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Input on Temodar
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Input on Temodar

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  • Post
    • July 29, 2016 at 2:31 am
    Cathy M
    Participant
      Well after a year almost to the day of Keytruda my husband’s stage 4 shows progression on his scan. He was diagnosed stage 4 in November 2013 (lungs) and completed 4 doses of Yervoy with no response. Next came genomics and targeted therapy with Mekinist for NRAS mutation. He does not have BRAF. This worked for about 10 months with the next and most recent treatment being Keytruda. He has had additional sequencing but now shows NO mutations that gave available medicines.

      To back up…in 2008 he was initially diagosed stage 3c and underwent radical neck, radiation and one entire long year of adjuvant interferon.

      Back to current. Given the option of Opdivo combo or Temodar. We chose temodar at this time with the hopes to give him just a shot break from immunotherapy and maybe a very slight chance for some response from the temodar. Any input on temodar would be appreciated.

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    • Replies
        • July 29, 2016 at 2:14 pm
        mary1233
        Participant

          I'm not quite sure what you are looking for but I will give you my experience on Temodar.

          I received it as adjuvant therapy for stage 3. I took it in pill form over five days, every three weeks for a total of six rounds. Like most chemos, the side effects got progressively worse. Nausea and fatique were the major side effects. After the treatment ended, I think it took about three months before I felt like I was back to my old self.

          I remain NED and I ended the chemo about three years ago.

          My best wishes for your husband.

          • July 29, 2016 at 2:14 pm
          mary1233
          Participant

            I'm not quite sure what you are looking for but I will give you my experience on Temodar.

            I received it as adjuvant therapy for stage 3. I took it in pill form over five days, every three weeks for a total of six rounds. Like most chemos, the side effects got progressively worse. Nausea and fatique were the major side effects. After the treatment ended, I think it took about three months before I felt like I was back to my old self.

            I remain NED and I ended the chemo about three years ago.

            My best wishes for your husband.

            • July 29, 2016 at 2:14 pm
            mary1233
            Participant

              I'm not quite sure what you are looking for but I will give you my experience on Temodar.

              I received it as adjuvant therapy for stage 3. I took it in pill form over five days, every three weeks for a total of six rounds. Like most chemos, the side effects got progressively worse. Nausea and fatique were the major side effects. After the treatment ended, I think it took about three months before I felt like I was back to my old self.

              I remain NED and I ended the chemo about three years ago.

              My best wishes for your husband.

                • July 30, 2016 at 1:27 am
                Cathy M
                Participant
                  Thank you for responding. I just wanted to hear someone’s experience that had actually taken it. John will be taking it 5 out of 28 days x 2 months and then scan for response. Congrats on NED and only the best to you for your future as well!
                  • July 30, 2016 at 1:27 am
                  Cathy M
                  Participant
                    Thank you for responding. I just wanted to hear someone’s experience that had actually taken it. John will be taking it 5 out of 28 days x 2 months and then scan for response. Congrats on NED and only the best to you for your future as well!
                    • July 30, 2016 at 1:27 am
                    Cathy M
                    Participant
                      Thank you for responding. I just wanted to hear someone’s experience that had actually taken it. John will be taking it 5 out of 28 days x 2 months and then scan for response. Congrats on NED and only the best to you for your future as well!
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