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Ezio’ shaving a hard time
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Ezio’ shaving a hard time

› Forums › General Melanoma Community › Ezio’ shaving a hard time

  • Post
    • October 3, 2018 at 4:00 am
    Elizabeth123
    Participant

      Hello family

      today we were going to receive our 7th infusion of pembro ,  and we have also had 2 doses of 1mg of ipi.  but when we got to the hospital Ezio ability to walk and his weekness was really bad.  The nurse called the doctor and they wanted to do a head ct to see if the brain was bleeding.  so no brain bleed but really bad swelling from all the brain mets.  We were already on 24 mg of dexamethasone. And it wasn't helping.  He also had a seizure while in the hospital.  They had admitted him to see what they can do.  But it doesn't look good. We are running out of options.   

      Looking for any advise or options.  Feeling really down ,  we really need a miracle.

      Elizabeth

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    • Replies
        • October 3, 2018 at 12:58 pm
        KellyH
        Participant

          Elizabeth, I am so sorry to hear this. Maybe now that he is admitted there will be something more they can do to alleviate the swelling and help Ezio get stronger. my prayers are with your husband and you of course. 

          Miracles do happen everyday.  Try to stay strong. I know easier said than done.  Xoxo 

          Kelly 

           

           

          • October 3, 2018 at 12:58 pm
          KellyH
          Participant

            Elizabeth, I am so sorry to hear this. Maybe now that he is admitted there will be something more they can do to alleviate the swelling and help Ezio get stronger. my prayers are with your husband and you of course. 

            Miracles do happen everyday.  Try to stay strong. I know easier said than done.  Xoxo 

            Kelly 

             

             

            • October 3, 2018 at 1:31 pm
            mandyjill
            Participant

              Praying for you and Ezio.

              • October 3, 2018 at 3:38 pm
              marta010
              Participant

                Thinking of you and Ezio and sending prayers.

                Ann

                • October 3, 2018 at 5:41 pm
                MelanomaMike
                Participant
                  Hi Elizabeth, oh no! No no no no! Okay, deep breath! Like our member here at MRF (forgot who said it) just said, now that Ezio’s admitted, they can be a bit more “hands on” with testing, scans bloodwork etc. Im VERY faithful for the Yervoy (ipi) to work for him, we know its to soon to visualy “see” its progress (via CT scan) but it can start working by “Shrinking” the tumor within days/weeks hopefully! And that may help with his poor brain activity (weekness, siezures etc.)..God bless him! Were rootin’ for Ezio! Pleeeeeease!
                    • October 4, 2018 at 2:27 am
                    Elizabeth123
                    Participant

                      Thank you Mike,   It doesn't look good right now. The MRI showed new mets and a bunch of the others gotten bigger.  There stopping all treatments and a wait and see if the ipi kicks in. 

                       

                       

                    • October 4, 2018 at 1:26 am
                    lkb
                    Participant

                      Elizabeth, this has got to be excruciating. Need a miracle? I'm wishng you one right this minute. Big hugs to you and Ezio.

                        • October 4, 2018 at 2:27 am
                        Elizabeth123
                        Participant

                          Needing a miracle right now

                          • October 6, 2018 at 3:49 pm
                          MelanomaMike
                          Participant
                            Hi Elizabeth, any “new” updates on Ezio? Pleeeeeeeeease let us know!! A few days have past now..COMON YERVOY! KICK IN WITH YER MIGHT! DESTROY EZIO’s BRAIN METS!…..
                            • October 6, 2018 at 7:38 pm
                            Elizabeth123
                            Participant

                              Hi Mike

                              Ezio is still the same.  Fades in and out of sleep. He is very restless at night. They say it’s the steroids.  He had another  siezure last night ,  the doctor says there’s still must be pressure on the brain.  We really need this to kick in and work.  Problem is he has over 50 brain mets.  

                               

                              But miracles and long shots do happen

                              praying every moment 

                               

                              elizabeth

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