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Husband is on IL-2 bag #5 – Doing Well !
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Husband is on IL-2 bag #5 – Doing Well !

› Forums › General Melanoma Community › Husband is on IL-2 bag #5 – Doing Well !

  • Post
    • May 10, 2012 at 3:27 pm
    CherylL
    Participant

      Hey Friends—

      Have been very derelict in visiting the board, but just wanted to jump and and share that my husband Scott, now freshly Stage IV, has just had bag #5 of high-dose IL-2 administered here at UVA under the amazing guidance of Dr. Grosh. 

      Hey Friends—

      Have been very derelict in visiting the board, but just wanted to jump and and share that my husband Scott, now freshly Stage IV, has just had bag #5 of high-dose IL-2 administered here at UVA under the amazing guidance of Dr. Grosh. 

      While his side effects are palpable (intense flu-like malaise, violent rigors/shivers, blood pressure drops, bloating, etc.) at this point, the timings are predictable, and the incredible crew here (amazing nurses, think EVERY week should be Nurse Appreciation Week!) are making this as pleasant an experience as possible. 🙂

      We are highly optimistic my man will be one of the "total, durable, life-long responders!" 

      Along with my husband's unflagging sense of humor, we are finding a valuable supplement to the traditional medical intervention is the shared success stories of others.

      If you are—or know of— a long-term Stage IV survivor following IL-2 treatment, would you take a moment and share your good news so I can relay to my husband (and our now 10-year-old twins—they were 4 at Daddy's original diagnosis)?

      We do know stats and don't for a single minute live our lives or predict our family's outcome based upon them, so if you don't mind, please keep things positive!  🙂

      Many thanks, and KEEP FIGHTING, Friends!
       

      Cheryl
      Wife of Melanoma Masher, Scott, now Stage IV, with small "incompetent" mets in lungs

      *Diagnosed Stage IIa in October 2005 (WLE/SNB – no nodes), Stage IIIc in October 2009 (radical neck dissection, multiple affected nodes), January 2010, supraclavical recurrence and resection, still Stage IIIc. June 2010, targeted radiation. August 2010, Clinical trial at NCI/NIH under Steven Rosenberg. March 2012, surgical biopsy at NIH reveals long-observed and stable nodes in lungs "changing" and verified melanoma. Stage IV, and ready to pull out the big guns! 

       

       

       

       

       

    Viewing 5 reply threads
    • Replies
        • May 10, 2012 at 5:44 pm
        susanr
        Participant

          Cheryl,

          My thoughts are with you any your family.  tell your husband if he can take 5 bags…..bring more on !!!!!!  He can take it.

          My brother just went Stage IV in 2/2012.  He may do IL also when stronger but on Temodor and Abraxane now.  I have spoken to many Stage IV troopers and they all had a response.  Some were long term….a few yrs. and some were about a year.  I will try to go back and look at my emails and make another re-post to you.  Be strong !!!!!!!!!

          SusanR  NY

            • May 10, 2012 at 6:03 pm
            CherylL
            Participant

              Thank you so much, Susan! 

              I will definitely keep your brother (and YOU!) in thoughts and prayers. Strength and healing to him, and peace to you. SQUASH that melanoma!

               

              • May 10, 2012 at 6:03 pm
              CherylL
              Participant

                Thank you so much, Susan! 

                I will definitely keep your brother (and YOU!) in thoughts and prayers. Strength and healing to him, and peace to you. SQUASH that melanoma!

                 

                • May 10, 2012 at 6:03 pm
                CherylL
                Participant

                  Thank you so much, Susan! 

                  I will definitely keep your brother (and YOU!) in thoughts and prayers. Strength and healing to him, and peace to you. SQUASH that melanoma!

                   

                  • May 10, 2012 at 6:04 pm
                  CherylL
                  Participant

                    Thank you so much, Susan! 

                    I will definitely keep your brother (and YOU!) in thoughts and prayers. Strength and healing to him, and peace to you. SQUASH that melanoma!

                    • May 10, 2012 at 6:04 pm
                    CherylL
                    Participant

                      Thank you so much, Susan! 

                      I will definitely keep your brother (and YOU!) in thoughts and prayers. Strength and healing to him, and peace to you. SQUASH that melanoma!

                      • May 10, 2012 at 6:04 pm
                      CherylL
                      Participant

                        Thank you so much, Susan! 

                        I will definitely keep your brother (and YOU!) in thoughts and prayers. Strength and healing to him, and peace to you. SQUASH that melanoma!

                      • May 10, 2012 at 5:44 pm
                      susanr
                      Participant

                        Cheryl,

                        My thoughts are with you any your family.  tell your husband if he can take 5 bags…..bring more on !!!!!!  He can take it.

                        My brother just went Stage IV in 2/2012.  He may do IL also when stronger but on Temodor and Abraxane now.  I have spoken to many Stage IV troopers and they all had a response.  Some were long term….a few yrs. and some were about a year.  I will try to go back and look at my emails and make another re-post to you.  Be strong !!!!!!!!!

                        SusanR  NY

                        • May 10, 2012 at 5:44 pm
                        susanr
                        Participant

                          Cheryl,

                          My thoughts are with you any your family.  tell your husband if he can take 5 bags…..bring more on !!!!!!  He can take it.

                          My brother just went Stage IV in 2/2012.  He may do IL also when stronger but on Temodor and Abraxane now.  I have spoken to many Stage IV troopers and they all had a response.  Some were long term….a few yrs. and some were about a year.  I will try to go back and look at my emails and make another re-post to you.  Be strong !!!!!!!!!

                          SusanR  NY

                          • May 10, 2012 at 11:06 pm
                          Phil S
                          Participant
                            Cheryl, My husband is on his second bag of high dose IL2 right now, we are in Houston at MDAnderson. Not meaning to speak for others, but one huge success story on IL2 is DebbieVa. Look her up and read her caring bridge site, it’s inspiring! Go Scott!! Take care, Valerie (Phil’s wife)
                            • May 10, 2012 at 11:06 pm
                            Phil S
                            Participant
                              Cheryl, My husband is on his second bag of high dose IL2 right now, we are in Houston at MDAnderson. Not meaning to speak for others, but one huge success story on IL2 is DebbieVa. Look her up and read her caring bridge site, it’s inspiring! Go Scott!! Take care, Valerie (Phil’s wife)
                              • May 10, 2012 at 11:06 pm
                              Phil S
                              Participant
                                Cheryl, My husband is on his second bag of high dose IL2 right now, we are in Houston at MDAnderson. Not meaning to speak for others, but one huge success story on IL2 is DebbieVa. Look her up and read her caring bridge site, it’s inspiring! Go Scott!! Take care, Valerie (Phil’s wife)
                            Viewing 5 reply threads
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