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First WBR treatment

Forums General Melanoma Community First WBR treatment

  • Post
    deardad
    Participant

      So Dad had his first round of WBR today…..seemed fairly straight forward but now 4hrs later he is extremely tired and asleep in bed. He said he had slight blurred vision and a headache?

      I know these are all possible symptoms, but so soon?

      WBR warriors please come forward with some experiences.

      Thanks in advance 

      Nahmi from Melbourne

      So Dad had his first round of WBR today…..seemed fairly straight forward but now 4hrs later he is extremely tired and asleep in bed. He said he had slight blurred vision and a headache?

      I know these are all possible symptoms, but so soon?

      WBR warriors please come forward with some experiences.

      Thanks in advance 

      Nahmi from Melbourne

    Viewing 8 reply threads
    • Replies
        benp
        Participant

          Best of luck Nahmi, hope it goes well.

          Ben.

          benp
          Participant

            Best of luck Nahmi, hope it goes well.

            Ben.

            benp
            Participant

              Best of luck Nahmi, hope it goes well.

              Ben.

              Phil S
              Participant
                Nahmi, My husband completed WBR in November, and in our experience the tiredness is cumulative and Phil didnt really have any substantial side effects the first few weeks. I think it would be too soon to attribute his side effects to one session of WBR, perhaps its his tumors or other drugs he may be on. Please discuss his issues with your doctor at today’s appointment, perhaps they can help you sort out his symptoms. God bless, you are doing a great job for your Dad, hang in there! Valerie (Phil’s wife)
                Phil S
                Participant
                  Nahmi, My husband completed WBR in November, and in our experience the tiredness is cumulative and Phil didnt really have any substantial side effects the first few weeks. I think it would be too soon to attribute his side effects to one session of WBR, perhaps its his tumors or other drugs he may be on. Please discuss his issues with your doctor at today’s appointment, perhaps they can help you sort out his symptoms. God bless, you are doing a great job for your Dad, hang in there! Valerie (Phil’s wife)
                  Phil S
                  Participant
                    Nahmi, My husband completed WBR in November, and in our experience the tiredness is cumulative and Phil didnt really have any substantial side effects the first few weeks. I think it would be too soon to attribute his side effects to one session of WBR, perhaps its his tumors or other drugs he may be on. Please discuss his issues with your doctor at today’s appointment, perhaps they can help you sort out his symptoms. God bless, you are doing a great job for your Dad, hang in there! Valerie (Phil’s wife)
                    Woodlands
                    Participant

                      Hi Nahmi,

                      My husband had his first WBR treatment today, I have just got back from visiting him and he is wiped out, sleeping all the time.  The Dr's have told me that it can have this effect, I am lucky as my husband has been hospitalised because of the fatigue so I know he is in good hands because it is really worrying.

                      I wish your Dad all the best,

                      Lesley (Wales United Kingdom)

                      Woodlands
                      Participant

                        Hi Nahmi,

                        My husband had his first WBR treatment today, I have just got back from visiting him and he is wiped out, sleeping all the time.  The Dr's have told me that it can have this effect, I am lucky as my husband has been hospitalised because of the fatigue so I know he is in good hands because it is really worrying.

                        I wish your Dad all the best,

                        Lesley (Wales United Kingdom)

                        Woodlands
                        Participant

                          Hi Nahmi,

                          My husband had his first WBR treatment today, I have just got back from visiting him and he is wiped out, sleeping all the time.  The Dr's have told me that it can have this effect, I am lucky as my husband has been hospitalised because of the fatigue so I know he is in good hands because it is really worrying.

                          I wish your Dad all the best,

                          Lesley (Wales United Kingdom)

                            deardad
                            Participant

                              Thanks for your thoughts everyone. He slept all night and was in again this morning at 8.30am for is second round of WBR. He said he felt ok.

                              Ben… I rang Sydney re: gamma knife and they re-directed back to my dads onc in Melbourne who then referred me to the radiologist…who didn't believe dad was eligible for gamma because of the tumor progression through the body??? I agree that gamma knife is preferable, but clearly none of the doctors are recommending it. So frustrating…I'm tired of being hand balled. What more can you do? I feel quite helpless watching him go through this. Love to all.

                              Nahmi from Melbourne

                              deardad
                              Participant

                                Thanks for your thoughts everyone. He slept all night and was in again this morning at 8.30am for is second round of WBR. He said he felt ok.

                                Ben… I rang Sydney re: gamma knife and they re-directed back to my dads onc in Melbourne who then referred me to the radiologist…who didn't believe dad was eligible for gamma because of the tumor progression through the body??? I agree that gamma knife is preferable, but clearly none of the doctors are recommending it. So frustrating…I'm tired of being hand balled. What more can you do? I feel quite helpless watching him go through this. Love to all.

                                Nahmi from Melbourne

                                deardad
                                Participant

                                  Thanks for your thoughts everyone. He slept all night and was in again this morning at 8.30am for is second round of WBR. He said he felt ok.

                                  Ben… I rang Sydney re: gamma knife and they re-directed back to my dads onc in Melbourne who then referred me to the radiologist…who didn't believe dad was eligible for gamma because of the tumor progression through the body??? I agree that gamma knife is preferable, but clearly none of the doctors are recommending it. So frustrating…I'm tired of being hand balled. What more can you do? I feel quite helpless watching him go through this. Love to all.

                                  Nahmi from Melbourne

                            Viewing 8 reply threads
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