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Ippi

  • Post
    Scooby123
    Participant

      Hi everyone hope you are all having a good day. I have completed ippi had itchy, stomach pains bumps here and there but did settle. Now I have finished ippi I have been experiencing pain were tumours are liver especially ,lungs can anyone who had ippi had this after treatment . I did have pain a bit when on treatment but it seemed to move around but now constant. Had scans but results not till 6th august .

      scooby123

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        273c
        Participant

          I am not an expert, but have read that IPI keeps "working" for a long time after you stop the treatments.  Definitely call your doctor but I would guess your immune system is still finding tumor cells to attack. 

          My husband just started Nivo but I did a fair amount of research on both IPI and Nivo as we were deciding what the next step,was. 

          Good Luck

            Scooby123
            Participant

              Good luck with Nivolumab , ipi my first treatment but do not have braf  gene . Not sure what plan B is there is a trial at my hospital but it's chemo with some other tablets or I have found a trial for nivolumab for people who progressed after ipp. I am hoping ippi working but worried with pain .

              thanks

              scooby123

            273c
            Participant

              I am not an expert, but have read that IPI keeps "working" for a long time after you stop the treatments.  Definitely call your doctor but I would guess your immune system is still finding tumor cells to attack. 

              My husband just started Nivo but I did a fair amount of research on both IPI and Nivo as we were deciding what the next step,was. 

              Good Luck

              273c
              Participant

                I am not an expert, but have read that IPI keeps "working" for a long time after you stop the treatments.  Definitely call your doctor but I would guess your immune system is still finding tumor cells to attack. 

                My husband just started Nivo but I did a fair amount of research on both IPI and Nivo as we were deciding what the next step,was. 

                Good Luck

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