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Day 7 on Taf/Mek results so far

Forums General Melanoma Community Day 7 on Taf/Mek results so far

  • Post
    Lddaughter
    Participant

      Just wanted to put out how my mom was doing now that we are on day 7 of Taf/Mek treatment. She is becoming increasingly annoying (in the best way possible!).

      It was about day 4 that we really saw her responding well. She started backing off the pain meds and really the only side effect is achiness so far. She does get headaches but I think that is attributed to the pain med withdraw. 

      Day 5 – We traveled and she had a lot of soreness in her back after 5 hours in the car. She was able to nap only once or twice and overall had a good day.

      Day 6 (yesterday) – She got up and had a great morning. Back to 2 cups of coffee and no nausea in the mornings. A little achiness but really didn't nap much and had a hard time even trying to nap. Traveled back to KC so another 5 hours in the car. A little sore when she got home but ate and went to bed.

      Day 7 (today) – She slept great once she got in her own bed. I woke her up to take her meds at 7:30 then she was up and ready to go. Energy level has increased drastically. The nesting/cleaning has finally kicked in for HER and there was no stopping her after her coffee. Made me shopping lists and is ready to get stuff accomplished today. Her inflammation seems to be going down in her liver area and has had NO pain meds today!

      We got off track from clean eating the last week just trying to make sure she is eating on a schedule and getting protein to try and get her weight back up.It is night and day from how she was last Tuesday. We are so thankful that we are getting her back (snarky attitude and all) even if it is just for a little while. Our next apt is Thursday for a toxicity test? Hoping to get her blood tested again to compare numbers from 2 weeks ago. Thank you all for the thoughts and prayers. Staying optimistic that this will give us more time! Down to 4 weeks until her grandson is born and she told me this morning she has baby fever so bad! I pray every day she gets to be with me again when he arrives. Best wishes to you all!

      Thanks,

      -A

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    • Replies
        adriana cooper
        Participant

          Truly they are miracle drugs for many. I am so happy they have been successful for your mom.

          Rob

          TexMelanomex
          Participant

            Awesome, inspiring, and powerful. Thank you for sharing this!

            Momofjake
            Participant

              So happy! My son had a similar response! He had a very heavy tumor load and in his whole body. He could only tolerate Taf, but it did the trick. He stopped after a good response then did ipi. It's been almost a year and he is still doing well:) Try not to worry…it only takes good days away!! Everyone is different and response times vary:) 

              Good luck with that baby!!

              Kerri

               

              snow white
              Participant

                Such great news! Enjoy every minute.

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