MRF-Logo2019-Horizontal-RGB
HELP – Yervoy didn’t work. What are the options??
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

HELP – Yervoy didn’t work. What are the options??

› Forums › General Melanoma Community › HELP – Yervoy didn’t work. What are the options??

  • Post
    • July 19, 2012 at 3:07 pm
    jmbaer
    Participant

      My dad started in July 2011 with a retinal detachment.

      – Opthomologist found a tumor causing the detachment.

      -Sent to Wills for radio therapy.

      -Lung Met found and resected Sept 11.

      -Lung met reappeared and resected again. Oct 11

      -Jan 12, started to have some weakness on left side.. went for a mri and pt scan. and found a brain met.

      -Did cyber knife to the brain met.

      -A couple more spots showed up in his body. One larger one on his adrenal gland.

      -Started Yervoy in March 2012.

      My dad started in July 2011 with a retinal detachment.

      – Opthomologist found a tumor causing the detachment.

      -Sent to Wills for radio therapy.

      -Lung Met found and resected Sept 11.

      -Lung met reappeared and resected again. Oct 11

      -Jan 12, started to have some weakness on left side.. went for a mri and pt scan. and found a brain met.

      -Did cyber knife to the brain met.

      -A couple more spots showed up in his body. One larger one on his adrenal gland.

      -Started Yervoy in March 2012.

      -July 1 had gamma knife for new spots in brain.

      -Had a Pt scan last week July 10th 2012  that showed a few more spots and the adrenal gland spot got larger and dr feels the yervoy didn't work.

      WHAT ARE THE OPTIONS??

      Dad is 70yrs old and strong.

       

    Viewing 8 reply threads
    • Replies
        • July 19, 2012 at 5:55 pm
        aldakota22
        Participant

          If he tested BRAF positive he may be able to take Zelboraf.It works for many very quickly. Will keep  him in my prayers. Beat the Beast … Al

          • July 19, 2012 at 5:55 pm
          aldakota22
          Participant

            If he tested BRAF positive he may be able to take Zelboraf.It works for many very quickly. Will keep  him in my prayers. Beat the Beast … Al

              • July 19, 2012 at 5:59 pm
              jmbaer
              Participant

                Thanks Al. He is BRAF NEGATIVE.. 

                What are people hearing about temozolomide?

                • July 19, 2012 at 5:59 pm
                jmbaer
                Participant

                  Thanks Al. He is BRAF NEGATIVE.. 

                  What are people hearing about temozolomide?

                  • July 19, 2012 at 5:59 pm
                  jmbaer
                  Participant

                    Thanks Al. He is BRAF NEGATIVE.. 

                    What are people hearing about temozolomide?

                  • July 19, 2012 at 5:55 pm
                  aldakota22
                  Participant

                    If he tested BRAF positive he may be able to take Zelboraf.It works for many very quickly. Will keep  him in my prayers. Beat the Beast … Al

                    • July 20, 2012 at 1:49 am
                    audgator
                    Participant

                      I'm stage IV & BRAF neg also. After surgery, radiation, & interferon, Yervoy did not clear me either. I am now in an anti-PD-1 trial at Moffitt & my mid-trial scans showed an overall reduction in the mass of my various mets of about 75%. I am not sure how brain mets affects trial eligibility.    Dan

                      • July 20, 2012 at 1:49 am
                      audgator
                      Participant

                        I'm stage IV & BRAF neg also. After surgery, radiation, & interferon, Yervoy did not clear me either. I am now in an anti-PD-1 trial at Moffitt & my mid-trial scans showed an overall reduction in the mass of my various mets of about 75%. I am not sure how brain mets affects trial eligibility.    Dan

                        • July 20, 2012 at 1:49 am
                        audgator
                        Participant

                          I'm stage IV & BRAF neg also. After surgery, radiation, & interferon, Yervoy did not clear me either. I am now in an anti-PD-1 trial at Moffitt & my mid-trial scans showed an overall reduction in the mass of my various mets of about 75%. I am not sure how brain mets affects trial eligibility.    Dan

                          • July 22, 2012 at 2:06 am
                          Gene_S
                          Participant

                            Not an endorsement but worth considering!

                            http://www.youtube.com/watch?v=z5kU6W9vj50&feature=related

                            • July 22, 2012 at 2:06 am
                            Gene_S
                            Participant

                              Not an endorsement but worth considering!

                              http://www.youtube.com/watch?v=z5kU6W9vj50&feature=related

                              • July 22, 2012 at 2:06 am
                              Gene_S
                              Participant

                                Not an endorsement but worth considering!

                                http://www.youtube.com/watch?v=z5kU6W9vj50&feature=related

                            Viewing 8 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics