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Good CT scan!
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Good CT scan!

› Forums › General Melanoma Community › Good CT scan!

  • Post
    • June 7, 2015 at 6:15 pm
    Eileensulliv
    Participant

      On Thursday, I had a CT scan before my usual doctor appointment and Nivo treatment. The doctor said a preliminary look shows I am down to two tumors… One in my lung, and one in a lymph node in the mesentery bowel. Both tumors have shrunk approximately 50%! in a few days I should have the final report with actual measurements and tumor count, but what I heard in the office was incredibly encouraging news!!! 

      I then went for my treatment. They give me a bag of Benadryl first, since I broke out in hives during my second treatment. Halfway through the Nivo, I woke up and vomited, had a fever and erratic heartbeat. I didn't really realize what was going on because I was so out of it. The fever and nausea persisted through Friday. Now I am just dealing with the usual GI issues. The nurse called me the next day and said they think the reaction was due to the funky cocktail mix of CT contrast, Benadryl, and Nivo on a fairly empty stomach. She said they are also considering reducing the Benadryl dosage, which would please me! I hate sleeping through all of this and then feeling groggy for hours…

       

      I'm still on cloud 9 though! I feel like I won the lottery!!!

    Viewing 14 reply threads
    • Replies
        • June 8, 2015 at 3:52 am
        _Paul_
        Participant

          That's awesome news Eileen! Sorry about your unpleasant infusion experience, but the tumor shrinkage is fantastic. And you did win the lottery! No amount of money can equal making progress against this disease!

          Very happy for you – Paul.

          • June 8, 2015 at 3:52 am
          _Paul_
          Participant

            That's awesome news Eileen! Sorry about your unpleasant infusion experience, but the tumor shrinkage is fantastic. And you did win the lottery! No amount of money can equal making progress against this disease!

            Very happy for you – Paul.

            • June 8, 2015 at 3:52 am
            _Paul_
            Participant

              That's awesome news Eileen! Sorry about your unpleasant infusion experience, but the tumor shrinkage is fantastic. And you did win the lottery! No amount of money can equal making progress against this disease!

              Very happy for you – Paul.

              • June 8, 2015 at 11:38 am
              arthurjedi007
              Participant

                That is wonderful it is working so well. 

                Artie

                • June 8, 2015 at 11:38 am
                arthurjedi007
                Participant

                  That is wonderful it is working so well. 

                  Artie

                  • June 8, 2015 at 11:38 am
                  arthurjedi007
                  Participant

                    That is wonderful it is working so well. 

                    Artie

                    • June 8, 2015 at 5:08 pm
                    BrianP
                    Participant

                      Congrats Eilleen. Hopefully they'll get your pre-infusion cocktail balanced out. Also wouldn't be surprised if your body starts to get more accustomed to the infusion. Let's hope so. 

                        • June 9, 2015 at 9:40 pm
                        Eileensulliv
                        Participant

                          Thank you, Brian! They did say they are going to try without the Benadryl again, thinking that maybe my body is used to Nivo now and won't break out in hives. But they did say they are going to keep a bag of Benadryl handy and ready to go, just in case!  I am very blessed.

                          • June 9, 2015 at 9:40 pm
                          Eileensulliv
                          Participant

                            Thank you, Brian! They did say they are going to try without the Benadryl again, thinking that maybe my body is used to Nivo now and won't break out in hives. But they did say they are going to keep a bag of Benadryl handy and ready to go, just in case!  I am very blessed.

                            • June 9, 2015 at 9:40 pm
                            Eileensulliv
                            Participant

                              Thank you, Brian! They did say they are going to try without the Benadryl again, thinking that maybe my body is used to Nivo now and won't break out in hives. But they did say they are going to keep a bag of Benadryl handy and ready to go, just in case!  I am very blessed.

                            • June 8, 2015 at 5:08 pm
                            BrianP
                            Participant

                              Congrats Eilleen. Hopefully they'll get your pre-infusion cocktail balanced out. Also wouldn't be surprised if your body starts to get more accustomed to the infusion. Let's hope so. 

                              • June 8, 2015 at 5:08 pm
                              BrianP
                              Participant

                                Congrats Eilleen. Hopefully they'll get your pre-infusion cocktail balanced out. Also wouldn't be surprised if your body starts to get more accustomed to the infusion. Let's hope so. 

                                • June 8, 2015 at 10:36 pm
                                jbronicki
                                Participant

                                  That's wonderful news!  Wishing you much more good news.

                                  • June 8, 2015 at 10:36 pm
                                  jbronicki
                                  Participant

                                    That's wonderful news!  Wishing you much more good news.

                                    • June 8, 2015 at 10:36 pm
                                    jbronicki
                                    Participant

                                      That's wonderful news!  Wishing you much more good news.

                                      • June 10, 2015 at 4:46 am
                                      DZnDef
                                      Participant

                                        Congratulations on your amazing progress!  Wishing you more of the same next time!

                                        Maggie

                                        • June 10, 2015 at 4:46 am
                                        DZnDef
                                        Participant

                                          Congratulations on your amazing progress!  Wishing you more of the same next time!

                                          Maggie

                                          • June 10, 2015 at 4:46 am
                                          DZnDef
                                          Participant

                                            Congratulations on your amazing progress!  Wishing you more of the same next time!

                                            Maggie

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