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How long did it take for Ipilimumab/Yervoy to start working for you? What side effects?
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How long did it take for Ipilimumab/Yervoy to start working for you? What side effects?

› Forums › General Melanoma Community › How long did it take for Ipilimumab/Yervoy to start working for you? What side effects?

  • Post
    • June 29, 2014 at 9:39 pm
    O_O
    Participant

      I've been on an Ipi 3mg/kg trial for three weeks now (for stage III, post-surgery adjuvant), but so far I've not felt any different. How long did it take for you? What side effects did you get?

      I heard getting white hairs is a good sign so I'm hoping to see those… especially since I've no measurable tumors so there's no other way to know if it's working.

    Viewing 5 reply threads
    • Replies
        • June 30, 2014 at 5:16 pm
        Julie in SoCal
        Participant

          Hi Friend,

          Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

          I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

          Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

          Blessings,

          Julie 

          Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

          • June 30, 2014 at 5:16 pm
          Julie in SoCal
          Participant

            Hi Friend,

            Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

            I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

            Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

            Blessings,

            Julie 

            Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

            • June 30, 2014 at 5:16 pm
            Julie in SoCal
            Participant

              Hi Friend,

              Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

              I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

              Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

              Blessings,

              Julie 

              Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

              • June 30, 2014 at 5:16 pm
              Julie in SoCal
              Participant

                Hi Friend,

                Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

                I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

                Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

                Blessings,

                Julie 

                Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

                • June 30, 2014 at 5:16 pm
                Julie in SoCal
                Participant

                  Hi Friend,

                  Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

                  I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

                  Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

                  Blessings,

                  Julie 

                  Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

                    • June 30, 2014 at 6:10 pm
                    O_O
                    Participant

                      Wow ok, congrats! 

                      • June 30, 2014 at 6:10 pm
                      O_O
                      Participant

                        Wow ok, congrats! 

                        • June 30, 2014 at 6:10 pm
                        O_O
                        Participant

                          Wow ok, congrats! 

                          • July 1, 2014 at 1:45 pm
                          Ginger8888
                          Participant

                            I'm doing my second treatment Thursday and was curiouse also..So far no side effects for me either..Good luck ..Let's hope this kicks melanoma butt!!

                            • July 1, 2014 at 8:36 pm
                            adriana cooper
                            Participant

                              I just started on IPI this past Thursday so only 6 days out and already have had reactions to it. I am stage 4 with lung mets. I started with itching while getting IPI then the next day the joint pain, nausea, vomiting and headaches started. I have trouble walking now.  I have also had 5 high doses of radiation to the recurrence on my arm just prior so apparently my immune system is in high gear. Everyone is different I just get to be the lucky one and get it all at once​.indecision  

                              Good​ luck with your treatments. I am hoping that in three months with all these fun side effects my cancer will be gone. smiley

                               

                              • July 1, 2014 at 8:36 pm
                              adriana cooper
                              Participant

                                I just started on IPI this past Thursday so only 6 days out and already have had reactions to it. I am stage 4 with lung mets. I started with itching while getting IPI then the next day the joint pain, nausea, vomiting and headaches started. I have trouble walking now.  I have also had 5 high doses of radiation to the recurrence on my arm just prior so apparently my immune system is in high gear. Everyone is different I just get to be the lucky one and get it all at once​.indecision  

                                Good​ luck with your treatments. I am hoping that in three months with all these fun side effects my cancer will be gone. smiley

                                 

                                • July 1, 2014 at 8:36 pm
                                adriana cooper
                                Participant

                                  I just started on IPI this past Thursday so only 6 days out and already have had reactions to it. I am stage 4 with lung mets. I started with itching while getting IPI then the next day the joint pain, nausea, vomiting and headaches started. I have trouble walking now.  I have also had 5 high doses of radiation to the recurrence on my arm just prior so apparently my immune system is in high gear. Everyone is different I just get to be the lucky one and get it all at once​.indecision  

                                  Good​ luck with your treatments. I am hoping that in three months with all these fun side effects my cancer will be gone. smiley

                                   

                                  • July 1, 2014 at 1:45 pm
                                  Ginger8888
                                  Participant

                                    I'm doing my second treatment Thursday and was curiouse also..So far no side effects for me either..Good luck ..Let's hope this kicks melanoma butt!!

                                    • July 1, 2014 at 1:45 pm
                                    Ginger8888
                                    Participant

                                      I'm doing my second treatment Thursday and was curiouse also..So far no side effects for me either..Good luck ..Let's hope this kicks melanoma butt!!

                                    • June 30, 2014 at 5:16 pm
                                    Julie in SoCal
                                    Participant

                                      Hi Friend,

                                      Ipi can take a little while to kick in, as it sets your immune system to attack melanoma.  

                                      I had 4 bags of ipi earlier this year and I didn't have any significant side effects until afer the 3rd bag. I was always tired after the treatment, but could sleep it off mostly.  But after the 3rd bag I had a killer headache, and a strange rash and aches and pains in my joints. And of course the most important effect:  all my in transit mets melted away! Oh Happy Day!

                                      Now I'm a few months out and I feel good!  Keep talking to your Onc about what's going on with you and you'll get through this too.

                                      Blessings,

                                      Julie 

                                      Stage 3c: 10+ WLE, 2 SNB, HDINF, GM-CSF, IPI = NED!!

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