MRF-Logo2019-Horizontal-RGB
Early Christmas present
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Early Christmas present

› Forums › General Melanoma Community › Early Christmas present

  • Post
    • December 4, 2012 at 9:05 pm
    Randy437
    Participant

      My scans yesterday were negative – NED for 3 years now after having mets surgically removed from brain, each lung and small inestine.  I also learned that there is a newer genetic test for the BRAF mutation..  Some people (I don't believe it's many) who previously tested negative are testing positive with the new test.

      My scans yesterday were negative – NED for 3 years now after having mets surgically removed from brain, each lung and small inestine.  I also learned that there is a newer genetic test for the BRAF mutation..  Some people (I don't believe it's many) who previously tested negative are testing positive with the new test.

    Viewing 38 reply threads
    • Replies
        • December 4, 2012 at 10:35 pm
        POW
        Participant

          Thank you for sharing your good news! I'm so happy for you! And thanks for sharing the info about the new BRAF test, too.

          • December 4, 2012 at 10:35 pm
          POW
          Participant

            Thank you for sharing your good news! I'm so happy for you! And thanks for sharing the info about the new BRAF test, too.

            • December 4, 2012 at 10:35 pm
            POW
            Participant

              Thank you for sharing your good news! I'm so happy for you! And thanks for sharing the info about the new BRAF test, too.

              • December 4, 2012 at 10:54 pm
              audgator
              Participant

                Good news indeed, Randy. I'm not there yet, but I'm getting there.   Dan

                • December 4, 2012 at 10:54 pm
                audgator
                Participant

                  Good news indeed, Randy. I'm not there yet, but I'm getting there.   Dan

                  • December 4, 2012 at 10:54 pm
                  audgator
                  Participant

                    Good news indeed, Randy. I'm not there yet, but I'm getting there.   Dan

                    • December 4, 2012 at 11:02 pm
                    DeniseK
                    Participant

                      Definately an early Christmas Present!  I am so happy for you!  Hopefully I will be posting a similiar message in 3 years!

                      MERRY CHRISTMAS!! 

                      Best wishes,

                      Denise

                      • December 4, 2012 at 11:02 pm
                      DeniseK
                      Participant

                        Definately an early Christmas Present!  I am so happy for you!  Hopefully I will be posting a similiar message in 3 years!

                        MERRY CHRISTMAS!! 

                        Best wishes,

                        Denise

                        • December 4, 2012 at 11:02 pm
                        DeniseK
                        Participant

                          Definately an early Christmas Present!  I am so happy for you!  Hopefully I will be posting a similiar message in 3 years!

                          MERRY CHRISTMAS!! 

                          Best wishes,

                          Denise

                          • December 4, 2012 at 11:49 pm
                          Jewel
                          Participant

                            That is wonderful news!!! May I ask what vaccine you were on?

                             

                            Thank you,

                            Jewel

                              • December 5, 2012 at 1:16 am
                              Randy437
                              Participant

                                I don't know.  I was in a trail (Mel 47) at the Univ of Virginia.

                                • December 5, 2012 at 1:16 am
                                Randy437
                                Participant

                                  I don't know.  I was in a trail (Mel 47) at the Univ of Virginia.

                                  • December 5, 2012 at 1:16 am
                                  Randy437
                                  Participant

                                    I don't know.  I was in a trail (Mel 47) at the Univ of Virginia.

                                  • December 4, 2012 at 11:49 pm
                                  Jewel
                                  Participant

                                    That is wonderful news!!! May I ask what vaccine you were on?

                                     

                                    Thank you,

                                    Jewel

                                    • December 4, 2012 at 11:49 pm
                                    Jewel
                                    Participant

                                      That is wonderful news!!! May I ask what vaccine you were on?

                                       

                                      Thank you,

                                      Jewel

                                      • December 5, 2012 at 10:33 am
                                      triciad
                                      Participant

                                        Thanks for sharing this wonderful news…an early holiday present for all of us!  Best of luck for continued good health!

                                        • December 5, 2012 at 10:33 am
                                        triciad
                                        Participant

                                          Thanks for sharing this wonderful news…an early holiday present for all of us!  Best of luck for continued good health!

                                          • December 5, 2012 at 10:33 am
                                          triciad
                                          Participant

                                            Thanks for sharing this wonderful news…an early holiday present for all of us!  Best of luck for continued good health!

                                            • December 5, 2012 at 12:10 pm
                                            rosa1
                                            Participant

                                              That's wonderful news, love to hear stories like this.  Keep going and be blessed!

                                              Rosa

                                              • December 5, 2012 at 12:10 pm
                                              rosa1
                                              Participant

                                                That's wonderful news, love to hear stories like this.  Keep going and be blessed!

                                                Rosa

                                                  • December 6, 2012 at 2:21 am
                                                  Snickers60
                                                  Participant

                                                    WAY TO GO !!!!   We ALL needed to hear this…..so badly !     Hope it keeps on working forever for you !   Thank you for sharing your really good news.   Funny how happy you can be for someone you've never met and do not know at all.     YES !!!!!!!  🙂

                                                    BIG HIGH 5's from Nancy and Wayne and ( 3 X warrior) 

                                                    • December 6, 2012 at 2:21 am
                                                    Snickers60
                                                    Participant

                                                      WAY TO GO !!!!   We ALL needed to hear this…..so badly !     Hope it keeps on working forever for you !   Thank you for sharing your really good news.   Funny how happy you can be for someone you've never met and do not know at all.     YES !!!!!!!  🙂

                                                      BIG HIGH 5's from Nancy and Wayne and ( 3 X warrior) 

                                                      • December 6, 2012 at 2:21 am
                                                      Snickers60
                                                      Participant

                                                        WAY TO GO !!!!   We ALL needed to hear this…..so badly !     Hope it keeps on working forever for you !   Thank you for sharing your really good news.   Funny how happy you can be for someone you've never met and do not know at all.     YES !!!!!!!  🙂

                                                        BIG HIGH 5's from Nancy and Wayne and ( 3 X warrior) 

                                                      • December 5, 2012 at 12:10 pm
                                                      rosa1
                                                      Participant

                                                        That's wonderful news, love to hear stories like this.  Keep going and be blessed!

                                                        Rosa

                                                        • December 6, 2012 at 4:31 pm
                                                        JoshF
                                                        Participant

                                                          SIMPLY AWESOME!!! WISHING YOU MANY MORE!!!!

                                                           

                                                          Josh

                                                          • December 6, 2012 at 4:31 pm
                                                          JoshF
                                                          Participant

                                                            SIMPLY AWESOME!!! WISHING YOU MANY MORE!!!!

                                                             

                                                            Josh

                                                            • December 6, 2012 at 4:31 pm
                                                            JoshF
                                                            Participant

                                                              SIMPLY AWESOME!!! WISHING YOU MANY MORE!!!!

                                                               

                                                              Josh

                                                              • December 6, 2012 at 4:31 pm
                                                              JoshF
                                                              Participant

                                                                SIMPLY AWESOME!!! WISHING YOU MANY MORE!!!!

                                                                 

                                                                Josh

                                                                • December 6, 2012 at 4:31 pm
                                                                JoshF
                                                                Participant

                                                                  SIMPLY AWESOME!!! WISHING YOU MANY MORE!!!!

                                                                   

                                                                  Josh

                                                                  • December 6, 2012 at 4:31 pm
                                                                  JoshF
                                                                  Participant

                                                                    SIMPLY AWESOME!!! WISHING YOU MANY MORE!!!!

                                                                     

                                                                    Josh

                                                                    • December 6, 2012 at 6:38 pm
                                                                    TSchulz
                                                                    Participant

                                                                      Congratulations to you! Fantastic news.

                                                                      All the best, Troy

                                                                      • December 6, 2012 at 6:38 pm
                                                                      TSchulz
                                                                      Participant

                                                                        Congratulations to you! Fantastic news.

                                                                        All the best, Troy

                                                                        • December 6, 2012 at 6:38 pm
                                                                        TSchulz
                                                                        Participant

                                                                          Congratulations to you! Fantastic news.

                                                                          All the best, Troy

                                                                          • December 6, 2012 at 6:51 pm
                                                                          madeclaire
                                                                          Participant

                                                                            So happy for you Josh,  wishing you a happy holiday season and many more to come

                                                                            • December 6, 2012 at 6:51 pm
                                                                            madeclaire
                                                                            Participant

                                                                              So happy for you Josh,  wishing you a happy holiday season and many more to come

                                                                              • December 6, 2012 at 6:51 pm
                                                                              madeclaire
                                                                              Participant

                                                                                So happy for you Josh,  wishing you a happy holiday season and many more to come

                                                                                • December 7, 2012 at 3:24 pm
                                                                                Tina D
                                                                                Participant

                                                                                  Awesome news! And a Merry Christmas for you and your family!!!!     🙂

                                                                                  Tina

                                                                                  • December 7, 2012 at 3:24 pm
                                                                                  Tina D
                                                                                  Participant

                                                                                    Awesome news! And a Merry Christmas for you and your family!!!!     🙂

                                                                                    Tina

                                                                                    • December 7, 2012 at 3:24 pm
                                                                                    Tina D
                                                                                    Participant

                                                                                      Awesome news! And a Merry Christmas for you and your family!!!!     🙂

                                                                                      Tina

                                                                                      • December 7, 2012 at 3:55 pm
                                                                                      Tracy Chicago
                                                                                      Participant

                                                                                        Congratulations! Your post made me smile! So happy for you!

                                                                                        • December 7, 2012 at 3:55 pm
                                                                                        Tracy Chicago
                                                                                        Participant

                                                                                          Congratulations! Your post made me smile! So happy for you!

                                                                                            • December 8, 2012 at 11:44 pm
                                                                                            NYKaren
                                                                                            Participant
                                                                                              Hi Randy,
                                                                                              So happy to hear your great news.
                                                                                              Thanks for the info on BRAF testing. I had heard something similar previously, so I just had my derm @ Sloan biopsy one of my mets.
                                                                                              Hey, ya never know.
                                                                                              All the best,
                                                                                              Karen
                                                                                              • December 8, 2012 at 11:44 pm
                                                                                              NYKaren
                                                                                              Participant
                                                                                                Hi Randy,
                                                                                                So happy to hear your great news.
                                                                                                Thanks for the info on BRAF testing. I had heard something similar previously, so I just had my derm @ Sloan biopsy one of my mets.
                                                                                                Hey, ya never know.
                                                                                                All the best,
                                                                                                Karen
                                                                                                • December 8, 2012 at 11:44 pm
                                                                                                NYKaren
                                                                                                Participant
                                                                                                  Hi Randy,
                                                                                                  So happy to hear your great news.
                                                                                                  Thanks for the info on BRAF testing. I had heard something similar previously, so I just had my derm @ Sloan biopsy one of my mets.
                                                                                                  Hey, ya never know.
                                                                                                  All the best,
                                                                                                  Karen
                                                                                                • December 7, 2012 at 3:55 pm
                                                                                                Tracy Chicago
                                                                                                Participant

                                                                                                  Congratulations! Your post made me smile! So happy for you!

                                                                                                  • December 9, 2012 at 8:37 pm
                                                                                                  Richard_K
                                                                                                  Participant

                                                                                                    Yes! Merry Christmas with a big bow!

                                                                                                    Dick

                                                                                                    • December 9, 2012 at 8:37 pm
                                                                                                    Richard_K
                                                                                                    Participant

                                                                                                      Yes! Merry Christmas with a big bow!

                                                                                                      Dick

                                                                                                      • December 9, 2012 at 8:37 pm
                                                                                                      Richard_K
                                                                                                      Participant

                                                                                                        Yes! Merry Christmas with a big bow!

                                                                                                        Dick

                                                                                                    Viewing 38 reply threads
                                                                                                    • You must be logged in to reply to this topic.
                                                                                                    About the MRF Patient Forum

                                                                                                    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                                                    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                                                    Popular Topics