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going grey
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going grey

› Forums › General Melanoma Community › going grey

  • Post
    • August 11, 2016 at 9:14 pm
    KAF
    Participant

      hi all

      Has anyone lost hair from the ipi/nivo combo?  If so, did it grow back?

      Also, my eyebrows, eyelashes and other body hair are turning grey – did this happen to anyone else?

      Did 7 weeks of ipi/nivo and had to stop 2 weeks ago due to pituitary inflamation 

    Viewing 20 reply threads
    • Replies
        • August 12, 2016 at 12:26 am
        Aaron
        Participant

          Karen,  this is so strange because I have pituatary problems as well and have possible vitiligo coming on as well!  I saw an endocrinologist today. My oncologist dr seems optimistic that I have both pituatary and vitiligo even though he won't come out and say it. Basically that these are positive signs and possible good things.  

          • August 12, 2016 at 12:26 am
          Aaron
          Participant

            Karen,  this is so strange because I have pituatary problems as well and have possible vitiligo coming on as well!  I saw an endocrinologist today. My oncologist dr seems optimistic that I have both pituatary and vitiligo even though he won't come out and say it. Basically that these are positive signs and possible good things.  

            • August 12, 2016 at 12:26 am
            Aaron
            Participant

              Karen,  this is so strange because I have pituatary problems as well and have possible vitiligo coming on as well!  I saw an endocrinologist today. My oncologist dr seems optimistic that I have both pituatary and vitiligo even though he won't come out and say it. Basically that these are positive signs and possible good things.  

              • August 12, 2016 at 6:44 pm
              WithinMySkin
              Participant
                I, too, lost quite a bit of hair during my treatment with Ipi/nivo. My second (and last) infusion was in May, and I’m still losing hair. I’ve also lost half my eyelashes and gained a bit of facial fuzz, probably due to the steroids. I’m very prone to hair loss due to stress as well. Hoping it’ll start regrowing soon!
                • August 12, 2016 at 6:44 pm
                WithinMySkin
                Participant
                  I, too, lost quite a bit of hair during my treatment with Ipi/nivo. My second (and last) infusion was in May, and I’m still losing hair. I’ve also lost half my eyelashes and gained a bit of facial fuzz, probably due to the steroids. I’m very prone to hair loss due to stress as well. Hoping it’ll start regrowing soon!
                  • August 12, 2016 at 6:44 pm
                  WithinMySkin
                  Participant
                    I, too, lost quite a bit of hair during my treatment with Ipi/nivo. My second (and last) infusion was in May, and I’m still losing hair. I’ve also lost half my eyelashes and gained a bit of facial fuzz, probably due to the steroids. I’m very prone to hair loss due to stress as well. Hoping it’ll start regrowing soon!
                    • August 13, 2016 at 3:39 am
                    Beehappy
                    Participant

                      My husband is at the end of a year trial (either Ipi or Nivo) and he has turned noticeably grey.  He hasn't had hair loss, but his hair has grown unusually fast during his treatment.  

                      • August 13, 2016 at 3:39 am
                      Beehappy
                      Participant

                        My husband is at the end of a year trial (either Ipi or Nivo) and he has turned noticeably grey.  He hasn't had hair loss, but his hair has grown unusually fast during his treatment.  

                        • August 13, 2016 at 3:39 am
                        Beehappy
                        Participant

                          My husband is at the end of a year trial (either Ipi or Nivo) and he has turned noticeably grey.  He hasn't had hair loss, but his hair has grown unusually fast during his treatment.  

                          • August 13, 2016 at 4:51 pm
                          Patina
                          Participant

                            My Mom's hair was pure white, but after ipi and gamma knife radiation her white hair has a bit of color and light and dark grey with some black strands too.

                            She has had very good results with ipi, but is now on Keytruda. Her hair color is becoming more noticeable and she has vitiligo and her results with the cancer have just been amazing.

                            • August 13, 2016 at 4:51 pm
                            Patina
                            Participant

                              My Mom's hair was pure white, but after ipi and gamma knife radiation her white hair has a bit of color and light and dark grey with some black strands too.

                              She has had very good results with ipi, but is now on Keytruda. Her hair color is becoming more noticeable and she has vitiligo and her results with the cancer have just been amazing.

                              • August 13, 2016 at 4:51 pm
                              Patina
                              Participant

                                My Mom's hair was pure white, but after ipi and gamma knife radiation her white hair has a bit of color and light and dark grey with some black strands too.

                                She has had very good results with ipi, but is now on Keytruda. Her hair color is becoming more noticeable and she has vitiligo and her results with the cancer have just been amazing.

                                • August 14, 2016 at 11:07 pm
                                CHRISNYC
                                Participant

                                  My ippi/nivo treatment caused my eye lashes and a number of other areas to go white.   The treatment team  explained that it was due to the treatment and encouraged me with the idea that I was responding to the drugs.  For now I have had shrinking and no new mets so I think it's a good thing to have the white stuff happening.     Hope you get the results we all need.  

                                  • August 14, 2016 at 11:07 pm
                                  CHRISNYC
                                  Participant

                                    My ippi/nivo treatment caused my eye lashes and a number of other areas to go white.   The treatment team  explained that it was due to the treatment and encouraged me with the idea that I was responding to the drugs.  For now I have had shrinking and no new mets so I think it's a good thing to have the white stuff happening.     Hope you get the results we all need.  

                                    • August 14, 2016 at 11:07 pm
                                    CHRISNYC
                                    Participant

                                      My ippi/nivo treatment caused my eye lashes and a number of other areas to go white.   The treatment team  explained that it was due to the treatment and encouraged me with the idea that I was responding to the drugs.  For now I have had shrinking and no new mets so I think it's a good thing to have the white stuff happening.     Hope you get the results we all need.  

                                      • August 15, 2016 at 1:01 am
                                      Maria C
                                      Participant

                                        Hi there – 

                                        Yes, as others here have mentioned, grey or white hair may be a sign of vitilogo which is associated with a better prognosis. My eyebrows, eyelashes, and all body hair has turned white along with skin discoloration on my arms & legs and cheekbones. I was at first bothered by these visible signs of my cancer treatment, but now believe they are a daily reminder that there is hope for me yet!! 

                                        What does your oncologist say about this side effect for you?

                                          • August 16, 2016 at 4:15 pm
                                          KAF
                                          Participant

                                            Hi Maria – haven't seen my oncologist since noticing the white hair.  I go back next week.

                                            thanks all for the positive feedback.  I'll take the white hair any day if it takes away the cancer along with the color.

                                            • August 16, 2016 at 4:15 pm
                                            KAF
                                            Participant

                                              Hi Maria – haven't seen my oncologist since noticing the white hair.  I go back next week.

                                              thanks all for the positive feedback.  I'll take the white hair any day if it takes away the cancer along with the color.

                                              • August 16, 2016 at 4:15 pm
                                              KAF
                                              Participant

                                                Hi Maria – haven't seen my oncologist since noticing the white hair.  I go back next week.

                                                thanks all for the positive feedback.  I'll take the white hair any day if it takes away the cancer along with the color.

                                              • August 15, 2016 at 1:01 am
                                              Maria C
                                              Participant

                                                Hi there – 

                                                Yes, as others here have mentioned, grey or white hair may be a sign of vitilogo which is associated with a better prognosis. My eyebrows, eyelashes, and all body hair has turned white along with skin discoloration on my arms & legs and cheekbones. I was at first bothered by these visible signs of my cancer treatment, but now believe they are a daily reminder that there is hope for me yet!! 

                                                What does your oncologist say about this side effect for you?

                                                • August 15, 2016 at 1:01 am
                                                Maria C
                                                Participant

                                                  Hi there – 

                                                  Yes, as others here have mentioned, grey or white hair may be a sign of vitilogo which is associated with a better prognosis. My eyebrows, eyelashes, and all body hair has turned white along with skin discoloration on my arms & legs and cheekbones. I was at first bothered by these visible signs of my cancer treatment, but now believe they are a daily reminder that there is hope for me yet!! 

                                                  What does your oncologist say about this side effect for you?

                                                  • August 15, 2016 at 1:01 am
                                                  Maria C
                                                  Participant

                                                    Hi there – 

                                                    Yes, as others here have mentioned, grey or white hair may be a sign of vitilogo which is associated with a better prognosis. My eyebrows, eyelashes, and all body hair has turned white along with skin discoloration on my arms & legs and cheekbones. I was at first bothered by these visible signs of my cancer treatment, but now believe they are a daily reminder that there is hope for me yet!! 

                                                    What does your oncologist say about this side effect for you?

                                                    • August 15, 2016 at 1:01 am
                                                    Maria C
                                                    Participant

                                                      Hi there – 

                                                      Yes, as others here have mentioned, grey or white hair may be a sign of vitilogo which is associated with a better prognosis. My eyebrows, eyelashes, and all body hair has turned white along with skin discoloration on my arms & legs and cheekbones. I was at first bothered by these visible signs of my cancer treatment, but now believe they are a daily reminder that there is hope for me yet!! 

                                                      What does your oncologist say about this side effect for you?

                                                      • August 15, 2016 at 1:01 am
                                                      Maria C
                                                      Participant

                                                        Hi there – 

                                                        Yes, as others here have mentioned, grey or white hair may be a sign of vitilogo which is associated with a better prognosis. My eyebrows, eyelashes, and all body hair has turned white along with skin discoloration on my arms & legs and cheekbones. I was at first bothered by these visible signs of my cancer treatment, but now believe they are a daily reminder that there is hope for me yet!! 

                                                        What does your oncologist say about this side effect for you?

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