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Dr. Burzinsky’s treatment. Question

Forums General Melanoma Community Dr. Burzinsky’s treatment. Question

  • Post
    Sheepsandcows
    Participant

      I have been looking at some links and a documentary about the use of a drug he developed privately. My search started as i was looking for research and studies on the use of cannabis for melanoma. Does anyone heard about Dr Burzinsky's Clinic in Texas? There is so much debate about his approach and some conspiracy theories attached to it that it is hard to come to a sane conclusion. My son is receiving IPI and is in stage 3C, so I keep looking for alternative treatment should we find ourselves in that place. Dr Burzinsky seems to have had some success (25%) success with cancer patients with brain tumors who do not want to take the path of radiation for many good reasons. Thank you for your help and time.

    Viewing 2 reply threads
    • Replies
        Tim–MRF
        Guest

          I have spoken with a half-dozen experts about his approach and they are all highly skeptical. 

          For every serious illness you will find people at the fringes. Determining if they are visionary or deluded or predatory can be challenging. I generally ask the following questions:

          –do they share their approach openly with other investigators and publish in peer-reviewed journals?

          –can their results be replicated by another, independent institution that is credible and well-established?

          –do they only work on a cash basis?

          If their data is not shared, if no-one can reproduce their data, and if they are cash only I become quite suspicious.

          Tim–MRF

           

            Sheepsandcows
            Participant

              Thank you for your reply. I've learnt watching a documentary that some studies were done at NIH or equivalent (dont remember now) using the drugs he developed but at a different dose to the protocol Dr Burzinky created in the midst of intense political patent battles. Anyway, it is a grey area. I understand. 

              Sheepsandcows
              Participant

                Thank you for your reply. I've learnt watching a documentary that some studies were done at NIH or equivalent (dont remember now) using the drugs he developed but at a different dose to the protocol Dr Burzinky created in the midst of intense political patent battles. Anyway, it is a grey area. I understand. 

                Sheepsandcows
                Participant

                  Thank you for your reply. I've learnt watching a documentary that some studies were done at NIH or equivalent (dont remember now) using the drugs he developed but at a different dose to the protocol Dr Burzinky created in the midst of intense political patent battles. Anyway, it is a grey area. I understand. 

                  Annalive
                  Participant

                    Hello Tim,

                    I checked into Burzinskis clinic during my research into what to do (Met/Mel… They never did stage it because it's a reocurrance after 20 years…  somewhere in the St3-4 range.)  Anyway, Burzinskis clinic has great  success (although controversial) with some cancers but Melanoma was not one of them.,  The expense was high (yes, cash with a commitment of many months.)  I don't remember the details but they will give them to you with a call.

                    I ended up going to the Integrated Health Clinic in B.C. for hyperthermia protocol.  

                     

                    LOL, Ann

                    Sheepsandcows
                    Participant

                      Yes, it looks as burzinsky clinic had some good results with brain related tumors. I wonder how was your experience in BC ? 

                      Annalive
                      Participant

                        For me, Integrated Health Clinic in B.C. was a bright light in the often scary world of Oncology.  At the time I was so greatful to find a treatment that supported my immune system rather than to harm it.  It's a long story… 3 years at it now with Met/mel.  As far as I know, they are the only place in NorthAmerica to do WHole body hyperthermia.  Rx was 3x local hyyperthermia per week and 1 whole body per week for 6 weeks.  Also, took Iscador Pini Mistletoe, IV Vit C or Alpha Lipoic Acid, many nuritional supplements , 4 lowdose pharmecuticals known as "metronomic" therpay.  Celebrex, Metformin, Cemitidine and Tamoxifin (Melanoma being estrogen sensitive.)  Many dietary protocols as well.  I've done this 6 week protocol 3 times now. First time  5cm tumor shrank 30% … based on PET/CT scans) I have had 2 surgeries and most recently Steritactic Tomotherapy (3 Rx, 15 Gy each), post last surgery.  This disease takes us on a journey.  There is no one right way to go… At this point I live with it…  LOL, Ann

                        Squash
                        Participant

                          Interesting story.

                          I have done whole body and localised hyperthermia in Germany and also take cimitidine which i believe is an  histamine blocker, mistletoe, and various other supplements. I am going back next week for another round of treatment. I wont do radiation or any other treatment apart from surgery. My onocologist warned me not to do radiation as it is his opinion that it can spread the melanoma to other parts of the body. Not sure what other people think of that.

                          What do you mean by melanoma being estrogen sensitive?

                           

                          Squash
                          Participant

                            Interesting story.

                            I have done whole body and localised hyperthermia in Germany and also take cimitidine which i believe is an  histamine blocker, mistletoe, and various other supplements. I am going back next week for another round of treatment. I wont do radiation or any other treatment apart from surgery. My onocologist warned me not to do radiation as it is his opinion that it can spread the melanoma to other parts of the body. Not sure what other people think of that.

                            What do you mean by melanoma being estrogen sensitive?

                             

                            Squash
                            Participant

                              Interesting story.

                              I have done whole body and localised hyperthermia in Germany and also take cimitidine which i believe is an  histamine blocker, mistletoe, and various other supplements. I am going back next week for another round of treatment. I wont do radiation or any other treatment apart from surgery. My onocologist warned me not to do radiation as it is his opinion that it can spread the melanoma to other parts of the body. Not sure what other people think of that.

                              What do you mean by melanoma being estrogen sensitive?

                               

                              Annalive
                              Participant

                                For me, Integrated Health Clinic in B.C. was a bright light in the often scary world of Oncology.  At the time I was so greatful to find a treatment that supported my immune system rather than to harm it.  It's a long story… 3 years at it now with Met/mel.  As far as I know, they are the only place in NorthAmerica to do WHole body hyperthermia.  Rx was 3x local hyyperthermia per week and 1 whole body per week for 6 weeks.  Also, took Iscador Pini Mistletoe, IV Vit C or Alpha Lipoic Acid, many nuritional supplements , 4 lowdose pharmecuticals known as "metronomic" therpay.  Celebrex, Metformin, Cemitidine and Tamoxifin (Melanoma being estrogen sensitive.)  Many dietary protocols as well.  I've done this 6 week protocol 3 times now. First time  5cm tumor shrank 30% … based on PET/CT scans) I have had 2 surgeries and most recently Steritactic Tomotherapy (3 Rx, 15 Gy each), post last surgery.  This disease takes us on a journey.  There is no one right way to go… At this point I live with it…  LOL, Ann

                                Annalive
                                Participant

                                  For me, Integrated Health Clinic in B.C. was a bright light in the often scary world of Oncology.  At the time I was so greatful to find a treatment that supported my immune system rather than to harm it.  It's a long story… 3 years at it now with Met/mel.  As far as I know, they are the only place in NorthAmerica to do WHole body hyperthermia.  Rx was 3x local hyyperthermia per week and 1 whole body per week for 6 weeks.  Also, took Iscador Pini Mistletoe, IV Vit C or Alpha Lipoic Acid, many nuritional supplements , 4 lowdose pharmecuticals known as "metronomic" therpay.  Celebrex, Metformin, Cemitidine and Tamoxifin (Melanoma being estrogen sensitive.)  Many dietary protocols as well.  I've done this 6 week protocol 3 times now. First time  5cm tumor shrank 30% … based on PET/CT scans) I have had 2 surgeries and most recently Steritactic Tomotherapy (3 Rx, 15 Gy each), post last surgery.  This disease takes us on a journey.  There is no one right way to go… At this point I live with it…  LOL, Ann

                                  Annalive
                                  Participant

                                    IBecause of the Tomotherapy I have been reading abut something called the "Abscopal" Effect.  In essence,

                                    when a tumor is treated with highdose radiation, sometimes the immune system responds with recognizing other tumor sites in the body and reducing them too.  They say it's rare… but it makes so much sense from everything I've come to understand about this disease.  

                                    I've read some cases where , when a patient is on Yervoy and has the radiation treatment, this can happen more often as there are more immune cells … please forgive me, I don't remember if its NK or T-cells.  Anyway, There are more cells activated in the immune system.  There are even some trials going on.   How is your son (what age?) responding to Yervoy?  How is he doing?  ALoha, Ann

                                    Sheepsandcows
                                    Participant

                                      My son is 27

                                      he finished the 4 infusions of yervoy of the treatment phase -he is in a trial. Today he has surgery of neck lymph node -his third-. Last CT scan and PET showed it was compromised. After it he will continue with the maintainance yervoy phase every twelve weeks. The oncologist thinks his immune system maybe responding at a slower pace. The radiologist recommended radiation after surgery. We are hesitant given the risky side effects of radiation in the neck area. I wonder if you have a link to the study showing these results you mentioned in your post regarding radiation. I havent heard of it. Thank you, M

                                      Annalive
                                      Participant

                                        Hi,

                                        Below ar some links which speak about Immune response and radiation.   It is a new area of study, but it makes sense from what I learned while doing hyperthermia.  I couldn't find the one that talks about an actual clinical trial… I'll send it along if I can find it.I just did the Tomotherapy high dose radiation after a surgery  into my Lumbar area.  It was to deep an area to get all of the tumor so thats why  I did it. The high dose (for me 3 treatmenrs,15 Gy each) are apparently so different than traditional radiation , and, for Melanoma more useful.  The first time I had surgery in left axilla, 2 years ago, I did a 6 week protocol of hyperthermia to "clean up" the area.  The docs suggested radiation (SOC) but I did not want to do it.  I have had no re-occurance in that area. And, no side effects.  If you would like to contact me off the group post please do,  [email protected].  For what it's worth, I have grown to appreciate all of my docs… the Onco, surgeon, radiologist , but it is amazingh how much they don't know.  It is so important to question, research and look beyond Standard of care (SOC) … Then, there are the Naturopathic Oncologists and Integrative Medical docs… who have a more wholisitc view.  Wouldn't be where I am now without them.  Then, there is the internet which has gleaned so much and then these groups of patients sharing with each other.  Wishing you the best for your son.    ALoha, Ann

                                         

                                        http://mcpharmacol.com/index.php/Journals/article/viewFile/190/179

                                        http://www.hindawi.com/journals/bmri/2013/658126/

                                        http://www.thetcr.org/article/view/2091/html

                                        http://www.nejm.org/doi/full/10.1056/NEJMc1203984

                                        http://cancerimmunolres.aacrjournals.org/content/2/9/831.full?ijkey=FR7okPG3V49mU&keytype=ref&siteid=aacrjnls

                                        Annalive
                                        Participant

                                          Hi,

                                          Below ar some links which speak about Immune response and radiation.   It is a new area of study, but it makes sense from what I learned while doing hyperthermia.  I couldn't find the one that talks about an actual clinical trial… I'll send it along if I can find it.I just did the Tomotherapy high dose radiation after a surgery  into my Lumbar area.  It was to deep an area to get all of the tumor so thats why  I did it. The high dose (for me 3 treatmenrs,15 Gy each) are apparently so different than traditional radiation , and, for Melanoma more useful.  The first time I had surgery in left axilla, 2 years ago, I did a 6 week protocol of hyperthermia to "clean up" the area.  The docs suggested radiation (SOC) but I did not want to do it.  I have had no re-occurance in that area. And, no side effects.  If you would like to contact me off the group post please do,  [email protected].  For what it's worth, I have grown to appreciate all of my docs… the Onco, surgeon, radiologist , but it is amazingh how much they don't know.  It is so important to question, research and look beyond Standard of care (SOC) … Then, there are the Naturopathic Oncologists and Integrative Medical docs… who have a more wholisitc view.  Wouldn't be where I am now without them.  Then, there is the internet which has gleaned so much and then these groups of patients sharing with each other.  Wishing you the best for your son.    ALoha, Ann

                                           

                                          http://mcpharmacol.com/index.php/Journals/article/viewFile/190/179

                                          http://www.hindawi.com/journals/bmri/2013/658126/

                                          http://www.thetcr.org/article/view/2091/html

                                          http://www.nejm.org/doi/full/10.1056/NEJMc1203984

                                          http://cancerimmunolres.aacrjournals.org/content/2/9/831.full?ijkey=FR7okPG3V49mU&keytype=ref&siteid=aacrjnls

                                          Sheepsandcows
                                          Participant

                                            Thank you for all the information!

                                            Sheepsandcows
                                            Participant

                                              Thank you for all the information!

                                              Sheepsandcows
                                              Participant

                                                Thank you for all the information!

                                                Annalive
                                                Participant

                                                  Hi,

                                                  Below ar some links which speak about Immune response and radiation.   It is a new area of study, but it makes sense from what I learned while doing hyperthermia.  I couldn't find the one that talks about an actual clinical trial… I'll send it along if I can find it.I just did the Tomotherapy high dose radiation after a surgery  into my Lumbar area.  It was to deep an area to get all of the tumor so thats why  I did it. The high dose (for me 3 treatmenrs,15 Gy each) are apparently so different than traditional radiation , and, for Melanoma more useful.  The first time I had surgery in left axilla, 2 years ago, I did a 6 week protocol of hyperthermia to "clean up" the area.  The docs suggested radiation (SOC) but I did not want to do it.  I have had no re-occurance in that area. And, no side effects.  If you would like to contact me off the group post please do,  [email protected].  For what it's worth, I have grown to appreciate all of my docs… the Onco, surgeon, radiologist , but it is amazingh how much they don't know.  It is so important to question, research and look beyond Standard of care (SOC) … Then, there are the Naturopathic Oncologists and Integrative Medical docs… who have a more wholisitc view.  Wouldn't be where I am now without them.  Then, there is the internet which has gleaned so much and then these groups of patients sharing with each other.  Wishing you the best for your son.    ALoha, Ann

                                                   

                                                  http://mcpharmacol.com/index.php/Journals/article/viewFile/190/179

                                                  http://www.hindawi.com/journals/bmri/2013/658126/

                                                  http://www.thetcr.org/article/view/2091/html

                                                  http://www.nejm.org/doi/full/10.1056/NEJMc1203984

                                                  http://cancerimmunolres.aacrjournals.org/content/2/9/831.full?ijkey=FR7okPG3V49mU&keytype=ref&siteid=aacrjnls

                                                  Sheepsandcows
                                                  Participant

                                                    My son is 27

                                                    he finished the 4 infusions of yervoy of the treatment phase -he is in a trial. Today he has surgery of neck lymph node -his third-. Last CT scan and PET showed it was compromised. After it he will continue with the maintainance yervoy phase every twelve weeks. The oncologist thinks his immune system maybe responding at a slower pace. The radiologist recommended radiation after surgery. We are hesitant given the risky side effects of radiation in the neck area. I wonder if you have a link to the study showing these results you mentioned in your post regarding radiation. I havent heard of it. Thank you, M

                                                    Sheepsandcows
                                                    Participant

                                                      My son is 27

                                                      he finished the 4 infusions of yervoy of the treatment phase -he is in a trial. Today he has surgery of neck lymph node -his third-. Last CT scan and PET showed it was compromised. After it he will continue with the maintainance yervoy phase every twelve weeks. The oncologist thinks his immune system maybe responding at a slower pace. The radiologist recommended radiation after surgery. We are hesitant given the risky side effects of radiation in the neck area. I wonder if you have a link to the study showing these results you mentioned in your post regarding radiation. I havent heard of it. Thank you, M

                                                      Annalive
                                                      Participant

                                                        IBecause of the Tomotherapy I have been reading abut something called the "Abscopal" Effect.  In essence,

                                                        when a tumor is treated with highdose radiation, sometimes the immune system responds with recognizing other tumor sites in the body and reducing them too.  They say it's rare… but it makes so much sense from everything I've come to understand about this disease.  

                                                        I've read some cases where , when a patient is on Yervoy and has the radiation treatment, this can happen more often as there are more immune cells … please forgive me, I don't remember if its NK or T-cells.  Anyway, There are more cells activated in the immune system.  There are even some trials going on.   How is your son (what age?) responding to Yervoy?  How is he doing?  ALoha, Ann

                                                        Annalive
                                                        Participant

                                                          IBecause of the Tomotherapy I have been reading abut something called the "Abscopal" Effect.  In essence,

                                                          when a tumor is treated with highdose radiation, sometimes the immune system responds with recognizing other tumor sites in the body and reducing them too.  They say it's rare… but it makes so much sense from everything I've come to understand about this disease.  

                                                          I've read some cases where , when a patient is on Yervoy and has the radiation treatment, this can happen more often as there are more immune cells … please forgive me, I don't remember if its NK or T-cells.  Anyway, There are more cells activated in the immune system.  There are even some trials going on.   How is your son (what age?) responding to Yervoy?  How is he doing?  ALoha, Ann

                                                          Sheepsandcows
                                                          Participant

                                                            Yes, it looks as burzinsky clinic had some good results with brain related tumors. I wonder how was your experience in BC ? 

                                                            Sheepsandcows
                                                            Participant

                                                              Yes, it looks as burzinsky clinic had some good results with brain related tumors. I wonder how was your experience in BC ? 

                                                              Annalive
                                                              Participant

                                                                Hello Tim,

                                                                I checked into Burzinskis clinic during my research into what to do (Met/Mel… They never did stage it because it's a reocurrance after 20 years…  somewhere in the St3-4 range.)  Anyway, Burzinskis clinic has great  success (although controversial) with some cancers but Melanoma was not one of them.,  The expense was high (yes, cash with a commitment of many months.)  I don't remember the details but they will give them to you with a call.

                                                                I ended up going to the Integrated Health Clinic in B.C. for hyperthermia protocol.  

                                                                 

                                                                LOL, Ann

                                                                Annalive
                                                                Participant

                                                                  Hello Tim,

                                                                  I checked into Burzinskis clinic during my research into what to do (Met/Mel… They never did stage it because it's a reocurrance after 20 years…  somewhere in the St3-4 range.)  Anyway, Burzinskis clinic has great  success (although controversial) with some cancers but Melanoma was not one of them.,  The expense was high (yes, cash with a commitment of many months.)  I don't remember the details but they will give them to you with a call.

                                                                  I ended up going to the Integrated Health Clinic in B.C. for hyperthermia protocol.  

                                                                   

                                                                  LOL, Ann

                                                                Tim–MRF
                                                                Guest

                                                                  I have spoken with a half-dozen experts about his approach and they are all highly skeptical. 

                                                                  For every serious illness you will find people at the fringes. Determining if they are visionary or deluded or predatory can be challenging. I generally ask the following questions:

                                                                  –do they share their approach openly with other investigators and publish in peer-reviewed journals?

                                                                  –can their results be replicated by another, independent institution that is credible and well-established?

                                                                  –do they only work on a cash basis?

                                                                  If their data is not shared, if no-one can reproduce their data, and if they are cash only I become quite suspicious.

                                                                  Tim–MRF

                                                                   

                                                                  Tim–MRF
                                                                  Guest

                                                                    I have spoken with a half-dozen experts about his approach and they are all highly skeptical. 

                                                                    For every serious illness you will find people at the fringes. Determining if they are visionary or deluded or predatory can be challenging. I generally ask the following questions:

                                                                    –do they share their approach openly with other investigators and publish in peer-reviewed journals?

                                                                    –can their results be replicated by another, independent institution that is credible and well-established?

                                                                    –do they only work on a cash basis?

                                                                    If their data is not shared, if no-one can reproduce their data, and if they are cash only I become quite suspicious.

                                                                    Tim–MRF

                                                                     

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