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ER AFTER IMMUNOTHERAPY

› Forums › General Melanoma Community › ER AFTER IMMUNOTHERAPY

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    • April 27, 2018 at 2:20 pm
    Holliesig
    Participant

      My dad (stage iv melanoma with 6 brain Mets) was tapered off steroids two weeks ago and stopped taking the taf/dab so he could switch back to immunotherapy. Originally treated with SRS and one round of immunotherapy and then hospitalized for swelling. After a few months of steroids and chemo we were so thankful to be transitioning back to yervoy/opdivo. He had his infusion yesterday and fell this morning, severe tremors in his head (moving back and forth), and can’t move his left arm very much. He’s getting a CT scan right now but on mri 3 weeks ago the tumors had shrunk and no progressions. We are scared and just looking for insight. Has anyone else had these same struggles? 

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        • April 28, 2018 at 6:05 am
        Lddaughter
        Participant

          Hey there,

          I am taking care of my mom the same as you are you dad right now. I think they should be checking the pituitary gland or an MRI to see if and thing is going on with that. 

          Backstory, my mom was diagnosed Jan 2017, so a little over a year ago. She was incredibly sick with tumors on her kidney, adrenal gland, and infested in her liver. After almost a year on the TAF/Mek combo her tumors had shrunk by over half! In Jan 208 she moved to immunotherapy (combo). After just 3 treatments she was hospitalized for low sodium. After each infusion she was on steroids to combat the side effects. That caused fatigue and weakness. After her 3rd she ended up with migraines and had to have an MRI which showed she had 3 tiny tiny brain Mets. She actually had SRS yesterday and today was good overall. 

          The other thing the MRI showed was an inflamed pituitary gland seemed to be the issue for the migraines, not even the Mets. Hopefully they find out what is the issue soon! You are doing great. This forum is great so keep asking questions you want help for, everyone is great.?:)

          -Aubrey

            • April 28, 2018 at 6:44 pm
            Holliesig
            Participant

              Thanks Aubrey, the MRI yesterday showed that his tumors have spread all throughout the brain, they immediately started whole brain radiation but have told us that it’s the last ditch effort with hopes of buying 3-6 months. 🙁 crazy how fast melanoma spreads and changes so quickly. 

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