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IPI starts TOMORROW for the first time
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IPI starts TOMORROW for the first time

› Forums › General Melanoma Community › IPI starts TOMORROW for the first time

  • Post
    • September 14, 2011 at 10:23 am
    j.m.l.
    Participant

      Thank you all for your advice and best wishes. Thurs. I start IPI for first round. Have stage III mela. and spreading. Newest tumor on vein and nerve cells. Had 4 prev. operations but now time for systemic help. ANY HELP FOR DEALING WITH TREATMENT, ETC GLADLY WILL BE READ.

      Thank you all for your advice and best wishes. Thurs. I start IPI for first round. Have stage III mela. and spreading. Newest tumor on vein and nerve cells. Had 4 prev. operations but now time for systemic help. ANY HELP FOR DEALING WITH TREATMENT, ETC GLADLY WILL BE READ.

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    • Replies
        • September 14, 2011 at 12:30 pm
        jmmm
        Participant

          My husband completed his last ipi treatment at the beginning of July.  He really didn't have too many side effects.  Some stomach cramping (very mild), and a rash on his legs.  They scare you to death with all the possible side effects, but I guess they have to do that.  He was fairly tired throughout the treatments and a "bit forgetful:)"   I know some people have rough side effects, but he didn't.  Be aware of OTC meds that you take–we had to call each time to see if it was OK.  His dr. was leary of any meds that were tough on the liver–Aleve and Motrin (maybe it was Tylenol, I don't remember)  being the biggest ones to us (since he gets frequent headaches–not from the ipi, just in general).  The nurse called each week to see how he was feeling, but we never had much to report.  Good luck! 

          • September 14, 2011 at 12:30 pm
          jmmm
          Participant

            My husband completed his last ipi treatment at the beginning of July.  He really didn't have too many side effects.  Some stomach cramping (very mild), and a rash on his legs.  They scare you to death with all the possible side effects, but I guess they have to do that.  He was fairly tired throughout the treatments and a "bit forgetful:)"   I know some people have rough side effects, but he didn't.  Be aware of OTC meds that you take–we had to call each time to see if it was OK.  His dr. was leary of any meds that were tough on the liver–Aleve and Motrin (maybe it was Tylenol, I don't remember)  being the biggest ones to us (since he gets frequent headaches–not from the ipi, just in general).  The nurse called each week to see how he was feeling, but we never had much to report.  Good luck! 

              • September 14, 2011 at 5:02 pm
              j.m.l.
              Participant

                thank you very much for the promising info. Good luck to you and I hope I am as fortunate.

                • September 14, 2011 at 5:02 pm
                j.m.l.
                Participant

                  thank you very much for the promising info. Good luck to you and I hope I am as fortunate.

                • September 14, 2011 at 6:06 pm
                AlanM
                Participant

                  For me it is one week after the second dose of ipi. To date only have had stomach cramps and a general feeling of tiredness. The important thing is to keep an open line of communication with your oncologist's nurse and to call if anything odd comes up. They seem to want to know sooner than later. Good luck with your treatment!

                  Alan

                  • September 14, 2011 at 6:06 pm
                  AlanM
                  Participant

                    For me it is one week after the second dose of ipi. To date only have had stomach cramps and a general feeling of tiredness. The important thing is to keep an open line of communication with your oncologist's nurse and to call if anything odd comes up. They seem to want to know sooner than later. Good luck with your treatment!

                    Alan

                      • September 14, 2011 at 6:28 pm
                      Lisa13
                      Participant

                        I get my 3rd infusion in a week and havn't had any symtoms except for tiredness (which started 1-2 weeks after 2nd infusion) and a small rash on my chest.  My hair is also thinning out in the back and very dry.

                        In the compassionate use clinical trial I'm in, the list of symptoms was frightening, but they have to mention everything and anything that could possible happen, even if it's a 1% chance.  I've had more "symptoms" from ipi than I did with chemo (dacarbazine).

                        Best of luck to you.

                        Lisa

                        • September 14, 2011 at 6:28 pm
                        Lisa13
                        Participant

                          I get my 3rd infusion in a week and havn't had any symtoms except for tiredness (which started 1-2 weeks after 2nd infusion) and a small rash on my chest.  My hair is also thinning out in the back and very dry.

                          In the compassionate use clinical trial I'm in, the list of symptoms was frightening, but they have to mention everything and anything that could possible happen, even if it's a 1% chance.  I've had more "symptoms" from ipi than I did with chemo (dacarbazine).

                          Best of luck to you.

                          Lisa

                        • September 16, 2011 at 12:02 am
                        devonfh
                        Participant

                          I am a caregiver for someone with stage 4 melanoma, he has had two doses of ipi.  Very bad side effects.  Extended bowel – had to have a colonoscopy. Had a blood clot in leg from knee to illiac that was removed.  now retains so much fluid, 25+ pounds.  Curious of others side effects.

                          • September 16, 2011 at 12:02 am
                          devonfh
                          Participant

                            I am a caregiver for someone with stage 4 melanoma, he has had two doses of ipi.  Very bad side effects.  Extended bowel – had to have a colonoscopy. Had a blood clot in leg from knee to illiac that was removed.  now retains so much fluid, 25+ pounds.  Curious of others side effects.

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