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Hyperthermic Isolated Limb Perfusion
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Hyperthermic Isolated Limb Perfusion

› Forums › General Melanoma Community › Hyperthermic Isolated Limb Perfusion

  • Post
    • April 17, 2014 at 8:31 pm
    secondhalf
    Participant

      We are  in the early stages of planning Round 2 with Metastatic Melanoma Stage 3.  One option for treating the is isolated limb perfusion chemotherapy at Georgetown.  We turn to those of you that have blazed this trail – what are you thoughts on this treatment?  

      We are still waiting to see if this tumor is BRAF negative like the first one that was found in the axilla.  The 'new' tumor is in that same side and it grew quickly.

      We also have our Johns. Hopkins visit scheduled.

      Thanks in advance!

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    • Replies
        • April 18, 2014 at 9:41 pm
        SoCalDave
        Participant

          This was offered to me about 3 and 1/2 years ago when my melanoma kept coming back. They said I'd have to go to MD Anderson and that there was a possibility I could lose my leg. I said no thanks! I still have the occasional satellite show up so we just keep on slicing and dicing.

          Best of luck in whatever you decide. Wish I had more info for you. Hopefully someone will respond who has gone through it.

          Dave

           

          • April 18, 2014 at 9:41 pm
          SoCalDave
          Participant

            This was offered to me about 3 and 1/2 years ago when my melanoma kept coming back. They said I'd have to go to MD Anderson and that there was a possibility I could lose my leg. I said no thanks! I still have the occasional satellite show up so we just keep on slicing and dicing.

            Best of luck in whatever you decide. Wish I had more info for you. Hopefully someone will respond who has gone through it.

            Dave

             

              • April 19, 2014 at 6:21 pm
              secondhalf
              Participant

                Thanks for your reply.  Balancing the potential  side effects of treatment is stressful.  I am sure my husband wants to keep his arm and that is why he elected not to have a total lymph node resection when first diagnosed.  

                 

                • April 19, 2014 at 6:21 pm
                secondhalf
                Participant

                  Thanks for your reply.  Balancing the potential  side effects of treatment is stressful.  I am sure my husband wants to keep his arm and that is why he elected not to have a total lymph node resection when first diagnosed.  

                   

                  • April 19, 2014 at 6:21 pm
                  secondhalf
                  Participant

                    Thanks for your reply.  Balancing the potential  side effects of treatment is stressful.  I am sure my husband wants to keep his arm and that is why he elected not to have a total lymph node resection when first diagnosed.  

                     

                  • April 18, 2014 at 9:41 pm
                  SoCalDave
                  Participant

                    This was offered to me about 3 and 1/2 years ago when my melanoma kept coming back. They said I'd have to go to MD Anderson and that there was a possibility I could lose my leg. I said no thanks! I still have the occasional satellite show up so we just keep on slicing and dicing.

                    Best of luck in whatever you decide. Wish I had more info for you. Hopefully someone will respond who has gone through it.

                    Dave

                     

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