The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

IL2 survivors side effects

Forums General Melanoma Community IL2 survivors side effects

  • Post
    Draino
    Participant

      Have you taken IL2?  Do you have any lingering side effects over time?

      I had 54 doses of IL2 4 years ago and continue to have problems with hearing, memory and focus.

      Trying to determine if this due to IL2 or if there are other factors involved.  I do not believe it is related , but just want to check.  I am in my mid forties, so hopefully I am not aging to quickly 🙂

      I am still NED, so I am very grateful for IL2. 

      I am also thankful that IL2 is not the only durable treatment available now. 

      thanks for any feedback.

      Have you taken IL2?  Do you have any lingering side effects over time?

      I had 54 doses of IL2 4 years ago and continue to have problems with hearing, memory and focus.

      Trying to determine if this due to IL2 or if there are other factors involved.  I do not believe it is related , but just want to check.  I am in my mid forties, so hopefully I am not aging to quickly 🙂

      I am still NED, so I am very grateful for IL2. 

      I am also thankful that IL2 is not the only durable treatment available now. 

      thanks for any feedback.

    Viewing 5 reply threads
    • Replies
        NYKaren
        Participant
          Serously i never connected the two, but a year+ from 5 weeks of il-2, I continue to have memory loss & trouble concentrating. Thankfully I can compensate and continue working, and luckily my boss is 10 years older than i, so often we’re in the same boat.
          no hearing loss though.
          Thanks for posting,
          Karen
          NYKaren
          Participant
            Serously i never connected the two, but a year+ from 5 weeks of il-2, I continue to have memory loss & trouble concentrating. Thankfully I can compensate and continue working, and luckily my boss is 10 years older than i, so often we’re in the same boat.
            no hearing loss though.
            Thanks for posting,
            Karen
            NYKaren
            Participant
              Serously i never connected the two, but a year+ from 5 weeks of il-2, I continue to have memory loss & trouble concentrating. Thankfully I can compensate and continue working, and luckily my boss is 10 years older than i, so often we’re in the same boat.
              no hearing loss though.
              Thanks for posting,
              Karen
              Rick from NC
              Participant

                I had app. 45 doses about 20 years ago.  Initially, I was hypothyroid for awhile, requiring Synthroid for about 6 months after completing IL-2.  Other than that, I cannot tell that I've had any long-lasting effects.  Best wishes to you.  I've now been NED for over 20 years.

                Rick from NC
                Participant

                  I had app. 45 doses about 20 years ago.  Initially, I was hypothyroid for awhile, requiring Synthroid for about 6 months after completing IL-2.  Other than that, I cannot tell that I've had any long-lasting effects.  Best wishes to you.  I've now been NED for over 20 years.

                  Rick from NC
                  Participant

                    I had app. 45 doses about 20 years ago.  Initially, I was hypothyroid for awhile, requiring Synthroid for about 6 months after completing IL-2.  Other than that, I cannot tell that I've had any long-lasting effects.  Best wishes to you.  I've now been NED for over 20 years.

                Viewing 5 reply threads
                • You must be logged in to reply to this topic.
                About the MRF Patient Forum

                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                Popular Topics