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First PD1 SCANS!
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First PD1 SCANS!

› Forums › General Melanoma Community › First PD1 SCANS!

  • Post
    • October 22, 2013 at 2:33 am
    Tina D
    Participant

      Had my first scans since starting in the PD1 trial. Great report! Lots of shrinking going on in there. I dont know the percentages yet, since the Dr and radiologist reviewed them today just a couple hours after I had them done.

      Also, I am having many changes in my pigmentation. I had vitiligo on my face previously ( it started after interferon a few years ago), and it has increased. I now have vitiligo on hands and arms and numerous halos on my back. I also now have some eyelashes that have turned white! My Dr said this all fits with the good response I am having, and shows the positive immune response.

      So, it was a long day, but a good one. I am so very thankful.

      Tired, but happy,

      Tina

    Viewing 26 reply threads
    • Replies
        • October 22, 2013 at 3:09 am
        SABKLYN
        Participant

          Excellent! Wishing you continued good luck and progress!

          • October 22, 2013 at 3:09 am
          SABKLYN
          Participant

            Excellent! Wishing you continued good luck and progress!

            • October 22, 2013 at 3:09 am
            SABKLYN
            Participant

              Excellent! Wishing you continued good luck and progress!

              • October 22, 2013 at 3:20 am
              JoshF
              Participant

                I am so thankful too Tina and happy for you!!! Definitely a great day and praying for many more to come for you!!!!!

                 

                Josh

                • October 22, 2013 at 3:20 am
                JoshF
                Participant

                  I am so thankful too Tina and happy for you!!! Definitely a great day and praying for many more to come for you!!!!!

                   

                  Josh

                  • October 22, 2013 at 3:20 am
                  JoshF
                  Participant

                    I am so thankful too Tina and happy for you!!! Definitely a great day and praying for many more to come for you!!!!!

                     

                    Josh

                    • October 22, 2013 at 5:19 am
                    JerryfromFauq
                    Participant

                      Dear Gal, isn't it much better to be tired aand happy. than otherwise?  Love  it. Whoopee!  Haven't had PD-1, but told my Onc he was trying to make a white man out  of me with the vitilago from the aIL-2 and Gleevec!   Waiting to heaar the next results.  Keep o n the aRoll!

                       

                      • October 22, 2013 at 5:19 am
                      JerryfromFauq
                      Participant

                        Dear Gal, isn't it much better to be tired aand happy. than otherwise?  Love  it. Whoopee!  Haven't had PD-1, but told my Onc he was trying to make a white man out  of me with the vitilago from the aIL-2 and Gleevec!   Waiting to heaar the next results.  Keep o n the aRoll!

                         

                        • October 22, 2013 at 5:19 am
                        JerryfromFauq
                        Participant

                          Dear Gal, isn't it much better to be tired aand happy. than otherwise?  Love  it. Whoopee!  Haven't had PD-1, but told my Onc he was trying to make a white man out  of me with the vitilago from the aIL-2 and Gleevec!   Waiting to heaar the next results.  Keep o n the aRoll!

                           

                          • October 22, 2013 at 6:41 am
                          Aussielyn
                          Participant

                            I am soooooo thrilled for you Tina! You are a true fighter ! Sending you positive thoughts , & continued strength & courage to keep in good health;

                            Best wishes all the way from Australia!

                            Lyn

                            • October 22, 2013 at 6:41 am
                            Aussielyn
                            Participant

                              I am soooooo thrilled for you Tina! You are a true fighter ! Sending you positive thoughts , & continued strength & courage to keep in good health;

                              Best wishes all the way from Australia!

                              Lyn

                              • October 22, 2013 at 6:41 am
                              Aussielyn
                              Participant

                                I am soooooo thrilled for you Tina! You are a true fighter ! Sending you positive thoughts , & continued strength & courage to keep in good health;

                                Best wishes all the way from Australia!

                                Lyn

                                • October 22, 2013 at 1:02 pm
                                BrianP
                                Participant

                                  Fantastic Tina!  So happy for you and your family.  Keep up the good fight.  Prayers coming your way for continued good reports.

                                  Brian

                                  • October 22, 2013 at 1:02 pm
                                  BrianP
                                  Participant

                                    Fantastic Tina!  So happy for you and your family.  Keep up the good fight.  Prayers coming your way for continued good reports.

                                    Brian

                                    • October 22, 2013 at 1:02 pm
                                    BrianP
                                    Participant

                                      Fantastic Tina!  So happy for you and your family.  Keep up the good fight.  Prayers coming your way for continued good reports.

                                      Brian

                                      • October 22, 2013 at 5:53 pm
                                      aldakota22
                                      Participant

                                        After reading your post Tina I am feeling absolutely super for you.Love that fighting attitude & PMA  you exhibit.Praying that this treatment regiment is the one that will Beat the Beast once and for all.In my prayers . Al

                                        • October 22, 2013 at 5:53 pm
                                        aldakota22
                                        Participant

                                          After reading your post Tina I am feeling absolutely super for you.Love that fighting attitude & PMA  you exhibit.Praying that this treatment regiment is the one that will Beat the Beast once and for all.In my prayers . Al

                                          • October 22, 2013 at 5:53 pm
                                          aldakota22
                                          Participant

                                            After reading your post Tina I am feeling absolutely super for you.Love that fighting attitude & PMA  you exhibit.Praying that this treatment regiment is the one that will Beat the Beast once and for all.In my prayers . Al

                                            • October 22, 2013 at 5:54 pm
                                            dovemed
                                            Guest

                                              Dear tina

                                              Excellent news. Get some rest. 

                                              Good luck and god bless

                                              krish

                                              • October 22, 2013 at 5:54 pm
                                              dovemed
                                              Guest

                                                Dear tina

                                                Excellent news. Get some rest. 

                                                Good luck and god bless

                                                krish

                                                • October 22, 2013 at 5:54 pm
                                                dovemed
                                                Guest

                                                  Dear tina

                                                  Excellent news. Get some rest. 

                                                  Good luck and god bless

                                                  krish

                                                  • October 23, 2013 at 9:53 am
                                                  Lisa – Aust
                                                  Participant

                                                    Amazing news! So happy for you and hoping for similar results for us in 11 weeks or so!

                                                    All the best, keep us posted 

                                                    x

                                                    • October 23, 2013 at 9:53 am
                                                    Lisa – Aust
                                                    Participant

                                                      Amazing news! So happy for you and hoping for similar results for us in 11 weeks or so!

                                                      All the best, keep us posted 

                                                      x

                                                      • October 23, 2013 at 9:53 am
                                                      Lisa – Aust
                                                      Participant

                                                        Amazing news! So happy for you and hoping for similar results for us in 11 weeks or so!

                                                        All the best, keep us posted 

                                                        x

                                                        • October 24, 2013 at 3:28 am
                                                        tasjacques
                                                        Participant

                                                          Woo Hoo!!! that is great news, I am so happy to hear that is working for you 🙂 Indeed vitiligo is a 'good' side effect also according to our doc. Jacques has it as well.

                                                          (((Hughs)))

                                                          Elenise

                                                            • October 24, 2013 at 12:01 pm
                                                            Tina D
                                                            Participant

                                                              Thanks, everyone 🙂    . I will try to post the percentages and more details when I get them. As always, my heart continues to weigh heavy for those in the midst of this battle & when I share good news I do it in hopes of encouraging others. I know it always is encouraging for me when I read of someone who is getting good reports. It is good to have a community like this where we can support, encourage and comfort each other. Thank you for being that for me!

                                                              Tina

                                                              • October 24, 2013 at 12:01 pm
                                                              Tina D
                                                              Participant

                                                                Thanks, everyone 🙂    . I will try to post the percentages and more details when I get them. As always, my heart continues to weigh heavy for those in the midst of this battle & when I share good news I do it in hopes of encouraging others. I know it always is encouraging for me when I read of someone who is getting good reports. It is good to have a community like this where we can support, encourage and comfort each other. Thank you for being that for me!

                                                                Tina

                                                                • October 24, 2013 at 6:35 pm
                                                                NYKaren
                                                                Participant

                                                                  Tina, I'm really thrilled for you!

                                                                  Karen

                                                                  • October 24, 2013 at 6:35 pm
                                                                  NYKaren
                                                                  Participant

                                                                    Tina, I'm really thrilled for you!

                                                                    Karen

                                                                    • October 24, 2013 at 6:35 pm
                                                                    NYKaren
                                                                    Participant

                                                                      Tina, I'm really thrilled for you!

                                                                      Karen

                                                                      • October 24, 2013 at 12:01 pm
                                                                      Tina D
                                                                      Participant

                                                                        Thanks, everyone 🙂    . I will try to post the percentages and more details when I get them. As always, my heart continues to weigh heavy for those in the midst of this battle & when I share good news I do it in hopes of encouraging others. I know it always is encouraging for me when I read of someone who is getting good reports. It is good to have a community like this where we can support, encourage and comfort each other. Thank you for being that for me!

                                                                        Tina

                                                                      • October 24, 2013 at 3:28 am
                                                                      tasjacques
                                                                      Participant

                                                                        Woo Hoo!!! that is great news, I am so happy to hear that is working for you 🙂 Indeed vitiligo is a 'good' side effect also according to our doc. Jacques has it as well.

                                                                        (((Hughs)))

                                                                        Elenise

                                                                        • October 24, 2013 at 3:28 am
                                                                        tasjacques
                                                                        Participant

                                                                          Woo Hoo!!! that is great news, I am so happy to hear that is working for you 🙂 Indeed vitiligo is a 'good' side effect also according to our doc. Jacques has it as well.

                                                                          (((Hughs)))

                                                                          Elenise

                                                                      Viewing 26 reply threads
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