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Got my Results – good and some potential bad
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Got my Results – good and some potential bad

› Forums › General Melanoma Community › Got my Results – good and some potential bad

  • Post
    • November 1, 2011 at 8:13 pm
    Lisa13
    Participant

      I received a call from my Dr. today telling me that the majority of lung mets in my lungs have all shrunk – except for 1 or 2 which have grown a bit.  This could be inflammation, but believes I'm responding to ipi.  Anyway, here is some potential bad news – something was found in my brain – 2.2 sonometers which he said was very small.

      I received a call from my Dr. today telling me that the majority of lung mets in my lungs have all shrunk – except for 1 or 2 which have grown a bit.  This could be inflammation, but believes I'm responding to ipi.  Anyway, here is some potential bad news – something was found in my brain – 2.2 sonometers which he said was very small. Also, he said it doesn't look like a typical melanoma and they don't exactly know what it is, so they're sending me in for an MRI.   I'm very nervous and scared, but until I know for sure, I'm going to hope and pray this is benign or a pituitary gland tumour from ipi.   If it's something, I can have it treated ASAP. 

      Anyway, has anybody had anything similar before?  I just had an MRI of my brain in August and there was nothing and now while on ipi, I've got something.  I'll know more tomorrow when I see him – speaking to him on the phone while driving home from a mall was very mindblowing to say the least.

      Anyway, the fact that almost all 15 mets have shrunk in my lungs is VERY good news to me and I still continue to have faith!

      Lisa 

    Viewing 26 reply threads
    • Replies
        • November 1, 2011 at 8:32 pm
        MariaH
        Participant

          Lisa,

          Congrats on the GOOD news!!  As to the brain situation, here's to hoping that its nothing!

          Keep up the faith!

          Maria

          • November 1, 2011 at 8:32 pm
          MariaH
          Participant

            Lisa,

            Congrats on the GOOD news!!  As to the brain situation, here's to hoping that its nothing!

            Keep up the faith!

            Maria

            • November 1, 2011 at 8:32 pm
            MariaH
            Participant

              Lisa,

              Congrats on the GOOD news!!  As to the brain situation, here's to hoping that its nothing!

              Keep up the faith!

              Maria

              • November 1, 2011 at 10:30 pm
              triciad
              Participant

                Lisa,

                 

                Good luck with the brain MRI…I'm sending positive thoughts and prayers your way for good results!

                Tricia

                • November 1, 2011 at 10:30 pm
                triciad
                Participant

                  Lisa,

                   

                  Good luck with the brain MRI…I'm sending positive thoughts and prayers your way for good results!

                  Tricia

                  • November 1, 2011 at 10:30 pm
                  triciad
                  Participant

                    Lisa,

                     

                    Good luck with the brain MRI…I'm sending positive thoughts and prayers your way for good results!

                    Tricia

                    • November 2, 2011 at 12:07 am
                    lyndaloo
                    Participant

                      Hi Lisa – I was telling my husband about you as we were at the cancer clinic for 5 hours today, today he got clearance to start ipi, he just completed three rounds of chemo but a few things in his body are still progessing slowly. 

                      My husband had lung surgery in Feb and brain surgery in May.  The remaining brain mets were given tomotherapy and whole brain radiation.  I know how scary this disease is, but the fact that the majority of your lung mets have shrunk is excellent news.  Technology is wonderful.  I hope and pray the ipi will keep on working for you.  Thank you for sharing all your experiences with ipi, I will be referring to your journey as my husband begins his.

                      Best Regards,

                      Lyndaloo  (from Ontario)

                      • November 2, 2011 at 12:07 am
                      lyndaloo
                      Participant

                        Hi Lisa – I was telling my husband about you as we were at the cancer clinic for 5 hours today, today he got clearance to start ipi, he just completed three rounds of chemo but a few things in his body are still progessing slowly. 

                        My husband had lung surgery in Feb and brain surgery in May.  The remaining brain mets were given tomotherapy and whole brain radiation.  I know how scary this disease is, but the fact that the majority of your lung mets have shrunk is excellent news.  Technology is wonderful.  I hope and pray the ipi will keep on working for you.  Thank you for sharing all your experiences with ipi, I will be referring to your journey as my husband begins his.

                        Best Regards,

                        Lyndaloo  (from Ontario)

                        • November 2, 2011 at 12:07 am
                        lyndaloo
                        Participant

                          Hi Lisa – I was telling my husband about you as we were at the cancer clinic for 5 hours today, today he got clearance to start ipi, he just completed three rounds of chemo but a few things in his body are still progessing slowly. 

                          My husband had lung surgery in Feb and brain surgery in May.  The remaining brain mets were given tomotherapy and whole brain radiation.  I know how scary this disease is, but the fact that the majority of your lung mets have shrunk is excellent news.  Technology is wonderful.  I hope and pray the ipi will keep on working for you.  Thank you for sharing all your experiences with ipi, I will be referring to your journey as my husband begins his.

                          Best Regards,

                          Lyndaloo  (from Ontario)

                          • November 2, 2011 at 12:16 am
                          lhaley
                          Participant

                            Lisa,

                            The lung news was really good news. I do hope that the other brain issue is nothing.  Did it show on the PET scan that you saw this?   I know it's hard to say but until you have the MRI you really don't know what it is.  I'm glad their getting you in so quickly.

                            Linda

                            • November 2, 2011 at 12:16 am
                            lhaley
                            Participant

                              Lisa,

                              The lung news was really good news. I do hope that the other brain issue is nothing.  Did it show on the PET scan that you saw this?   I know it's hard to say but until you have the MRI you really don't know what it is.  I'm glad their getting you in so quickly.

                              Linda

                                • November 2, 2011 at 12:42 am
                                Lisa13
                                Participant

                                  Hi Linda,

                                  The brain spot showed up after I had a head/neck CT scan – they will give me an MRI now to see exactly what it is. My Dr. said it didn't look like a typical melanoma, so I don't really know what it can be.  He's obviously set me up for the worst case scenerio.

                                  I know you have recently encountered a tumour in your brain, so you know how scary this can be.  Just when it sounds like I'm getting good news, I'm heading into another challenge.  The important thing to know is that many people on this board have had brain mets or a singular brain met, which have been removed and not seen for a long time. 

                                  Lisa

                                  • November 2, 2011 at 12:42 am
                                  Lisa13
                                  Participant

                                    Hi Linda,

                                    The brain spot showed up after I had a head/neck CT scan – they will give me an MRI now to see exactly what it is. My Dr. said it didn't look like a typical melanoma, so I don't really know what it can be.  He's obviously set me up for the worst case scenerio.

                                    I know you have recently encountered a tumour in your brain, so you know how scary this can be.  Just when it sounds like I'm getting good news, I'm heading into another challenge.  The important thing to know is that many people on this board have had brain mets or a singular brain met, which have been removed and not seen for a long time. 

                                    Lisa

                                    • November 2, 2011 at 12:42 am
                                    Lisa13
                                    Participant

                                      Hi Linda,

                                      The brain spot showed up after I had a head/neck CT scan – they will give me an MRI now to see exactly what it is. My Dr. said it didn't look like a typical melanoma, so I don't really know what it can be.  He's obviously set me up for the worst case scenerio.

                                      I know you have recently encountered a tumour in your brain, so you know how scary this can be.  Just when it sounds like I'm getting good news, I'm heading into another challenge.  The important thing to know is that many people on this board have had brain mets or a singular brain met, which have been removed and not seen for a long time. 

                                      Lisa

                                      • November 2, 2011 at 1:47 am
                                      lhaley
                                      Participant

                                        I do know of a few friends(melanoma) that have other brain issues …. not melanoma, that are watched.  I hope this is something that is reacting to the ippi!!!   

                                        I totally understand that you are freaking.  The Dr saying that it doesn't look typical might really be that it's not melanoma.  Hug that baby tonight and just try to escape till you know what is going on.

                                        Linda

                                        • November 2, 2011 at 1:47 am
                                        lhaley
                                        Participant

                                          I do know of a few friends(melanoma) that have other brain issues …. not melanoma, that are watched.  I hope this is something that is reacting to the ippi!!!   

                                          I totally understand that you are freaking.  The Dr saying that it doesn't look typical might really be that it's not melanoma.  Hug that baby tonight and just try to escape till you know what is going on.

                                          Linda

                                          • November 2, 2011 at 1:47 am
                                          lhaley
                                          Participant

                                            I do know of a few friends(melanoma) that have other brain issues …. not melanoma, that are watched.  I hope this is something that is reacting to the ippi!!!   

                                            I totally understand that you are freaking.  The Dr saying that it doesn't look typical might really be that it's not melanoma.  Hug that baby tonight and just try to escape till you know what is going on.

                                            Linda

                                          • November 2, 2011 at 12:16 am
                                          lhaley
                                          Participant

                                            Lisa,

                                            The lung news was really good news. I do hope that the other brain issue is nothing.  Did it show on the PET scan that you saw this?   I know it's hard to say but until you have the MRI you really don't know what it is.  I'm glad their getting you in so quickly.

                                            Linda

                                            • November 2, 2011 at 1:13 am
                                            BethA
                                            Participant

                                              Celebrate your good news and I will pray for good results with further testing.  Let us know.     Beth 3/B

                                              • November 2, 2011 at 1:13 am
                                              BethA
                                              Participant

                                                Celebrate your good news and I will pray for good results with further testing.  Let us know.     Beth 3/B

                                                • November 2, 2011 at 1:13 am
                                                BethA
                                                Participant

                                                  Celebrate your good news and I will pray for good results with further testing.  Let us know.     Beth 3/B

                                                  • November 2, 2011 at 4:03 am
                                                  momof2kids
                                                  Participant

                                                    Hope all goes well with the MRI.

                                                    Dealing with any spots is horrible, but the Brain is quite scary, I've been getting very nervous about my next MRI for this month with the Brain, and my Yervoy scans coming up this month too.

                                                    Just hope mine show some shrinkage like yours has.

                                                    • November 2, 2011 at 4:03 am
                                                    momof2kids
                                                    Participant

                                                      Hope all goes well with the MRI.

                                                      Dealing with any spots is horrible, but the Brain is quite scary, I've been getting very nervous about my next MRI for this month with the Brain, and my Yervoy scans coming up this month too.

                                                      Just hope mine show some shrinkage like yours has.

                                                      • November 2, 2011 at 4:03 am
                                                      momof2kids
                                                      Participant

                                                        Hope all goes well with the MRI.

                                                        Dealing with any spots is horrible, but the Brain is quite scary, I've been getting very nervous about my next MRI for this month with the Brain, and my Yervoy scans coming up this month too.

                                                        Just hope mine show some shrinkage like yours has.

                                                        • November 2, 2011 at 12:29 pm
                                                        FormerCaregiver
                                                        Participant

                                                          Lisa, this is encouraging news about the lung mets. It certainly sounds like you are having a good response to ipi.

                                                          The spot that has been detected in the brain could well be benign. Hope that the MRI will confirm that it is nothing to worry about.

                                                          You remain in my prayers.

                                                          Frank from Australia

                                                          • November 2, 2011 at 12:29 pm
                                                          FormerCaregiver
                                                          Participant

                                                            Lisa, this is encouraging news about the lung mets. It certainly sounds like you are having a good response to ipi.

                                                            The spot that has been detected in the brain could well be benign. Hope that the MRI will confirm that it is nothing to worry about.

                                                            You remain in my prayers.

                                                            Frank from Australia

                                                            • November 2, 2011 at 12:29 pm
                                                            FormerCaregiver
                                                            Participant

                                                              Lisa, this is encouraging news about the lung mets. It certainly sounds like you are having a good response to ipi.

                                                              The spot that has been detected in the brain could well be benign. Hope that the MRI will confirm that it is nothing to worry about.

                                                              You remain in my prayers.

                                                              Frank from Australia

                                                              • November 2, 2011 at 2:19 pm
                                                              Lauri England
                                                              Participant

                                                                I am glad lungs are better.  I totally understand the anxiety you are feeling waiting for brain test results.  Any waiting for test results is stressful.  You are in my prayers Lisa.  Try to stay strong and think positive thoughts as much as possible. 

                                                                • November 2, 2011 at 2:19 pm
                                                                Lauri England
                                                                Participant

                                                                  I am glad lungs are better.  I totally understand the anxiety you are feeling waiting for brain test results.  Any waiting for test results is stressful.  You are in my prayers Lisa.  Try to stay strong and think positive thoughts as much as possible. 

                                                                  • November 2, 2011 at 2:19 pm
                                                                  Lauri England
                                                                  Participant

                                                                    I am glad lungs are better.  I totally understand the anxiety you are feeling waiting for brain test results.  Any waiting for test results is stressful.  You are in my prayers Lisa.  Try to stay strong and think positive thoughts as much as possible. 

                                                                    • November 2, 2011 at 3:14 pm
                                                                    MichaelFL
                                                                    Participant

                                                                      By 2.2 sonometers, do they mean 2.2 centimeters? I think that is how some say centimeters in Canada.

                                                                      Do you know if it around or near your  pituitary gland? (which is about the size of a pea) Swelling or inflamed? If it is, as you know, I am betting this is ipi related instead.

                                                                      • November 2, 2011 at 3:14 pm
                                                                      MichaelFL
                                                                      Participant

                                                                        By 2.2 sonometers, do they mean 2.2 centimeters? I think that is how some say centimeters in Canada.

                                                                        Do you know if it around or near your  pituitary gland? (which is about the size of a pea) Swelling or inflamed? If it is, as you know, I am betting this is ipi related instead.

                                                                        • November 2, 2011 at 3:14 pm
                                                                        MichaelFL
                                                                        Participant

                                                                          By 2.2 sonometers, do they mean 2.2 centimeters? I think that is how some say centimeters in Canada.

                                                                          Do you know if it around or near your  pituitary gland? (which is about the size of a pea) Swelling or inflamed? If it is, as you know, I am betting this is ipi related instead.

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