› Forums › General Melanoma Community › Dr. Burzinsky’s treatment. Question
- This topic has 30 replies, 4 voices, and was last updated 10 years, 7 months ago by
Sheepsandcows.
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- September 18, 2014 at 8:24 pm
I have been looking at some links and a documentary about the use of a drug he developed privately. My search started as i was looking for research and studies on the use of cannabis for melanoma. Does anyone heard about Dr Burzinsky's Clinic in Texas? There is so much debate about his approach and some conspiracy theories attached to it that it is hard to come to a sane conclusion. My son is receiving IPI and is in stage 3C, so I keep looking for alternative treatment should we find ourselves in that place. Dr Burzinsky seems to have had some success (25%) success with cancer patients with brain tumors who do not want to take the path of radiation for many good reasons. Thank you for your help and time.
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- September 19, 2014 at 6:05 pm
I have spoken with a half-dozen experts about his approach and they are all highly skeptical.
For every serious illness you will find people at the fringes. Determining if they are visionary or deluded or predatory can be challenging. I generally ask the following questions:
–do they share their approach openly with other investigators and publish in peer-reviewed journals?
–can their results be replicated by another, independent institution that is credible and well-established?
–do they only work on a cash basis?
If their data is not shared, if no-one can reproduce their data, and if they are cash only I become quite suspicious.
Tim–MRF
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- September 19, 2014 at 6:37 pm
Thank you for your reply. I've learnt watching a documentary that some studies were done at NIH or equivalent (dont remember now) using the drugs he developed but at a different dose to the protocol Dr Burzinky created in the midst of intense political patent battles. Anyway, it is a grey area. I understand.
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- September 19, 2014 at 6:37 pm
Thank you for your reply. I've learnt watching a documentary that some studies were done at NIH or equivalent (dont remember now) using the drugs he developed but at a different dose to the protocol Dr Burzinky created in the midst of intense political patent battles. Anyway, it is a grey area. I understand.
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- September 19, 2014 at 6:37 pm
Thank you for your reply. I've learnt watching a documentary that some studies were done at NIH or equivalent (dont remember now) using the drugs he developed but at a different dose to the protocol Dr Burzinky created in the midst of intense political patent battles. Anyway, it is a grey area. I understand.
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- September 21, 2014 at 9:22 am
Hello Tim,
I checked into Burzinskis clinic during my research into what to do (Met/Mel… They never did stage it because it's a reocurrance after 20 years… somewhere in the St3-4 range.) Anyway, Burzinskis clinic has great success (although controversial) with some cancers but Melanoma was not one of them., The expense was high (yes, cash with a commitment of many months.) I don't remember the details but they will give them to you with a call.
I ended up going to the Integrated Health Clinic in B.C. for hyperthermia protocol.
LOL, Ann
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- September 21, 2014 at 2:20 pm
Yes, it looks as burzinsky clinic had some good results with brain related tumors. I wonder how was your experience in BC ?
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- September 22, 2014 at 8:32 am
For me, Integrated Health Clinic in B.C. was a bright light in the often scary world of Oncology. At the time I was so greatful to find a treatment that supported my immune system rather than to harm it. It's a long story… 3 years at it now with Met/mel. As far as I know, they are the only place in NorthAmerica to do WHole body hyperthermia. Rx was 3x local hyyperthermia per week and 1 whole body per week for 6 weeks. Also, took Iscador Pini Mistletoe, IV Vit C or Alpha Lipoic Acid, many nuritional supplements , 4 lowdose pharmecuticals known as "metronomic" therpay. Celebrex, Metformin, Cemitidine and Tamoxifin (Melanoma being estrogen sensitive.) Many dietary protocols as well. I've done this 6 week protocol 3 times now. First time 5cm tumor shrank 30% … based on PET/CT scans) I have had 2 surgeries and most recently Steritactic Tomotherapy (3 Rx, 15 Gy each), post last surgery. This disease takes us on a journey. There is no one right way to go… At this point I live with it… LOL, Ann
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- September 23, 2014 at 1:06 am
Interesting story.
I have done whole body and localised hyperthermia in Germany and also take cimitidine which i believe is an histamine blocker, mistletoe, and various other supplements. I am going back next week for another round of treatment. I wont do radiation or any other treatment apart from surgery. My onocologist warned me not to do radiation as it is his opinion that it can spread the melanoma to other parts of the body. Not sure what other people think of that.
What do you mean by melanoma being estrogen sensitive?
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- September 23, 2014 at 1:06 am
Interesting story.
I have done whole body and localised hyperthermia in Germany and also take cimitidine which i believe is an histamine blocker, mistletoe, and various other supplements. I am going back next week for another round of treatment. I wont do radiation or any other treatment apart from surgery. My onocologist warned me not to do radiation as it is his opinion that it can spread the melanoma to other parts of the body. Not sure what other people think of that.
What do you mean by melanoma being estrogen sensitive?
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- September 23, 2014 at 1:06 am
Interesting story.
I have done whole body and localised hyperthermia in Germany and also take cimitidine which i believe is an histamine blocker, mistletoe, and various other supplements. I am going back next week for another round of treatment. I wont do radiation or any other treatment apart from surgery. My onocologist warned me not to do radiation as it is his opinion that it can spread the melanoma to other parts of the body. Not sure what other people think of that.
What do you mean by melanoma being estrogen sensitive?
-
- September 22, 2014 at 8:32 am
For me, Integrated Health Clinic in B.C. was a bright light in the often scary world of Oncology. At the time I was so greatful to find a treatment that supported my immune system rather than to harm it. It's a long story… 3 years at it now with Met/mel. As far as I know, they are the only place in NorthAmerica to do WHole body hyperthermia. Rx was 3x local hyyperthermia per week and 1 whole body per week for 6 weeks. Also, took Iscador Pini Mistletoe, IV Vit C or Alpha Lipoic Acid, many nuritional supplements , 4 lowdose pharmecuticals known as "metronomic" therpay. Celebrex, Metformin, Cemitidine and Tamoxifin (Melanoma being estrogen sensitive.) Many dietary protocols as well. I've done this 6 week protocol 3 times now. First time 5cm tumor shrank 30% … based on PET/CT scans) I have had 2 surgeries and most recently Steritactic Tomotherapy (3 Rx, 15 Gy each), post last surgery. This disease takes us on a journey. There is no one right way to go… At this point I live with it… LOL, Ann
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- September 22, 2014 at 8:32 am
For me, Integrated Health Clinic in B.C. was a bright light in the often scary world of Oncology. At the time I was so greatful to find a treatment that supported my immune system rather than to harm it. It's a long story… 3 years at it now with Met/mel. As far as I know, they are the only place in NorthAmerica to do WHole body hyperthermia. Rx was 3x local hyyperthermia per week and 1 whole body per week for 6 weeks. Also, took Iscador Pini Mistletoe, IV Vit C or Alpha Lipoic Acid, many nuritional supplements , 4 lowdose pharmecuticals known as "metronomic" therpay. Celebrex, Metformin, Cemitidine and Tamoxifin (Melanoma being estrogen sensitive.) Many dietary protocols as well. I've done this 6 week protocol 3 times now. First time 5cm tumor shrank 30% … based on PET/CT scans) I have had 2 surgeries and most recently Steritactic Tomotherapy (3 Rx, 15 Gy each), post last surgery. This disease takes us on a journey. There is no one right way to go… At this point I live with it… LOL, Ann
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- September 22, 2014 at 8:39 am
IBecause of the Tomotherapy I have been reading abut something called the "Abscopal" Effect. In essence,
when a tumor is treated with highdose radiation, sometimes the immune system responds with recognizing other tumor sites in the body and reducing them too. They say it's rare… but it makes so much sense from everything I've come to understand about this disease.
I've read some cases where , when a patient is on Yervoy and has the radiation treatment, this can happen more often as there are more immune cells … please forgive me, I don't remember if its NK or T-cells. Anyway, There are more cells activated in the immune system. There are even some trials going on. How is your son (what age?) responding to Yervoy? How is he doing? ALoha, Ann
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- September 22, 2014 at 1:10 pm
My son is 27
he finished the 4 infusions of yervoy of the treatment phase -he is in a trial. Today he has surgery of neck lymph node -his third-. Last CT scan and PET showed it was compromised. After it he will continue with the maintainance yervoy phase every twelve weeks. The oncologist thinks his immune system maybe responding at a slower pace. The radiologist recommended radiation after surgery. We are hesitant given the risky side effects of radiation in the neck area. I wonder if you have a link to the study showing these results you mentioned in your post regarding radiation. I havent heard of it. Thank you, M
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- September 23, 2014 at 12:07 am
Hi,
Below ar some links which speak about Immune response and radiation. It is a new area of study, but it makes sense from what I learned while doing hyperthermia. I couldn't find the one that talks about an actual clinical trial… I'll send it along if I can find it.I just did the Tomotherapy high dose radiation after a surgery into my Lumbar area. It was to deep an area to get all of the tumor so thats why I did it. The high dose (for me 3 treatmenrs,15 Gy each) are apparently so different than traditional radiation , and, for Melanoma more useful. The first time I had surgery in left axilla, 2 years ago, I did a 6 week protocol of hyperthermia to "clean up" the area. The docs suggested radiation (SOC) but I did not want to do it. I have had no re-occurance in that area. And, no side effects. If you would like to contact me off the group post please do, [email protected]. For what it's worth, I have grown to appreciate all of my docs… the Onco, surgeon, radiologist , but it is amazingh how much they don't know. It is so important to question, research and look beyond Standard of care (SOC) … Then, there are the Naturopathic Oncologists and Integrative Medical docs… who have a more wholisitc view. Wouldn't be where I am now without them. Then, there is the internet which has gleaned so much and then these groups of patients sharing with each other. Wishing you the best for your son. ALoha, Ann
http://mcpharmacol.com/index.php/Journals/article/viewFile/190/179
http://www.hindawi.com/journals/bmri/2013/658126/
http://www.thetcr.org/article/view/2091/html
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- September 23, 2014 at 12:07 am
Hi,
Below ar some links which speak about Immune response and radiation. It is a new area of study, but it makes sense from what I learned while doing hyperthermia. I couldn't find the one that talks about an actual clinical trial… I'll send it along if I can find it.I just did the Tomotherapy high dose radiation after a surgery into my Lumbar area. It was to deep an area to get all of the tumor so thats why I did it. The high dose (for me 3 treatmenrs,15 Gy each) are apparently so different than traditional radiation , and, for Melanoma more useful. The first time I had surgery in left axilla, 2 years ago, I did a 6 week protocol of hyperthermia to "clean up" the area. The docs suggested radiation (SOC) but I did not want to do it. I have had no re-occurance in that area. And, no side effects. If you would like to contact me off the group post please do, [email protected]. For what it's worth, I have grown to appreciate all of my docs… the Onco, surgeon, radiologist , but it is amazingh how much they don't know. It is so important to question, research and look beyond Standard of care (SOC) … Then, there are the Naturopathic Oncologists and Integrative Medical docs… who have a more wholisitc view. Wouldn't be where I am now without them. Then, there is the internet which has gleaned so much and then these groups of patients sharing with each other. Wishing you the best for your son. ALoha, Ann
http://mcpharmacol.com/index.php/Journals/article/viewFile/190/179
http://www.hindawi.com/journals/bmri/2013/658126/
http://www.thetcr.org/article/view/2091/html
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- September 23, 2014 at 1:09 am
Thank you for all the information!
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- September 23, 2014 at 1:09 am
Thank you for all the information!
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- September 23, 2014 at 1:09 am
Thank you for all the information!
-
- September 23, 2014 at 12:07 am
Hi,
Below ar some links which speak about Immune response and radiation. It is a new area of study, but it makes sense from what I learned while doing hyperthermia. I couldn't find the one that talks about an actual clinical trial… I'll send it along if I can find it.I just did the Tomotherapy high dose radiation after a surgery into my Lumbar area. It was to deep an area to get all of the tumor so thats why I did it. The high dose (for me 3 treatmenrs,15 Gy each) are apparently so different than traditional radiation , and, for Melanoma more useful. The first time I had surgery in left axilla, 2 years ago, I did a 6 week protocol of hyperthermia to "clean up" the area. The docs suggested radiation (SOC) but I did not want to do it. I have had no re-occurance in that area. And, no side effects. If you would like to contact me off the group post please do, [email protected]. For what it's worth, I have grown to appreciate all of my docs… the Onco, surgeon, radiologist , but it is amazingh how much they don't know. It is so important to question, research and look beyond Standard of care (SOC) … Then, there are the Naturopathic Oncologists and Integrative Medical docs… who have a more wholisitc view. Wouldn't be where I am now without them. Then, there is the internet which has gleaned so much and then these groups of patients sharing with each other. Wishing you the best for your son. ALoha, Ann
http://mcpharmacol.com/index.php/Journals/article/viewFile/190/179
http://www.hindawi.com/journals/bmri/2013/658126/
http://www.thetcr.org/article/view/2091/html
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- September 22, 2014 at 1:10 pm
My son is 27
he finished the 4 infusions of yervoy of the treatment phase -he is in a trial. Today he has surgery of neck lymph node -his third-. Last CT scan and PET showed it was compromised. After it he will continue with the maintainance yervoy phase every twelve weeks. The oncologist thinks his immune system maybe responding at a slower pace. The radiologist recommended radiation after surgery. We are hesitant given the risky side effects of radiation in the neck area. I wonder if you have a link to the study showing these results you mentioned in your post regarding radiation. I havent heard of it. Thank you, M
-
- September 22, 2014 at 1:10 pm
My son is 27
he finished the 4 infusions of yervoy of the treatment phase -he is in a trial. Today he has surgery of neck lymph node -his third-. Last CT scan and PET showed it was compromised. After it he will continue with the maintainance yervoy phase every twelve weeks. The oncologist thinks his immune system maybe responding at a slower pace. The radiologist recommended radiation after surgery. We are hesitant given the risky side effects of radiation in the neck area. I wonder if you have a link to the study showing these results you mentioned in your post regarding radiation. I havent heard of it. Thank you, M
-
- September 22, 2014 at 8:39 am
IBecause of the Tomotherapy I have been reading abut something called the "Abscopal" Effect. In essence,
when a tumor is treated with highdose radiation, sometimes the immune system responds with recognizing other tumor sites in the body and reducing them too. They say it's rare… but it makes so much sense from everything I've come to understand about this disease.
I've read some cases where , when a patient is on Yervoy and has the radiation treatment, this can happen more often as there are more immune cells … please forgive me, I don't remember if its NK or T-cells. Anyway, There are more cells activated in the immune system. There are even some trials going on. How is your son (what age?) responding to Yervoy? How is he doing? ALoha, Ann
-
- September 22, 2014 at 8:39 am
IBecause of the Tomotherapy I have been reading abut something called the "Abscopal" Effect. In essence,
when a tumor is treated with highdose radiation, sometimes the immune system responds with recognizing other tumor sites in the body and reducing them too. They say it's rare… but it makes so much sense from everything I've come to understand about this disease.
I've read some cases where , when a patient is on Yervoy and has the radiation treatment, this can happen more often as there are more immune cells … please forgive me, I don't remember if its NK or T-cells. Anyway, There are more cells activated in the immune system. There are even some trials going on. How is your son (what age?) responding to Yervoy? How is he doing? ALoha, Ann
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- September 21, 2014 at 2:20 pm
Yes, it looks as burzinsky clinic had some good results with brain related tumors. I wonder how was your experience in BC ?
-
- September 21, 2014 at 2:20 pm
Yes, it looks as burzinsky clinic had some good results with brain related tumors. I wonder how was your experience in BC ?
-
- September 21, 2014 at 9:22 am
Hello Tim,
I checked into Burzinskis clinic during my research into what to do (Met/Mel… They never did stage it because it's a reocurrance after 20 years… somewhere in the St3-4 range.) Anyway, Burzinskis clinic has great success (although controversial) with some cancers but Melanoma was not one of them., The expense was high (yes, cash with a commitment of many months.) I don't remember the details but they will give them to you with a call.
I ended up going to the Integrated Health Clinic in B.C. for hyperthermia protocol.
LOL, Ann
-
- September 21, 2014 at 9:22 am
Hello Tim,
I checked into Burzinskis clinic during my research into what to do (Met/Mel… They never did stage it because it's a reocurrance after 20 years… somewhere in the St3-4 range.) Anyway, Burzinskis clinic has great success (although controversial) with some cancers but Melanoma was not one of them., The expense was high (yes, cash with a commitment of many months.) I don't remember the details but they will give them to you with a call.
I ended up going to the Integrated Health Clinic in B.C. for hyperthermia protocol.
LOL, Ann
-
- September 19, 2014 at 6:05 pm
I have spoken with a half-dozen experts about his approach and they are all highly skeptical.
For every serious illness you will find people at the fringes. Determining if they are visionary or deluded or predatory can be challenging. I generally ask the following questions:
–do they share their approach openly with other investigators and publish in peer-reviewed journals?
–can their results be replicated by another, independent institution that is credible and well-established?
–do they only work on a cash basis?
If their data is not shared, if no-one can reproduce their data, and if they are cash only I become quite suspicious.
Tim–MRF
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- September 19, 2014 at 6:05 pm
I have spoken with a half-dozen experts about his approach and they are all highly skeptical.
For every serious illness you will find people at the fringes. Determining if they are visionary or deluded or predatory can be challenging. I generally ask the following questions:
–do they share their approach openly with other investigators and publish in peer-reviewed journals?
–can their results be replicated by another, independent institution that is credible and well-established?
–do they only work on a cash basis?
If their data is not shared, if no-one can reproduce their data, and if they are cash only I become quite suspicious.
Tim–MRF
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