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Hammer knife completed
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Hammer knife completed

› Forums › General Melanoma Community › Hammer knife completed

  • Post
    • April 4, 2016 at 4:55 pm
    Scooby123
    Participant

      Hi all been today had gamma  knife, after more detailed scan still just the one spot to take care of. It had grown from 4mm to 5 mm but the nurse said scan I had before is different regarding slices they take of your brain, so most of time always different. Not sure if growing 1 mm is quick from Feb scan to now.

      everything went ok just very sore where the frame was fitted. Went in at 7am home for 3pm did not want to stay over night.

      Will see my consultant in May they said 3 months before scanning again to see how it's gone. No mention of any other treatment at this stage. They said they gave me max dose too tumour .so hope it kills it.

      hope you all ok 

      take care

      scooby123❤️

    Viewing 14 reply threads
    • Replies
        • April 4, 2016 at 6:16 pm
        Scooby123
        Participant

          Please excuse my spelling Gammer knife not hammer knife did not have my specs on and got a head ach so please forgive me .

          scooby123❤️

          • April 4, 2016 at 6:16 pm
          Scooby123
          Participant

            Please excuse my spelling Gammer knife not hammer knife did not have my specs on and got a head ach so please forgive me .

            scooby123❤️

              • April 4, 2016 at 7:33 pm
              ed williams
              Participant

                Gammer knife sounds kind of good!!!! Welcome to the Gammer knife club scooby123, hope your scans come by clear!!! Ed

                • April 4, 2016 at 7:33 pm
                ed williams
                Participant

                  Gammer knife sounds kind of good!!!! Welcome to the Gammer knife club scooby123, hope your scans come by clear!!! Ed

                  • April 4, 2016 at 8:33 pm
                  Scooby123
                  Participant

                    Thanks ED, hope you well

                    scooby123❤️

                    • April 4, 2016 at 8:33 pm
                    Scooby123
                    Participant

                      Thanks ED, hope you well

                      scooby123❤️

                      • April 4, 2016 at 11:10 pm
                      ed williams
                      Participant

                        scans come back clear!!!!

                        • April 4, 2016 at 11:10 pm
                        ed williams
                        Participant

                          scans come back clear!!!!

                          • April 5, 2016 at 6:33 am
                          Scooby123
                          Participant

                            So pleased for you ED

                            scooby123❤️

                            • April 5, 2016 at 6:33 am
                            Scooby123
                            Participant

                              So pleased for you ED

                              scooby123❤️

                              • April 5, 2016 at 12:37 pm
                              ed williams
                              Participant

                                Sorry Scooby123, I was correcting what I had written above, I meant to say that I hope your scan comes back clear and I had written hope your scans come by clear. I think my cyberknife treatment has had similiar effect on my spelling as it has on your( Hammer knife). Best wishes!!!! Ed

                                • April 5, 2016 at 12:37 pm
                                ed williams
                                Participant

                                  Sorry Scooby123, I was correcting what I had written above, I meant to say that I hope your scan comes back clear and I had written hope your scans come by clear. I think my cyberknife treatment has had similiar effect on my spelling as it has on your( Hammer knife). Best wishes!!!! Ed

                                  • April 6, 2016 at 4:34 pm
                                  Scooby123
                                  Participant

                                    Hi ED,

                                    lol that's what brain mets do too us .

                                    scooby123❤️

                                    • April 6, 2016 at 4:34 pm
                                    Scooby123
                                    Participant

                                      Hi ED,

                                      lol that's what brain mets do too us .

                                      scooby123❤️

                                      • April 6, 2016 at 4:34 pm
                                      Scooby123
                                      Participant

                                        Hi ED,

                                        lol that's what brain mets do too us .

                                        scooby123❤️

                                        • April 5, 2016 at 12:37 pm
                                        ed williams
                                        Participant

                                          Sorry Scooby123, I was correcting what I had written above, I meant to say that I hope your scan comes back clear and I had written hope your scans come by clear. I think my cyberknife treatment has had similiar effect on my spelling as it has on your( Hammer knife). Best wishes!!!! Ed

                                          • April 5, 2016 at 6:33 am
                                          Scooby123
                                          Participant

                                            So pleased for you ED

                                            scooby123❤️

                                            • April 4, 2016 at 11:10 pm
                                            ed williams
                                            Participant

                                              scans come back clear!!!!

                                              • April 4, 2016 at 8:33 pm
                                              Scooby123
                                              Participant

                                                Thanks ED, hope you well

                                                scooby123❤️

                                                • April 4, 2016 at 7:33 pm
                                                ed williams
                                                Participant

                                                  Gammer knife sounds kind of good!!!! Welcome to the Gammer knife club scooby123, hope your scans come by clear!!! Ed

                                                • April 4, 2016 at 6:16 pm
                                                Scooby123
                                                Participant

                                                  Please excuse my spelling Gammer knife not hammer knife did not have my specs on and got a head ach so please forgive me .

                                                  scooby123❤️

                                                  • April 4, 2016 at 11:16 pm
                                                  DZnDef
                                                  Participant

                                                    Congratulations on getting this gamma knife business behind you!  I hope your next scans are completely clear.  Meanwhile, I hope the steroids don't keep you awake at night.

                                                    Quick uncomplicated recover to you!

                                                    Maggie

                                                    • April 4, 2016 at 11:16 pm
                                                    DZnDef
                                                    Participant

                                                      Congratulations on getting this gamma knife business behind you!  I hope your next scans are completely clear.  Meanwhile, I hope the steroids don't keep you awake at night.

                                                      Quick uncomplicated recover to you!

                                                      Maggie

                                                        • April 5, 2016 at 6:36 am
                                                        Scooby123
                                                        Participant

                                                          Thank you Maggie, have not had much sleep with steroids plus all the worrying. Only 2 more steroids today so might sleep tonight.

                                                          take care

                                                          Scoby123❤️

                                                          • April 5, 2016 at 6:36 am
                                                          Scooby123
                                                          Participant

                                                            Thank you Maggie, have not had much sleep with steroids plus all the worrying. Only 2 more steroids today so might sleep tonight.

                                                            take care

                                                            Scoby123❤️

                                                            • April 5, 2016 at 6:36 am
                                                            Scooby123
                                                            Participant

                                                              Thank you Maggie, have not had much sleep with steroids plus all the worrying. Only 2 more steroids today so might sleep tonight.

                                                              take care

                                                              Scoby123❤️

                                                            • April 4, 2016 at 11:16 pm
                                                            DZnDef
                                                            Participant

                                                              Congratulations on getting this gamma knife business behind you!  I hope your next scans are completely clear.  Meanwhile, I hope the steroids don't keep you awake at night.

                                                              Quick uncomplicated recover to you!

                                                              Maggie

                                                              • April 4, 2016 at 11:45 pm
                                                              Maria C
                                                              Participant

                                                                So glad all went well for you today, and no more mets were found! That's excellent news.

                                                                Sleep well tonight!

                                                                 

                                                                • April 4, 2016 at 11:45 pm
                                                                Maria C
                                                                Participant

                                                                  So glad all went well for you today, and no more mets were found! That's excellent news.

                                                                  Sleep well tonight!

                                                                   

                                                                    • April 5, 2016 at 6:37 am
                                                                    Scooby123
                                                                    Participant

                                                                      Thank you Maria , so glad no other mets was found.

                                                                      take care

                                                                      scooby123❤️

                                                                      • April 5, 2016 at 6:37 am
                                                                      Scooby123
                                                                      Participant

                                                                        Thank you Maria , so glad no other mets was found.

                                                                        take care

                                                                        scooby123❤️

                                                                        • April 5, 2016 at 6:37 am
                                                                        Scooby123
                                                                        Participant

                                                                          Thank you Maria , so glad no other mets was found.

                                                                          take care

                                                                          scooby123❤️

                                                                        • April 4, 2016 at 11:45 pm
                                                                        Maria C
                                                                        Participant

                                                                          So glad all went well for you today, and no more mets were found! That's excellent news.

                                                                          Sleep well tonight!

                                                                           

                                                                          • April 5, 2016 at 1:12 pm
                                                                          AllysonRuth
                                                                          Participant

                                                                            So glad all went well.  When they were putting the head frame on me I felt like an alien.  I struggled with speaking for a few days, I stuttered really badly, but then all came back in about a week.   Also, my scalp went numb for about a month and some parts still are numb, 6 months out.  They told me it was a rare side effect, hopefully you don't have it too!  It feels so weird to brush my hair.  

                                                                            I am thrilled they didn't find another tumor.  In my follow up MRI my two tumors had shrunk almost completely.  It works!

                                                                            Allyson

                                                                            • April 5, 2016 at 1:12 pm
                                                                            AllysonRuth
                                                                            Participant

                                                                              So glad all went well.  When they were putting the head frame on me I felt like an alien.  I struggled with speaking for a few days, I stuttered really badly, but then all came back in about a week.   Also, my scalp went numb for about a month and some parts still are numb, 6 months out.  They told me it was a rare side effect, hopefully you don't have it too!  It feels so weird to brush my hair.  

                                                                              I am thrilled they didn't find another tumor.  In my follow up MRI my two tumors had shrunk almost completely.  It works!

                                                                              Allyson

                                                                                • April 6, 2016 at 4:33 pm
                                                                                Scooby123
                                                                                Participant

                                                                                  Thanks Allyson for message, how big was your tumours on brain and the head frame was very uncomfortable. My head is sore at moment and headaches. 

                                                                                  Having a rest off work now and hoping to get away on holiday with my daughter she is going to UNI in September so moving out and I wanted us to have a holiday before she goes.

                                                                                  keep us posted how you are, take care 

                                                                                  scooby123❤️

                                                                                   

                                                                                   

                                                                                   

                                                                                   

                                                                                   

                                                                                  • April 6, 2016 at 4:33 pm
                                                                                  Scooby123
                                                                                  Participant

                                                                                    Thanks Allyson for message, how big was your tumours on brain and the head frame was very uncomfortable. My head is sore at moment and headaches. 

                                                                                    Having a rest off work now and hoping to get away on holiday with my daughter she is going to UNI in September so moving out and I wanted us to have a holiday before she goes.

                                                                                    keep us posted how you are, take care 

                                                                                    scooby123❤️

                                                                                     

                                                                                     

                                                                                     

                                                                                     

                                                                                     

                                                                                    • April 6, 2016 at 4:33 pm
                                                                                    Scooby123
                                                                                    Participant

                                                                                      Thanks Allyson for message, how big was your tumours on brain and the head frame was very uncomfortable. My head is sore at moment and headaches. 

                                                                                      Having a rest off work now and hoping to get away on holiday with my daughter she is going to UNI in September so moving out and I wanted us to have a holiday before she goes.

                                                                                      keep us posted how you are, take care 

                                                                                      scooby123❤️

                                                                                       

                                                                                       

                                                                                       

                                                                                       

                                                                                       

                                                                                    • April 5, 2016 at 1:12 pm
                                                                                    AllysonRuth
                                                                                    Participant

                                                                                      So glad all went well.  When they were putting the head frame on me I felt like an alien.  I struggled with speaking for a few days, I stuttered really badly, but then all came back in about a week.   Also, my scalp went numb for about a month and some parts still are numb, 6 months out.  They told me it was a rare side effect, hopefully you don't have it too!  It feels so weird to brush my hair.  

                                                                                      I am thrilled they didn't find another tumor.  In my follow up MRI my two tumors had shrunk almost completely.  It works!

                                                                                      Allyson

                                                                                      • April 6, 2016 at 2:38 pm
                                                                                      Bubbles
                                                                                      Participant

                                                                                        Hey Scooby,

                                                                                        So glad that that part of your process is DONE!!!!  You are a trooper. Rest up and recover.  I wish you well.  c

                                                                                        • April 6, 2016 at 2:38 pm
                                                                                        Bubbles
                                                                                        Participant

                                                                                          Hey Scooby,

                                                                                          So glad that that part of your process is DONE!!!!  You are a trooper. Rest up and recover.  I wish you well.  c

                                                                                          • April 6, 2016 at 2:38 pm
                                                                                          Bubbles
                                                                                          Participant

                                                                                            Hey Scooby,

                                                                                            So glad that that part of your process is DONE!!!!  You are a trooper. Rest up and recover.  I wish you well.  c

                                                                                              • April 6, 2016 at 4:24 pm
                                                                                              Scooby123
                                                                                              Participant

                                                                                                Hi bubbles,

                                                                                                i am doing ok bit sore and resting. Did speak to another consultant regarding immunatherapy after SRS . He said due to this is my only progression and it's been treated then save keydruda for when I need it. 

                                                                                                Plus I asked about a maintenance dose of ippi and pay private he said just watch wait has if I have a maintenance dose then I will not get the combo has I would have had too much ippi if that makes sense . So it looks like a lot of praying that all turns out well on when I have scans which will not be till 3 months .

                                                                                                thanks for message take care hun

                                                                                                scooby123❤️

                                                                                                • April 6, 2016 at 4:24 pm
                                                                                                Scooby123
                                                                                                Participant

                                                                                                  Hi bubbles,

                                                                                                  i am doing ok bit sore and resting. Did speak to another consultant regarding immunatherapy after SRS . He said due to this is my only progression and it's been treated then save keydruda for when I need it. 

                                                                                                  Plus I asked about a maintenance dose of ippi and pay private he said just watch wait has if I have a maintenance dose then I will not get the combo has I would have had too much ippi if that makes sense . So it looks like a lot of praying that all turns out well on when I have scans which will not be till 3 months .

                                                                                                  thanks for message take care hun

                                                                                                  scooby123❤️

                                                                                                  • April 6, 2016 at 4:24 pm
                                                                                                  Scooby123
                                                                                                  Participant

                                                                                                    Hi bubbles,

                                                                                                    i am doing ok bit sore and resting. Did speak to another consultant regarding immunatherapy after SRS . He said due to this is my only progression and it's been treated then save keydruda for when I need it. 

                                                                                                    Plus I asked about a maintenance dose of ippi and pay private he said just watch wait has if I have a maintenance dose then I will not get the combo has I would have had too much ippi if that makes sense . So it looks like a lot of praying that all turns out well on when I have scans which will not be till 3 months .

                                                                                                    thanks for message take care hun

                                                                                                    scooby123❤️

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