MRF-Logo2019-Horizontal-RGB
ippi /yervoy
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

ippi /yervoy

› Forums › General Melanoma Community › ippi /yervoy

  • Post
    • January 28, 2016 at 3:01 pm
    gregor913
    Participant
      If I’m taking yervoy and have no side effects does that mean it’s not working. I mean do you have to have side effects for it to be working. Anon
    Viewing 8 reply threads
    • Replies
        • January 28, 2016 at 3:31 pm
        jamieth29
        Participant
          The simple answer is no doesn’t matter. You can have every side effect in the book and it may not work. Also no side effects at all and get a complete response
          • January 28, 2016 at 3:31 pm
          jamieth29
          Participant
            The simple answer is no doesn’t matter. You can have every side effect in the book and it may not work. Also no side effects at all and get a complete response
              • January 28, 2016 at 5:17 pm
              JuTMSY4
              Participant

                This is correct.  There also seems to be something to Ipi taking a long time to build up.  There may even be a group of ipi failures which were actually response in the long run.  

                • January 28, 2016 at 5:17 pm
                JuTMSY4
                Participant

                  This is correct.  There also seems to be something to Ipi taking a long time to build up.  There may even be a group of ipi failures which were actually response in the long run.  

                  • January 28, 2016 at 5:17 pm
                  JuTMSY4
                  Participant

                    This is correct.  There also seems to be something to Ipi taking a long time to build up.  There may even be a group of ipi failures which were actually response in the long run.  

                  • January 28, 2016 at 3:31 pm
                  jamieth29
                  Participant
                    The simple answer is no doesn’t matter. You can have every side effect in the book and it may not work. Also no side effects at all and get a complete response
                    • January 28, 2016 at 4:37 pm
                    Scooby123
                    Participant

                      Hi there,

                      i have completed ippi in June 2015 with just slight itchy skin, I would say more constipated than other way. My scans was 50% reduction on tumours . Praying next scan in February still stable . 

                      Hope it goes well for you ❤️

                      scooby123❤️

                      • January 28, 2016 at 4:37 pm
                      Scooby123
                      Participant

                        Hi there,

                        i have completed ippi in June 2015 with just slight itchy skin, I would say more constipated than other way. My scans was 50% reduction on tumours . Praying next scan in February still stable . 

                        Hope it goes well for you ❤️

                        scooby123❤️

                        • January 28, 2016 at 4:37 pm
                        Scooby123
                        Participant

                          Hi there,

                          i have completed ippi in June 2015 with just slight itchy skin, I would say more constipated than other way. My scans was 50% reduction on tumours . Praying next scan in February still stable . 

                          Hope it goes well for you ❤️

                          scooby123❤️

                          • January 29, 2016 at 1:28 am
                          sayres
                          Participant

                            How long have you been on ipi? It takes a while to build up in your system as well.

                            • January 29, 2016 at 1:28 am
                            sayres
                            Participant

                              How long have you been on ipi? It takes a while to build up in your system as well.

                                • January 29, 2016 at 4:07 pm
                                gregor913
                                Participant
                                  2 doses of 10mg
                                  • January 29, 2016 at 4:07 pm
                                  gregor913
                                  Participant
                                    2 doses of 10mg
                                    • January 29, 2016 at 4:07 pm
                                    gregor913
                                    Participant
                                      2 doses of 10mg
                                      • January 30, 2016 at 5:00 am
                                      Marianne quinn
                                      Participant

                                        My husband developed side effects between the second and third doses. He did not get the fading of any skin spots until after the third dose. The general feeling is that fading and developing some white spots is a good sign. He is 2years NED

                                        • January 30, 2016 at 5:00 am
                                        Marianne quinn
                                        Participant

                                          My husband developed side effects between the second and third doses. He did not get the fading of any skin spots until after the third dose. The general feeling is that fading and developing some white spots is a good sign. He is 2years NED

                                          • January 31, 2016 at 5:44 pm
                                          buffcody
                                          Participant

                                            Could you describe the "fading of skin spots"?

                                            • January 31, 2016 at 5:44 pm
                                            buffcody
                                            Participant

                                              Could you describe the "fading of skin spots"?

                                              • January 31, 2016 at 9:04 pm
                                              ed williams
                                              Participant

                                                It is called Vitiligo and it can occur as a result of Ipi or Pd-1 immunotherapy drugs. You can look it up on Google. Best wishes!!! Ed

                                                • January 31, 2016 at 9:04 pm
                                                ed williams
                                                Participant

                                                  It is called Vitiligo and it can occur as a result of Ipi or Pd-1 immunotherapy drugs. You can look it up on Google. Best wishes!!! Ed

                                                  • January 31, 2016 at 9:15 pm
                                                  ed williams
                                                  Participant

                                                    I should add that it only happens in about 3% of Melanoma patients getting Immunotherapy drugs. The data is some what outdated, but the condition is positive and associated with longer survival according to what I have read. 

                                                    • January 31, 2016 at 9:15 pm
                                                    ed williams
                                                    Participant

                                                      I should add that it only happens in about 3% of Melanoma patients getting Immunotherapy drugs. The data is some what outdated, but the condition is positive and associated with longer survival according to what I have read. 

                                                      • February 7, 2016 at 12:20 am
                                                      Squash
                                                      Participant

                                                        With Keytruda i had moles peel off and some of my sun spots turn white but it had no effect on my melanoma.

                                                        Unfortunately i got amelanotic mel and i really dont think it reacts the same way as other mels.

                                                        But i remember seeing some people of tv who had complete remission with Ipi and they had turned white all over their body.

                                                        • February 7, 2016 at 12:20 am
                                                        Squash
                                                        Participant

                                                          With Keytruda i had moles peel off and some of my sun spots turn white but it had no effect on my melanoma.

                                                          Unfortunately i got amelanotic mel and i really dont think it reacts the same way as other mels.

                                                          But i remember seeing some people of tv who had complete remission with Ipi and they had turned white all over their body.

                                                          • February 7, 2016 at 12:20 am
                                                          Squash
                                                          Participant

                                                            With Keytruda i had moles peel off and some of my sun spots turn white but it had no effect on my melanoma.

                                                            Unfortunately i got amelanotic mel and i really dont think it reacts the same way as other mels.

                                                            But i remember seeing some people of tv who had complete remission with Ipi and they had turned white all over their body.

                                                            • January 31, 2016 at 9:15 pm
                                                            ed williams
                                                            Participant

                                                              I should add that it only happens in about 3% of Melanoma patients getting Immunotherapy drugs. The data is some what outdated, but the condition is positive and associated with longer survival according to what I have read. 

                                                              • January 31, 2016 at 9:04 pm
                                                              ed williams
                                                              Participant

                                                                It is called Vitiligo and it can occur as a result of Ipi or Pd-1 immunotherapy drugs. You can look it up on Google. Best wishes!!! Ed

                                                                • January 31, 2016 at 5:44 pm
                                                                buffcody
                                                                Participant

                                                                  Could you describe the "fading of skin spots"?

                                                                  • January 30, 2016 at 5:00 am
                                                                  Marianne quinn
                                                                  Participant

                                                                    My husband developed side effects between the second and third doses. He did not get the fading of any skin spots until after the third dose. The general feeling is that fading and developing some white spots is a good sign. He is 2years NED

                                                                  • January 29, 2016 at 1:28 am
                                                                  sayres
                                                                  Participant

                                                                    How long have you been on ipi? It takes a while to build up in your system as well.

                                                                Viewing 8 reply threads
                                                                • You must be logged in to reply to this topic.
                                                                About the MRF Patient Forum

                                                                The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.