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Finally-great scan news!!
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Finally-great scan news!!

› Forums › General Melanoma Community › Finally-great scan news!!

  • Post
    • January 7, 2014 at 1:02 pm
    Maureen038
    Participant

      My husband just had scans from the BMS CA209-004 study of 3mg/kg of yervoy and 1 mg/kg of nivolumbab. There is nothing new and his tumors have shrunk almost 50 percent!!! We are so thrilled, but we are still dealing with the side effect of hemolytic anemia after the third infusion. He has been on steroids for almost a month and while it's been tapered down from 100mg to 30 mg he can't get on the maintaince schedule of nivolumbab until his steroids are stopped. Yesterday, we were at UPMC with Dr. kirkwood and his glucose level went very high so they had to give him insulin twice. We are hoping to get all of this under control soon and he needs to see an endricologist now.

      i wanted to post this to give people hope. This is the third trial he has been on, so please don't give up. He had HD interferon and he had the ACT at NIH this summer. The ACT stopped the alarmingly quick growth of lung mets, but unfortunately a few mets kept growing a few mm. Each of the trials have taken a toll on his body though so he is eating very healthy foods, exercising and enjoying each day! You truly learn what is important in life. We wish everyone here the best!!

      Maureen

    Viewing 20 reply threads
    • Replies
        • January 7, 2014 at 4:57 pm
        Jahendry12
        Participant

          Great News Maureen – so glad to hear it.  I know how much anxiety there is when waiting for scan results….it's the worst.  When you get good news – celebrate and enjoy life!

          • January 7, 2014 at 4:57 pm
          Jahendry12
          Participant

            Great News Maureen – so glad to hear it.  I know how much anxiety there is when waiting for scan results….it's the worst.  When you get good news – celebrate and enjoy life!

            • January 7, 2014 at 4:57 pm
            Jahendry12
            Participant

              Great News Maureen – so glad to hear it.  I know how much anxiety there is when waiting for scan results….it's the worst.  When you get good news – celebrate and enjoy life!

              • January 7, 2014 at 9:49 pm
              BrianP
              Participant

                Great news Maureen.  Glad to see the combo is working for you all as well.  Hope the other items improve soon as well.  Sounds like you all are doing all the right things.

                Brian

                • January 7, 2014 at 9:49 pm
                BrianP
                Participant

                  Great news Maureen.  Glad to see the combo is working for you all as well.  Hope the other items improve soon as well.  Sounds like you all are doing all the right things.

                  Brian

                    • January 7, 2014 at 10:04 pm
                    Maureen038
                    Participant

                      Thanks Julie and Brian for your support!! The anxiety before scans is truly awful as everyone knows. We feel so thankful that this treatment showed such great results. We just hope he can resolve the side effects issues soon so he can start treatment again. I hope you are both doing well! Take care.

                      Maureen

                      • January 7, 2014 at 10:04 pm
                      Maureen038
                      Participant

                        Thanks Julie and Brian for your support!! The anxiety before scans is truly awful as everyone knows. We feel so thankful that this treatment showed such great results. We just hope he can resolve the side effects issues soon so he can start treatment again. I hope you are both doing well! Take care.

                        Maureen

                        • January 7, 2014 at 10:04 pm
                        Maureen038
                        Participant

                          Thanks Julie and Brian for your support!! The anxiety before scans is truly awful as everyone knows. We feel so thankful that this treatment showed such great results. We just hope he can resolve the side effects issues soon so he can start treatment again. I hope you are both doing well! Take care.

                          Maureen

                        • January 7, 2014 at 9:49 pm
                        BrianP
                        Participant

                          Great news Maureen.  Glad to see the combo is working for you all as well.  Hope the other items improve soon as well.  Sounds like you all are doing all the right things.

                          Brian

                          • January 7, 2014 at 10:31 pm
                          hbecker
                          Participant

                            Happy to hear your great news Maureen!

                            Best regards –

                            Hazel

                            • January 7, 2014 at 10:31 pm
                            hbecker
                            Participant

                              Happy to hear your great news Maureen!

                              Best regards –

                              Hazel

                              • January 7, 2014 at 10:31 pm
                              hbecker
                              Participant

                                Happy to hear your great news Maureen!

                                Best regards –

                                Hazel

                                  • January 8, 2014 at 6:54 pm
                                  Maureen038
                                  Participant

                                    Thanks Hazel! I'm so happy all is well with your husband.

                                    love,

                                    Maureen 

                                    • January 8, 2014 at 6:54 pm
                                    Maureen038
                                    Participant

                                      Thanks Hazel! I'm so happy all is well with your husband.

                                      love,

                                      Maureen 

                                      • January 8, 2014 at 6:54 pm
                                      Maureen038
                                      Participant

                                        Thanks Hazel! I'm so happy all is well with your husband.

                                        love,

                                        Maureen 

                                      • January 7, 2014 at 11:23 pm
                                      POW
                                      Participant

                                        Maureen, thank you for sharing Don's great results! You give all melanoma warriors reason to be hopeful. 

                                        In the 15 months since I joined MPIP, I have heard of more and more cases where patients have refused to quit after 2 or 3 or more treatments and finally– FINALLY– found something that worked for them. The depth and breadth of new melanoma treatments is, indeed, a whole new and unexplored world for us. Congratulatlons to you and Don for being the teriffic fighters that you are and "Thank you" for encouraging others to keep fighting. 

                                        • January 7, 2014 at 11:23 pm
                                        POW
                                        Participant

                                          Maureen, thank you for sharing Don's great results! You give all melanoma warriors reason to be hopeful. 

                                          In the 15 months since I joined MPIP, I have heard of more and more cases where patients have refused to quit after 2 or 3 or more treatments and finally– FINALLY– found something that worked for them. The depth and breadth of new melanoma treatments is, indeed, a whole new and unexplored world for us. Congratulatlons to you and Don for being the teriffic fighters that you are and "Thank you" for encouraging others to keep fighting. 

                                          • January 7, 2014 at 11:23 pm
                                          POW
                                          Participant

                                            Maureen, thank you for sharing Don's great results! You give all melanoma warriors reason to be hopeful. 

                                            In the 15 months since I joined MPIP, I have heard of more and more cases where patients have refused to quit after 2 or 3 or more treatments and finally– FINALLY– found something that worked for them. The depth and breadth of new melanoma treatments is, indeed, a whole new and unexplored world for us. Congratulatlons to you and Don for being the teriffic fighters that you are and "Thank you" for encouraging others to keep fighting. 

                                              • January 8, 2014 at 6:56 pm
                                              Maureen038
                                              Participant

                                                I agree with you Pat! Thank goodness there are more and more options. Bill is feeling much better today and his glucose level continues to get better! I so appreciate your support and advice!

                                                • January 8, 2014 at 6:56 pm
                                                Maureen038
                                                Participant

                                                  I agree with you Pat! Thank goodness there are more and more options. Bill is feeling much better today and his glucose level continues to get better! I so appreciate your support and advice!

                                                  • January 8, 2014 at 6:56 pm
                                                  Maureen038
                                                  Participant

                                                    I agree with you Pat! Thank goodness there are more and more options. Bill is feeling much better today and his glucose level continues to get better! I so appreciate your support and advice!

                                                  • January 8, 2014 at 1:01 am
                                                  Hstevens0072
                                                  Participant

                                                    Wonderful news!

                                                    • January 8, 2014 at 1:01 am
                                                    Hstevens0072
                                                    Participant

                                                      Wonderful news!

                                                      • January 8, 2014 at 1:01 am
                                                      Hstevens0072
                                                      Participant

                                                        Wonderful news!

                                                          • January 8, 2014 at 7:00 pm
                                                          Maureen038
                                                          Participant

                                                            Thanks Holly! I am thrilled for you and your husband too!!

                                                            Maureen

                                                            • January 8, 2014 at 7:00 pm
                                                            Maureen038
                                                            Participant

                                                              Thanks Holly! I am thrilled for you and your husband too!!

                                                              Maureen

                                                              • January 8, 2014 at 7:00 pm
                                                              Maureen038
                                                              Participant

                                                                Thanks Holly! I am thrilled for you and your husband too!!

                                                                Maureen

                                                              • January 8, 2014 at 4:07 pm
                                                              Brendan
                                                              Participant

                                                                Great news, Maureen. Thanks for sharing.

                                                                 

                                                                • January 8, 2014 at 4:07 pm
                                                                Brendan
                                                                Participant

                                                                  Great news, Maureen. Thanks for sharing.

                                                                   

                                                                  • January 8, 2014 at 4:07 pm
                                                                  Brendan
                                                                  Participant

                                                                    Great news, Maureen. Thanks for sharing.

                                                                     

                                                                    • January 8, 2014 at 4:07 pm
                                                                    Brendan
                                                                    Participant

                                                                      Great news, Maureen. Thanks for sharing.

                                                                       

                                                                      • January 8, 2014 at 4:07 pm
                                                                      Brendan
                                                                      Participant

                                                                        Great news, Maureen. Thanks for sharing.

                                                                         

                                                                        • January 8, 2014 at 4:07 pm
                                                                        Brendan
                                                                        Participant

                                                                          Great news, Maureen. Thanks for sharing.

                                                                           

                                                                            • January 8, 2014 at 7:01 pm
                                                                            Maureen038
                                                                            Participant

                                                                              Thanks Brendan for the support! I hope you get great results too! When are your scans?

                                                                              Maureen

                                                                              • January 8, 2014 at 7:01 pm
                                                                              Maureen038
                                                                              Participant

                                                                                Thanks Brendan for the support! I hope you get great results too! When are your scans?

                                                                                Maureen

                                                                                • January 8, 2014 at 7:01 pm
                                                                                Maureen038
                                                                                Participant

                                                                                  Thanks Brendan for the support! I hope you get great results too! When are your scans?

                                                                                  Maureen

                                                                                  • January 8, 2014 at 10:56 pm
                                                                                  sofistef
                                                                                  Participant
                                                                                    Great news, Maureen, so happy to see the treatment is working!
                                                                                    Dana
                                                                                    • January 9, 2014 at 10:38 pm
                                                                                    Maureen038
                                                                                    Participant

                                                                                      Thanks Dana! Wishing you the best with your scans in February!!

                                                                                      Maureen

                                                                                      • January 9, 2014 at 10:38 pm
                                                                                      Maureen038
                                                                                      Participant

                                                                                        Thanks Dana! Wishing you the best with your scans in February!!

                                                                                        Maureen

                                                                                        • January 9, 2014 at 10:38 pm
                                                                                        Maureen038
                                                                                        Participant

                                                                                          Thanks Dana! Wishing you the best with your scans in February!!

                                                                                          Maureen

                                                                                          • January 8, 2014 at 10:56 pm
                                                                                          sofistef
                                                                                          Participant
                                                                                            Great news, Maureen, so happy to see the treatment is working!
                                                                                            Dana
                                                                                            • January 8, 2014 at 10:56 pm
                                                                                            sofistef
                                                                                            Participant
                                                                                              Great news, Maureen, so happy to see the treatment is working!
                                                                                              Dana
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