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I need advice from all you warrior
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I need advice from all you warrior

› Forums › General Melanoma Community › I need advice from all you warrior

  • Post
    • October 29, 2016 at 7:47 pm
    Jango
    Participant

      Hi all, I have posted a few times on this board about my father and every time you give the most wonderful information and support. My dad was hospitalized about three weeks ago due to extreme fatigue and lack of appetite. On a ct scan they saw a mass in the abdomen as well as several spots in the abdomen and one on the lungs. They are assuming it is melanoma, as he had stage 1 three years ago and was considered cured. I am quickly finding out what a sneaky bastard mm is. He was discharged from the hospital yesterday and is much better in terms of strength and vitality and appetite. Though he need s a walker. A month ago he was perfectly fit ! He still does not have a diagnosis as they did two unsuccessful biopsies and were only able to get a sample the other day. Now we wait. 

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    • Replies
        • October 29, 2016 at 9:17 pm
        debwray
        Participant

          Hi Jango,

          So sorry to hear this.

          Usual advice- try to get to a melanoma specialist- push for the  biopsy results asap- keep records of the scans and reports to make it easier to change doctors.. get samples BRAF tested as this changes treatment options.

           Great that he is feeling a bit better… not a lot you can do in the wait time other than to get a working idea of possible treatments so the discussion is easier to take in if melanoma is confirmed. and work out who are the experts in your state/ region.

          Best of luck to you and your Dad.

          Deb

           

          • October 29, 2016 at 9:17 pm
          debwray
          Participant

            Hi Jango,

            So sorry to hear this.

            Usual advice- try to get to a melanoma specialist- push for the  biopsy results asap- keep records of the scans and reports to make it easier to change doctors.. get samples BRAF tested as this changes treatment options.

             Great that he is feeling a bit better… not a lot you can do in the wait time other than to get a working idea of possible treatments so the discussion is easier to take in if melanoma is confirmed. and work out who are the experts in your state/ region.

            Best of luck to you and your Dad.

            Deb

             

              • October 29, 2016 at 9:22 pm
              Jango
              Participant

                Thanks Deb, I had to continue in another post as I wasn't finished with the questions I needed to ask ! No way to edit posts except to contact the administrator . Oops

                • October 29, 2016 at 9:22 pm
                Jango
                Participant

                  Thanks Deb, I had to continue in another post as I wasn't finished with the questions I needed to ask ! No way to edit posts except to contact the administrator . Oops

                  • October 29, 2016 at 9:22 pm
                  Jango
                  Participant

                    Thanks Deb, I had to continue in another post as I wasn't finished with the questions I needed to ask ! No way to edit posts except to contact the administrator . Oops

                  • October 29, 2016 at 9:17 pm
                  debwray
                  Participant

                    Hi Jango,

                    So sorry to hear this.

                    Usual advice- try to get to a melanoma specialist- push for the  biopsy results asap- keep records of the scans and reports to make it easier to change doctors.. get samples BRAF tested as this changes treatment options.

                     Great that he is feeling a bit better… not a lot you can do in the wait time other than to get a working idea of possible treatments so the discussion is easier to take in if melanoma is confirmed. and work out who are the experts in your state/ region.

                    Best of luck to you and your Dad.

                    Deb

                     

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