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Gamma Knife failed on to WBR…any new trials available?
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Gamma Knife failed on to WBR…any new trials available?

› Forums › General Melanoma Community › Gamma Knife failed on to WBR…any new trials available?

  • Post
    • March 13, 2013 at 11:51 pm
    Fighting Mama
    Participant

      Hi,

      Hi,

      Haven't posted in awhile. I have been on Zelboraf since January 2012 with a good response (with usual SE gi upset, gas, hair loss, extreme photosensitivity). My last CT was very encouraging and continued to show marked regression. I have been pretty stable from the head down. My brain on the other hand has had a mixed response to Gamma Knife. In 2012 I had three sessions of GK and my last brain PET/CT, done last week, showed marked progression. Since the scan I have had some seizure acitivity. I now have plans to initiate whole brain radiation this Friday. It seems so surreal to hit the end of the road, so to speak. Would like to hear from those who have gone through whole brain under similiar circumstances or if there are any new trials taking folks with brain mets?

      Fighting Mama~ Amy

    Viewing 2 reply threads
    • Replies
        • March 14, 2013 at 12:11 am
        Tim–MRF
        Guest

          You may want to try the MRF's Clinical Trial Finder.  We work with a company called Emerging Med and I have heard good feedback from people who have called them.  Have also heard some problems from the online system, but hope most of those have been resolved.

          You can fill out a profile online here: http://www.emergingmed.com/networks/MRF/

          Or you can call the toll-free number:  1 800 (517) 2218.

          They do not promote specific trials, but rather look at your history and situation and let you know what trials are available.  

           

          Tim–MRF

          • March 14, 2013 at 12:11 am
          Tim–MRF
          Guest

            You may want to try the MRF's Clinical Trial Finder.  We work with a company called Emerging Med and I have heard good feedback from people who have called them.  Have also heard some problems from the online system, but hope most of those have been resolved.

            You can fill out a profile online here: http://www.emergingmed.com/networks/MRF/

            Or you can call the toll-free number:  1 800 (517) 2218.

            They do not promote specific trials, but rather look at your history and situation and let you know what trials are available.  

             

            Tim–MRF

              • March 14, 2013 at 1:07 am
              Fighting Mama
              Participant

                Thanks Tim. I left a message and will follow up tomorrow morning.

                –Amy

                • March 14, 2013 at 1:07 am
                Fighting Mama
                Participant

                  Thanks Tim. I left a message and will follow up tomorrow morning.

                  –Amy

                  • March 14, 2013 at 1:07 am
                  Fighting Mama
                  Participant

                    Thanks Tim. I left a message and will follow up tomorrow morning.

                    –Amy

                  • March 14, 2013 at 12:11 am
                  Tim–MRF
                  Guest

                    You may want to try the MRF's Clinical Trial Finder.  We work with a company called Emerging Med and I have heard good feedback from people who have called them.  Have also heard some problems from the online system, but hope most of those have been resolved.

                    You can fill out a profile online here: http://www.emergingmed.com/networks/MRF/

                    Or you can call the toll-free number:  1 800 (517) 2218.

                    They do not promote specific trials, but rather look at your history and situation and let you know what trials are available.  

                     

                    Tim–MRF

                Viewing 2 reply threads
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