from bron in aust-minor update

hello again,

please let me first note.

i have been following everyone on this board and are constantly amazed at your strength, both as individuals and as a group.

My daughter is still waiting on the large hospital here to give her an appointment , however, bless her local GP who has decided to

give my daughter a very thorough check up (no scans yet). Ironically the only health issue that has come out of this is a seriously low vitamin D issue.

hello again,

please let me first note.

i have been following everyone on this board and are constantly amazed at your strength, both as individuals and as a group.

My daughter is still waiting on the large hospital here to give her an appointment , however, bless her local GP who has decided to

give my daughter a very thorough check up (no scans yet). Ironically the only health issue that has come out of this is a seriously low vitamin D issue.

Obviously she cannot "sunbake" (in australia you would fry or get another melanoma before you would get enough vit D from our sun) so she is on supplements

and upped her natural intake through food.

We have contacted the Poche centre in sydney (we are in Brisbane) and they say they will look at her path results both initial and from her

surgery (we didn't get any from the surgeon so that is another delay while we request them).

I have become very determined to have some of these australian sites to give more information and feedback… i keep referring them to this site as a model to copy. It must be terrifying to people here in Australia to be diagnosed and not have anywhere to get basic information. It was for us before i found this site.

Something as basic as testing for vit D (needed for the immune system) was not even mentioned by the surgeon…

It seems in Australia that if you don't do your own leg work you remain afraid and in the dark. My daughters surgeon made the comment,

(when i complained about lack of information) that ""most people don't want to know so i don't tell them anything"".

My comment on this…. give them the choice…

very kind regards from bron