a PET scan at least once a year for the next couple of years to be certain that that one melanoma has not spread. The chances of that are very slight, especially since her SNB was negative. However, you can't tell by looking at the skin whether the original melanoma has spread. I would feel more secure with a periodic scan, even if I had to pay for it myself. It's not worth actively worrying about, but why not make use of these new imaging technologies as part of a rational approach to vigilance? 

            • February 15, 2013 at 4:04 pm
            POW
            Participant

              That's great news, Shep. Thank you for posting it. 

              I am glad that your daughter will be getting thorough check-ups to keep an eye on her dysplastic nevii. Very good! She is still a Stage II melanoma patient, however. If it were me, I would want a CT scan or at least a PET scan at least once a year for the next couple of years to be certain that that one melanoma has not spread. The chances of that are very slight, especially since her SNB was negative. However, you can't tell by looking at the skin whether the original melanoma has spread. I would feel more secure with a periodic scan, even if I had to pay for it myself. It's not worth actively worrying about, but why not make use of these new imaging technologies as part of a rational approach to vigilance? 

                • February 15, 2013 at 7:23 pm
                shep
                Participant

                  thanks POW, we go to see the oncologist on feb 22 to discuss the next steps in my daughter's treatments. i will post the discussion after we have it.

                  • February 15, 2013 at 7:23 pm
                  shep
                  Participant

                    thanks POW, we go to see the oncologist on feb 22 to discuss the next steps in my daughter's treatments. i will post the discussion after we have it.

                    • February 15, 2013 at 7:23 pm
                    shep
                    Participant

                      thanks POW, we go to see the oncologist on feb 22 to discuss the next steps in my daughter's treatments. i will post the discussion after we have it.

                    • February 15, 2013 at 5:32 pm
                    JC
                    Participant

                      one reason why not is the high radiation exposure of CT scans

                      • February 15, 2013 at 5:32 pm
                      JC
                      Participant

                        one reason why not is the high radiation exposure of CT scans

                        • February 15, 2013 at 5:32 pm
                        JC
                        Participant

                          one reason why not is the high radiation exposure of CT scans

                          • February 17, 2013 at 12:58 am
                          NYKaren
                          Participant
                            Great news and a grandchild all in the same week!

                            I’m sure you’ll discuss risk/benefit factors when you see onc.

                            So, boy or girl?

                            All the best,
                            Karen

                            • February 17, 2013 at 12:58 am
                            NYKaren
                            Participant
                              Great news and a grandchild all in the same week!

                              I’m sure you’ll discuss risk/benefit factors when you see onc.

                              So, boy or girl?

                              All the best,
                              Karen

                              • February 17, 2013 at 12:58 am
                              NYKaren
                              Participant
                                Great news and a grandchild all in the same week!

                                I’m sure you’ll discuss risk/benefit factors when you see onc.

                                So, boy or girl?

                                All the best,
                                Karen

                                  • February 18, 2013 at 6:42 pm
                                  shep
                                  Participant

                                    8lb 5oz 19" baby boy…  thanks!!!!!!!!!

                                    • February 18, 2013 at 6:42 pm
                                    shep
                                    Participant

                                      8lb 5oz 19" baby boy…  thanks!!!!!!!!!

                                      • February 18, 2013 at 6:42 pm
                                      shep
                                      Participant

                                        8lb 5oz 19" baby boy…  thanks!!!!!!!!!

                                      • February 25, 2013 at 4:24 pm
                                      shep
                                      Participant

                                        we saw the oncologist last friday, 2-22 and he said he recommends no adjuvant treatments (which we were hoping) but was not keen on PET scan or ultra sound. My daughter and I think she should probably have a PET scan, but not sure when for her ST IIB melanoma. He told us that there were not conclusive evidence of longevity in using a PET or not. He says to be aware of any changes, aches or pains, and notify him as soon as any abnormalities show, if they do. He told us that you are never 'cured' of melanoma and wants to see her for follow ups every three months, and continue with her dermatologist appointments. She still has several nevii that are due to be removed on various parts of her skin. We had been under the understanding that a PET scan was a normal part of treatment for a stage IIB after 6 months to a year as a precautionary measure. We may press for a scan at the 6 month interval and see what he says at that time.

                                        Thanks all for listening, and hope each and every one of you has been able to keep up good spirits.

                                        • February 25, 2013 at 4:24 pm
                                        shep
                                        Participant

                                          we saw the oncologist last friday, 2-22 and he said he recommends no adjuvant treatments (which we were hoping) but was not keen on PET scan or ultra sound. My daughter and I think she should probably have a PET scan, but not sure when for her ST IIB melanoma. He told us that there were not conclusive evidence of longevity in using a PET or not. He says to be aware of any changes, aches or pains, and notify him as soon as any abnormalities show, if they do. He told us that you are never 'cured' of melanoma and wants to see her for follow ups every three months, and continue with her dermatologist appointments. She still has several nevii that are due to be removed on various parts of her skin. We had been under the understanding that a PET scan was a normal part of treatment for a stage IIB after 6 months to a year as a precautionary measure. We may press for a scan at the 6 month interval and see what he says at that time.

                                          Thanks all for listening, and hope each and every one of you has been able to keep up good spirits.

                                          • February 25, 2013 at 4:24 pm
                                          shep
                                          Participant

                                            we saw the oncologist last friday, 2-22 and he said he recommends no adjuvant treatments (which we were hoping) but was not keen on PET scan or ultra sound. My daughter and I think she should probably have a PET scan, but not sure when for her ST IIB melanoma. He told us that there were not conclusive evidence of longevity in using a PET or not. He says to be aware of any changes, aches or pains, and notify him as soon as any abnormalities show, if they do. He told us that you are never 'cured' of melanoma and wants to see her for follow ups every three months, and continue with her dermatologist appointments. She still has several nevii that are due to be removed on various parts of her skin. We had been under the understanding that a PET scan was a normal part of treatment for a stage IIB after 6 months to a year as a precautionary measure. We may press for a scan at the 6 month interval and see what he says at that time.

                                            Thanks all for listening, and hope each and every one of you has been able to keep up good spirits.

                                              • February 25, 2013 at 10:09 pm
                                              JerryfromFauq
                                              Participant

                                                I could see a PET/CT at either 6 months or a year.  Odds are they will be clear, but this gives one more piece of mind.

                                                An x-ray or CT of the lung area would be appropriate in the future as the lump nodes then the lungs aare the most likely path for Melanoma to follow.  PETs are not definitive, they just measure glucose uptake which may or may not indicate tumors.  They are just a starting point.

                                                • February 25, 2013 at 10:09 pm
                                                JerryfromFauq
                                                Participant

                                                  I could see a PET/CT at either 6 months or a year.  Odds are they will be clear, but this gives one more piece of mind.

                                                  An x-ray or CT of the lung area would be appropriate in the future as the lump nodes then the lungs aare the most likely path for Melanoma to follow.  PETs are not definitive, they just measure glucose uptake which may or may not indicate tumors.  They are just a starting point.

                                                  • February 25, 2013 at 10:09 pm
                                                  JerryfromFauq
                                                  Participant

                                                    I could see a PET/CT at either 6 months or a year.  Odds are they will be clear, but this gives one more piece of mind.

                                                    An x-ray or CT of the lung area would be appropriate in the future as the lump nodes then the lungs aare the most likely path for Melanoma to follow.  PETs are not definitive, they just measure glucose uptake which may or may not indicate tumors.  They are just a starting point.

                                                  • February 25, 2013 at 4:40 pm
                                                  JC
                                                  Participant

                                                    "He told us that you are never 'cured' of melanoma "               I like Doctors that talk honestly like that.  Sometimes I hear Stage I people being told after WLE they are "cured" or the surgery was "curative."  How could they know that? Maybe it was, maybe it wasn't.  Nobody knows.

                                                    • February 25, 2013 at 4:40 pm
                                                    JC
                                                    Participant

                                                      "He told us that you are never 'cured' of melanoma "               I like Doctors that talk honestly like that.  Sometimes I hear Stage I people being told after WLE they are "cured" or the surgery was "curative."  How could they know that? Maybe it was, maybe it wasn't.  Nobody knows.

                                                      • February 25, 2013 at 4:40 pm
                                                      JC
                                                      Participant

                                                        "He told us that you are never 'cured' of melanoma "               I like Doctors that talk honestly like that.  Sometimes I hear Stage I people being told after WLE they are "cured" or the surgery was "curative."  How could they know that? Maybe it was, maybe it wasn't.  Nobody knows.

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