Good news and some questions

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Good news and some questions

This topic has 3 replies, 1 voice, and was last updated 10 years, 5 months ago by arthurjedi007.

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- December 11, 2014 at 11:33 pm
- Quote
Marianne quinn
Participant
My husband was diagnosed with stage 3C melanoma under his thumbnail in Sepetember 2013.. After a partial amuptation and a lymphendectomy, he started on the ip vs. Interferon trial. He completed the induction phase of 10 mg. ipi and was able to manage the side effects. In week 14, a CAT scan showed a small metastasis in his liver. He was removed from the trial and did not receive any maintenance doses. We were devastated by the news and the removal from the trial. He underwent successful microwave ablation of the lesion. Our Christmas present was a clean scan today-nine months after progession on ipi. His 3rd clean scan. Our doctor is optimistic. It was nice to hear after all the negative stuff you hear when first diagnosed.

My question is does anyone now if the maintenance doses are effective?

I think that my husband is a responder to ipi. I would like BMS to examine his blood.I think it would be provide beneficial information to BMS. Does anyone have an idea of how to make that happen? We have Kaiser and I am basically pleased with them, but I doubt if Kaiser would point us in the direction to get this done. I don't think they would be opposed to it either.

Wishing all of you mel warriors and their families a healthy new year.

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Replies

- - December 15, 2014 at 4:44 pm
  - Quote
  arthurjedi007
  Participant
  When ipi failed me I remember asking about the I think it is 4 month maintenance dose and my doc said he never does it and insurance rarely approves it. Since it didn't work for me anyway it was pretty much a moot point but I do remember asking. But that was for the FDA approved dosage and stuff.
  
  Artie
- - December 15, 2014 at 4:44 pm
  - Quote
  arthurjedi007
  Participant
  When ipi failed me I remember asking about the I think it is 4 month maintenance dose and my doc said he never does it and insurance rarely approves it. Since it didn't work for me anyway it was pretty much a moot point but I do remember asking. But that was for the FDA approved dosage and stuff.
  
  Artie
- - December 15, 2014 at 4:44 pm
  - Quote
  arthurjedi007
  Participant
  When ipi failed me I remember asking about the I think it is 4 month maintenance dose and my doc said he never does it and insurance rarely approves it. Since it didn't work for me anyway it was pretty much a moot point but I do remember asking. But that was for the FDA approved dosage and stuff.
  
  Artie

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