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itchiness and swelling
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itchiness and swelling

› Forums › General Melanoma Community › itchiness and swelling

  • Post
    • May 16, 2011 at 11:49 am
    Terra
    Participant

       

      He does have mets in his liver, bone (ribs), one in kidney, and muscle, and I a few other places.  He has ct and mri coming up and was just taken off of P13K and Mek trial because of cv levels in blood (muscle breakdown). He needs a 28 day wash out period for ipi, it has been 10 days already, so nervous about waiting the next 18 days and waht can happen.  Next plan is TIL in Washington at NCI. Mentally and emotionally it is taking its toll. 

       

       

      He does have mets in his liver, bone (ribs), one in kidney, and muscle, and I a few other places.  He has ct and mri coming up and was just taken off of P13K and Mek trial because of cv levels in blood (muscle breakdown). He needs a 28 day wash out period for ipi, it has been 10 days already, so nervous about waiting the next 18 days and waht can happen.  Next plan is TIL in Washington at NCI. Mentally and emotionally it is taking its toll. 

       

      I know I don't want to hear these answers but Derek has some unexplained swelling in his wirst and forearm.  He has nerve issues in this arm and it is also where he has had numerous surgeries.   He also has been incredibly itchy all over – anybody have this coming off a treatment?

       

      Thank-you so much,

      Terra

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    • Replies
        • May 16, 2011 at 3:52 pm
        emilypen
        Participant

          Hey Terra,

          Jason had swelling in one arm ( the arm that had had lymphnodes removed way back at the beginning) and was incredibly itchy. So much so that he was keeping me up at night. That was one of the reasons they took him off the same drugs Derek is on. It took 3 weeks for the rash and swelling to clear and that was with prednisone and cortisone.

          I would give Karen a call and see if they can give Derek something to help.

          Hope that helps, keep us posted on the TIL or IPI.

           

          thanks,

          Em

            • May 16, 2011 at 4:28 pm
            Terra
            Participant

              Thanks Emily we will give Karen a call.  I hope things are going well for you both – will let you know what the plan is as soon weknow – thanks so much 

              • May 16, 2011 at 4:28 pm
              Terra
              Participant

                Thanks Emily we will give Karen a call.  I hope things are going well for you both – will let you know what the plan is as soon weknow – thanks so much 

              • May 16, 2011 at 3:52 pm
              emilypen
              Participant

                Hey Terra,

                Jason had swelling in one arm ( the arm that had had lymphnodes removed way back at the beginning) and was incredibly itchy. So much so that he was keeping me up at night. That was one of the reasons they took him off the same drugs Derek is on. It took 3 weeks for the rash and swelling to clear and that was with prednisone and cortisone.

                I would give Karen a call and see if they can give Derek something to help.

                Hope that helps, keep us posted on the TIL or IPI.

                 

                thanks,

                Em

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