How does bone met pain feel?
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

How does bone met pain feel?

› Forums › General Melanoma Community › How does bone met pain feel?

  • Post
    • March 29, 2015 at 11:23 am
    Jubes
    Participant

      Hi all

      just wondering what kind of pain bone met pain feels like. I have lung and chest Mets and for weeks now have a sharp pain in my back when I breathe deeply ( and pain most of the time there. It's more like the shoulder blade area) not unbearable but so it hurts to turn over in bed. I mentioned it at my last one appt but it was a new dr and he said it was probably just muscle pain. I have had it now for at least 6 weeks and won't see the dr till may. So just panicking a bit. Could it be muscle soreness from the pembrolizumab I am  on?

      btw really enjoying all the posts from Brian and Ed etc:)

      tks anne-Louise 

    Viewing 8 reply threads
    • Replies
        • March 29, 2015 at 2:33 pm
        arthurjedi007
        Participant

          It depends. I have over 30 tumors in my bones many of which have spread to soft tissue. Sometimes they can hurt a lot and sometimes not much. In the beginning I was misdiagnosed for 9 months when the docs thought it was muscle issues. The 2nd and 3rd month of that was massive back pain beyond anything to where it would ease off some. The other 6 months the pain got way less.

          Now days a few hurt with like a dull pain. I have had sharp pains where I would swear a new tumor was showing up or getting bigger only to find in the next regular scan there was nothing or a lessening in that spot. For example I had a quarter size spot on my ribs have lots of off and on sharp pain. So much so if I touched it would take my breath away it was so intense. The next scan showed all the tumors in those ribs were shrinking. I've also had the opposite where no pain only to find in the next scan a new tumor. So it is very crazy.

          So without a scan it is really difficult to say. Fortunately pembro activated tccells goes everywhere to heal us when it is working.

          Artie

            • March 29, 2015 at 2:42 pm
            tschmith
            Participant

              I had a soft tissue mass near my left shouder blade which caused pain.  It actually extended from my chest wall.  It still hurts a tiny bit but after 13 infusions of Pembro, it is mostly resolved.

              Best wishes to you!

              Terrie

              • March 29, 2015 at 2:42 pm
              tschmith
              Participant

                I had a soft tissue mass near my left shouder blade which caused pain.  It actually extended from my chest wall.  It still hurts a tiny bit but after 13 infusions of Pembro, it is mostly resolved.

                Best wishes to you!

                Terrie

                • March 29, 2015 at 2:42 pm
                tschmith
                Participant

                  I had a soft tissue mass near my left shouder blade which caused pain.  It actually extended from my chest wall.  It still hurts a tiny bit but after 13 infusions of Pembro, it is mostly resolved.

                  Best wishes to you!

                  Terrie

                  • December 29, 2016 at 4:32 am
                  tag4128
                  Participant
                    Hey Artiest,

                    Thanks for posting this. I hope you are doing alright. I was diagnosed with psoriatic arthritis last August. 2 weeks ago had a tumor removed from my pectoral that was attached to a rib. Waiting on path report now. Had 2 melanomas back in 2004 and in 2011.

                    Your pain descriptions are similar to my experiences.

                    Thanks for your post.

                    Tamara

                    • December 29, 2016 at 4:32 am
                    tag4128
                    Participant
                      Hey Artiest,

                      Thanks for posting this. I hope you are doing alright. I was diagnosed with psoriatic arthritis last August. 2 weeks ago had a tumor removed from my pectoral that was attached to a rib. Waiting on path report now. Had 2 melanomas back in 2004 and in 2011.

                      Your pain descriptions are similar to my experiences.

                      Thanks for your post.

                      Tamara

                      • December 29, 2016 at 4:32 am
                      tag4128
                      Participant
                        Hey Artiest,

                        Thanks for posting this. I hope you are doing alright. I was diagnosed with psoriatic arthritis last August. 2 weeks ago had a tumor removed from my pectoral that was attached to a rib. Waiting on path report now. Had 2 melanomas back in 2004 and in 2011.

                        Your pain descriptions are similar to my experiences.

                        Thanks for your post.

                        Tamara

                      • March 29, 2015 at 2:33 pm
                      arthurjedi007
                      Participant

                        It depends. I have over 30 tumors in my bones many of which have spread to soft tissue. Sometimes they can hurt a lot and sometimes not much. In the beginning I was misdiagnosed for 9 months when the docs thought it was muscle issues. The 2nd and 3rd month of that was massive back pain beyond anything to where it would ease off some. The other 6 months the pain got way less.

                        Now days a few hurt with like a dull pain. I have had sharp pains where I would swear a new tumor was showing up or getting bigger only to find in the next regular scan there was nothing or a lessening in that spot. For example I had a quarter size spot on my ribs have lots of off and on sharp pain. So much so if I touched it would take my breath away it was so intense. The next scan showed all the tumors in those ribs were shrinking. I've also had the opposite where no pain only to find in the next scan a new tumor. So it is very crazy.

                        So without a scan it is really difficult to say. Fortunately pembro activated tccells goes everywhere to heal us when it is working.

                        Artie

                        • March 29, 2015 at 2:33 pm
                        arthurjedi007
                        Participant

                          It depends. I have over 30 tumors in my bones many of which have spread to soft tissue. Sometimes they can hurt a lot and sometimes not much. In the beginning I was misdiagnosed for 9 months when the docs thought it was muscle issues. The 2nd and 3rd month of that was massive back pain beyond anything to where it would ease off some. The other 6 months the pain got way less.

                          Now days a few hurt with like a dull pain. I have had sharp pains where I would swear a new tumor was showing up or getting bigger only to find in the next regular scan there was nothing or a lessening in that spot. For example I had a quarter size spot on my ribs have lots of off and on sharp pain. So much so if I touched it would take my breath away it was so intense. The next scan showed all the tumors in those ribs were shrinking. I've also had the opposite where no pain only to find in the next scan a new tumor. So it is very crazy.

                          So without a scan it is really difficult to say. Fortunately pembro activated tccells goes everywhere to heal us when it is working.

                          Artie

                          • March 29, 2015 at 9:54 pm
                          Jubes
                          Participant

                            Thanks so much to both of you! Since I have been on pembrolizumab since last September I am hoping it is just sore muscles as it is getting more not less. Anyway I don't think they would change my treatment even if it is new Mets. My next scan is April 30, so I will hold my breath until then 🙂

                            • March 29, 2015 at 9:54 pm
                            Jubes
                            Participant

                              Thanks so much to both of you! Since I have been on pembrolizumab since last September I am hoping it is just sore muscles as it is getting more not less. Anyway I don't think they would change my treatment even if it is new Mets. My next scan is April 30, so I will hold my breath until then 🙂

                              • March 29, 2015 at 9:54 pm
                              Jubes
                              Participant

                                Thanks so much to both of you! Since I have been on pembrolizumab since last September I am hoping it is just sore muscles as it is getting more not less. Anyway I don't think they would change my treatment even if it is new Mets. My next scan is April 30, so I will hold my breath until then 🙂

                                • March 30, 2015 at 12:03 am
                                _Paul_
                                Participant

                                  I know how you feel Anne Louise. Maybe not the exactly the same, but I know whenever a new pain shows up I am always thinking is this just an age relating thing or is it a cancer related thing. My last scan showed a new tumor on my shoulder blade and I am kind of waiting for it to start hurting.

                                  I do know that when I was on ipi and got a constant headache due to hypophsyitis, it took a while (several weeks) before my oncologist reacted to it. My headache kept increasing in intensity so that I went from one ibuprofen a day to 4, then finally getting a prescription for oxycodone (which seems to be the standard pain killer for melanoma patients) and needing half an oxycodone and an ibuprofen every 4 hours to get relief from it.

                                  It wasn't until I started exhibiting additional endocrine issues that he took it seriously. It turned out that re-examination of a brain MRI I had the month before revealed my pituitary had grown from 4mm to 9mm.

                                  So my point is that I think when you have a pain that isn't going away that you keep reminding your doctor of it. I know they have a tough job sorting the cancer-related issues from the non-cancer related ones, but if you have a tumor that can be resected now before it gets debilitating why not find out?

                                    • March 31, 2015 at 6:28 pm
                                    Jubes
                                    Participant

                                      Thanks so much. The problem is that I am away in Europe for a month so I am wondering whether to cut short and go home. However thanks to your answers I will only do that if it gets really bad 🙂

                                      • March 31, 2015 at 6:28 pm
                                      Jubes
                                      Participant

                                        Thanks so much. The problem is that I am away in Europe for a month so I am wondering whether to cut short and go home. However thanks to your answers I will only do that if it gets really bad 🙂

                                        • March 31, 2015 at 6:28 pm
                                        Jubes
                                        Participant

                                          Thanks so much. The problem is that I am away in Europe for a month so I am wondering whether to cut short and go home. However thanks to your answers I will only do that if it gets really bad 🙂

                                        • March 30, 2015 at 12:03 am
                                        _Paul_
                                        Participant

                                          I know how you feel Anne Louise. Maybe not the exactly the same, but I know whenever a new pain shows up I am always thinking is this just an age relating thing or is it a cancer related thing. My last scan showed a new tumor on my shoulder blade and I am kind of waiting for it to start hurting.

                                          I do know that when I was on ipi and got a constant headache due to hypophsyitis, it took a while (several weeks) before my oncologist reacted to it. My headache kept increasing in intensity so that I went from one ibuprofen a day to 4, then finally getting a prescription for oxycodone (which seems to be the standard pain killer for melanoma patients) and needing half an oxycodone and an ibuprofen every 4 hours to get relief from it.

                                          It wasn't until I started exhibiting additional endocrine issues that he took it seriously. It turned out that re-examination of a brain MRI I had the month before revealed my pituitary had grown from 4mm to 9mm.

                                          So my point is that I think when you have a pain that isn't going away that you keep reminding your doctor of it. I know they have a tough job sorting the cancer-related issues from the non-cancer related ones, but if you have a tumor that can be resected now before it gets debilitating why not find out?

                                          • March 30, 2015 at 12:03 am
                                          _Paul_
                                          Participant

                                            I know how you feel Anne Louise. Maybe not the exactly the same, but I know whenever a new pain shows up I am always thinking is this just an age relating thing or is it a cancer related thing. My last scan showed a new tumor on my shoulder blade and I am kind of waiting for it to start hurting.

                                            I do know that when I was on ipi and got a constant headache due to hypophsyitis, it took a while (several weeks) before my oncologist reacted to it. My headache kept increasing in intensity so that I went from one ibuprofen a day to 4, then finally getting a prescription for oxycodone (which seems to be the standard pain killer for melanoma patients) and needing half an oxycodone and an ibuprofen every 4 hours to get relief from it.

                                            It wasn't until I started exhibiting additional endocrine issues that he took it seriously. It turned out that re-examination of a brain MRI I had the month before revealed my pituitary had grown from 4mm to 9mm.

                                            So my point is that I think when you have a pain that isn't going away that you keep reminding your doctor of it. I know they have a tough job sorting the cancer-related issues from the non-cancer related ones, but if you have a tumor that can be resected now before it gets debilitating why not find out?

                                        Viewing 8 reply threads
                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.