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First NED scans!!!!!!
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First NED scans!!!!!!

› Forums › General Melanoma Community › First NED scans!!!!!!

  • Post
    • November 14, 2018 at 2:34 pm
    KellyH
    Participant

      Hi everyone!!!! 

      My son’s first set of follow up scans since diagnosis and surgery were Monday morning. I was a hot mess for days before and Monday forget it…i could barely think straight. So It has taken me a couple days to really process the news…but 9 months from diagnosis, 6 months into his Nivo treatments, and my son is officially NED!!!!! 

      Relieved is not a big enough word to truly explain the feeling I had when I got the call. I cried for hours and hours. I still am tears eyed writing this post. 

      Nivo treatments are another 6 months and then years and years of scans to follow up..I hope!!!!! Melanoma is such a sneaky little monster that I know to never let my guard down, not even for a minute but this was a great first step!!!!! 

      Thank you to everyone for all the suppport…I spent a few weeks just looking though this forum before I actually started posted and interacting. I’m so glad I did. Your experiences, your humor, kind words, and words of encouragement gave me hope and strength on some of my hardest days.

      As the holidays approach I hope we can all find a little peace and happiness surrounded by our family and friends because one thing this experience has taught me is to appreciate the little things….and never take anything for granted.  

      Kelly (AJs mom). 🙂 

    Viewing 8 reply threads
    • Replies
        • November 14, 2018 at 3:07 pm
        rosa1
        Participant

          Hi Kelly, that is wonderful news, I'm so happy for you. I hope AJ has a long and NED life ahead of him. BTW, how old is he?

          Rosa

            • November 14, 2018 at 3:44 pm
            KellyH
            Participant

              Hi Rosa!!!! 

              AJ just turned 18 a couple weeks ago!!!! He is a freshman in college. Busy being a teenager and going through all this..he’s a pretty tough kid. He amazes me everyday 🙂 

              Kelly 🙂 

            • November 14, 2018 at 3:10 pm
            Johnjk04
            Participant

              Just absolutely perfect. You and AJ will enjoy the holidays.

              • November 14, 2018 at 4:37 pm
              jbronicki
              Participant

                Kelly, so happy for AJ and you as his mom!  This disease is hard enough for adults to handle so when your kids are involved, I honestly can't imagine the level of stress.   This is the best news ever!  Congratulations for many years to come

                • November 14, 2018 at 7:44 pm
                VinceMart
                Participant

                  That is great news, wishing AJ all the best and continued NED status.  Wishing you a little peace, Enjoy the blessing you just received with your family this holiday. 

                  Vince

                  • November 14, 2018 at 7:59 pm
                  Coragirl
                  Participant

                    Yay! Wonderful news. 

                    • November 14, 2018 at 9:30 pm
                    Marie-Eve
                    Participant

                      Yeah! I'm really happy for you and your son, Kelly. 

                      • November 15, 2018 at 11:40 am
                      Bubbles
                      Participant

                        Congrats!  Wishing many years of love and laughter to you both!  Celeste

                        • November 16, 2018 at 3:31 am
                        Becky
                        Participant

                          I am so happy to hear this!! As a "Melanoma Mom" I know how anxious you were. I needed a few xanax to get me through the pre and post -scan days!

                          • November 18, 2018 at 7:54 pm
                          MelanomaMike
                          Participant

                            Hi Kelly, sorry so late to read this, iv been feeling kinda crapy the past few weeks but i have risen! lol..

                            im happy to learn of your boys NED status & that the Nivo is working good for him! the maintanence here after will REALY keep the Mel Bugs away as well!..

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