As I posted on Saturday, Shane had a grand mal seizure. They put him on Dilantin and sent him home. Sunday evening we're driving back from groceries and shane starts talking gibberish. Like actual gibberish. I asked him the day the month and the year and he couldn't give me the right words. I asked if he knew his name and he shook his head no. At this point he lost his ability to speak. Called 911 as I was thinking a stroke. Once in the ER Shane continued to deteriorate. He started having multiple seizures but they gave him Ativan to stop them. He was in and out of consciousness in the ER. They did a cat scan and found that he had significant edema around a lot of the tumors. They've attributed this to the reduction in his steroids. He was fine at 8mg and they dropped to 4mg a week ago and he was fine til the first seizure Saturday morning. The ER advised to continue with the taper so this morning he only had 2mg of dex. Then this all happened at 7pm Sunday. They've admitted him to hospital and loaded him back up to 16mg of dex.
The nurses have been taking great care of him and let me spend the the night. However I can't sleep a wink hence my 4am post.
We shall see what the oncologist says tomorrow. I'm not sure Shane's in any position to even start his first infusion of pembro on Thursday as scheduled.
You have all been so kind in your words of support and I've appreciated every response and message sent. I will message back or call once things settle here.
Thanks for listening to me. Again.
Janis
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