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IPI starts today!

› Forums › General Melanoma Community › IPI starts today!

  • Post
    • July 7, 2011 at 2:24 pm
    emilypen
    Participant

      Hey All,

      It's been a while since i've posted. It's been a rough month or so.

      My hubby failed of the braf inhibitor he was on and we've been waiting the required 28 days so he can start IPI.

      During that month tumours grew quite a bit, a few new ones popped up. He had to have some radiation to his jaw to control a lesion there and hopefully stop a soft tissue tumour that was pushing around a few teeth.

      Plus we moved home to Canada and found out we're pregnant! 

      Hey All,

      It's been a while since i've posted. It's been a rough month or so.

      My hubby failed of the braf inhibitor he was on and we've been waiting the required 28 days so he can start IPI.

      During that month tumours grew quite a bit, a few new ones popped up. He had to have some radiation to his jaw to control a lesion there and hopefully stop a soft tissue tumour that was pushing around a few teeth.

      Plus we moved home to Canada and found out we're pregnant! 

      So today is the day! Can't wait to actually be "doing" something instead of waiting.

      Curious as to what the fasted is that anyone on IPI has seen improvement? 

       

      thanks,

      Em

    Viewing 3 reply threads
    • Replies
        • July 7, 2011 at 5:48 pm
        CLPrice31
        Participant

          Hi Em,

          Congratulations on your move & on the pregnancy! How exciting! I am on the double blind ipi trial at Memorial Sloan Kettering in NYC. Although I am not 100% sure I am receiving the drug, I figured I would chime in with my experience. I began experiencing slight tummy issues about 11 days after my first trial. I just finished my 3rd round last Friday. Currently, all issues have been controlled by immodium. My doctor warned me that after round 3, that's when people really start to get hit with side effects. We will see what happens in a few days! Besides my irritatable stomach, I have basically felt like I have the flu off an on. Muscle aches, chills, hot flashes. Oh, and look out for white hairs…. I was having my eyebrows waxed a little over a week ago and the technician said, "You have some white hairs in your eyebrows. Don't worry, I pluck!" I could not explain to her that those white hairs are actually GREAT things since they are indicators that I am receiving the drug. Anyway, none of the side effects keep me from enjoying my day to day life. I do require a nap a few times a week now…

          Best wishes to you and your hubby. If you want more info on my experience, you can check out my blog.

          • July 7, 2011 at 5:48 pm
          CLPrice31
          Participant

            Hi Em,

            Congratulations on your move & on the pregnancy! How exciting! I am on the double blind ipi trial at Memorial Sloan Kettering in NYC. Although I am not 100% sure I am receiving the drug, I figured I would chime in with my experience. I began experiencing slight tummy issues about 11 days after my first trial. I just finished my 3rd round last Friday. Currently, all issues have been controlled by immodium. My doctor warned me that after round 3, that's when people really start to get hit with side effects. We will see what happens in a few days! Besides my irritatable stomach, I have basically felt like I have the flu off an on. Muscle aches, chills, hot flashes. Oh, and look out for white hairs…. I was having my eyebrows waxed a little over a week ago and the technician said, "You have some white hairs in your eyebrows. Don't worry, I pluck!" I could not explain to her that those white hairs are actually GREAT things since they are indicators that I am receiving the drug. Anyway, none of the side effects keep me from enjoying my day to day life. I do require a nap a few times a week now…

            Best wishes to you and your hubby. If you want more info on my experience, you can check out my blog.

              • July 8, 2011 at 4:26 am
              lhaley
              Participant

                Read Karen from NY's post. She also goes to the same hospital your going to but different Dr. She posted that she was told not to take immodium while on ippi. Just wanted you to check this out.  I think her post has moved to page 2 now.

                Linda

                • July 8, 2011 at 3:34 pm
                CLPrice31
                Participant

                  IDK…They've told me that as long as immodium helps to keep taking it. I saw that post the other day though. Thanks though! 🙂

                  • July 8, 2011 at 3:34 pm
                  CLPrice31
                  Participant

                    IDK…They've told me that as long as immodium helps to keep taking it. I saw that post the other day though. Thanks though! 🙂

                    • July 8, 2011 at 4:26 am
                    lhaley
                    Participant

                      Read Karen from NY's post. She also goes to the same hospital your going to but different Dr. She posted that she was told not to take immodium while on ippi. Just wanted you to check this out.  I think her post has moved to page 2 now.

                      Linda

                    • July 8, 2011 at 4:18 am
                    lhaley
                    Participant

                      Congratulations on the pregnancy!!  Exactly when is the baby due?

                      I hope that Jason has a quick response to ippi and can enjoy this pregnancy with you.

                      Linda

                      stageIV  5 years

                        • July 12, 2011 at 1:12 am
                        Terra
                        Participant

                          Hi Emily, Congratulations to both of you on your pregnancy!  I do hope both Jason and Derek are responders to ipi – Derek will have his 3rd injection on July 20.  Maybe we will see you in TO sometime in the near future.  Stay strong I'll be thinking of you both.

                          • July 12, 2011 at 1:12 am
                          Terra
                          Participant

                            Hi Emily, Congratulations to both of you on your pregnancy!  I do hope both Jason and Derek are responders to ipi – Derek will have his 3rd injection on July 20.  Maybe we will see you in TO sometime in the near future.  Stay strong I'll be thinking of you both.

                          • July 8, 2011 at 4:18 am
                          lhaley
                          Participant

                            Congratulations on the pregnancy!!  Exactly when is the baby due?

                            I hope that Jason has a quick response to ippi and can enjoy this pregnancy with you.

                            Linda

                            stageIV  5 years

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