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Just a few words before my news tomorrow
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Just a few words before my news tomorrow

› Forums › General Melanoma Community › Just a few words before my news tomorrow

  • Post
    • November 1, 2011 at 12:58 pm
    Lisa13
    Participant

      My scans were yesterday and results tomorrow after Yervoy treatment.  I'm incredibly nervous, but I also remain quite hopeful.  I've had a great few days – celebrated my daughter's 2nd birthday, went trick or treating with her and also went for a jog and felt wonderful. I was diagnosed 6 months with Stage 4 in my lungs and here I am jogging without feeling anything.

      The fact that I feel pretty darn good has to say something, so I truly hope that all my wishes and prayers get me some good news tomorrow.

      Lisa

      My scans were yesterday and results tomorrow after Yervoy treatment.  I'm incredibly nervous, but I also remain quite hopeful.  I've had a great few days – celebrated my daughter's 2nd birthday, went trick or treating with her and also went for a jog and felt wonderful. I was diagnosed 6 months with Stage 4 in my lungs and here I am jogging without feeling anything.

      The fact that I feel pretty darn good has to say something, so I truly hope that all my wishes and prayers get me some good news tomorrow.

      Lisa

    Viewing 23 reply threads
    • Replies
        • November 1, 2011 at 1:50 pm
        fenny
        Participant

          Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

          • November 1, 2011 at 1:50 pm
          fenny
          Participant

            Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

            • November 1, 2011 at 1:50 pm
            fenny
            Participant

              Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

              • November 1, 2011 at 1:50 pm
              fenny
              Participant

                Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                • November 1, 2011 at 1:50 pm
                fenny
                Participant

                  Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                  • November 1, 2011 at 1:50 pm
                  fenny
                  Participant

                    Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                    • November 1, 2011 at 1:50 pm
                    fenny
                    Participant

                      Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                      • November 1, 2011 at 1:50 pm
                      fenny
                      Participant

                        Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                        • November 1, 2011 at 1:50 pm
                        fenny
                        Participant

                          Wow, my sister is also in Stage IV with pulmonary metastasis, dianosed this August.  Really wanna know how IPI is going on with you. And did you ever hear of Anti-Pd1 or the clinical trila "pazaponib"? We're Chinese and too bad that very few doctors in China specialize in Melanoma. Really wanna keep up with the latest development in melanoma drugs in USA. Keep us informed. Thanks.

                          • November 1, 2011 at 1:52 pm
                          Lauri England
                          Participant

                            My prayers are with you Lisa.  It is so good to hear you had some great times with your little one.  Best of luck to you!!

                              • November 1, 2011 at 2:15 pm
                              NYKaren
                              Participant

                                Hi Lisa,

                                Here's hoping we both have good news this week–(I just had all my scans; Drs. appt is Thursday afternoon.)

                                So glad you went trick or treat-ing!

                                karen

                                • November 1, 2011 at 2:19 pm
                                Lisa13
                                Participant

                                  Hi Karen,

                                  I'm sending all my wishes and prayers to you and hope IL-2 is working it's magic on you.

                                  Lisa

                                  • November 1, 2011 at 7:15 pm
                                  NYKaren
                                  Participant

                                    Good news for BOTH of us and all the great people on this board!

                                    • November 1, 2011 at 7:15 pm
                                    NYKaren
                                    Participant

                                      Good news for BOTH of us and all the great people on this board!

                                      • November 1, 2011 at 7:15 pm
                                      NYKaren
                                      Participant

                                        Good news for BOTH of us and all the great people on this board!

                                        • November 1, 2011 at 2:19 pm
                                        Lisa13
                                        Participant

                                          Hi Karen,

                                          I'm sending all my wishes and prayers to you and hope IL-2 is working it's magic on you.

                                          Lisa

                                          • November 1, 2011 at 2:19 pm
                                          Lisa13
                                          Participant

                                            Hi Karen,

                                            I'm sending all my wishes and prayers to you and hope IL-2 is working it's magic on you.

                                            Lisa

                                            • November 1, 2011 at 2:15 pm
                                            NYKaren
                                            Participant

                                              Hi Lisa,

                                              Here's hoping we both have good news this week–(I just had all my scans; Drs. appt is Thursday afternoon.)

                                              So glad you went trick or treat-ing!

                                              karen

                                              • November 1, 2011 at 2:15 pm
                                              NYKaren
                                              Participant

                                                Hi Lisa,

                                                Here's hoping we both have good news this week–(I just had all my scans; Drs. appt is Thursday afternoon.)

                                                So glad you went trick or treat-ing!

                                                karen

                                                • November 1, 2011 at 2:17 pm
                                                Lisa13
                                                Participant

                                                  Hi Fenny,

                                                  I'm really sorry to hear about your sister advancing to Stage 4.  I know your sister and your family are probably scared, but there are a few more options for melanoma now that wern't available even a year ago.

                                                  I have heard good things about the Anit-PD1 clinical trial, but this trial is not available once you've done ipi (or not right away).   I chose ipi over IL-2 because my lung nodules were small (all under 1cm, except for one was 1.2cm). ipi needs time to work and I knew I had time to see if it did work. If this doesn't work for me (and I have to believe it will), then at least I'm healthy enough to do IL-2 or other trials. 

                                                  I'm sure being Chinese, there arn't alot of melanoma Dr's – obviously because this may be rare in your Country. However, if your sister can enter a clinical trial for ipi or Anti-PD1, then it's great to start something right away. 

                                                  Best of luck to your sister!

                                                  Lisa

                                                  • November 1, 2011 at 2:17 pm
                                                  Lisa13
                                                  Participant

                                                    Hi Fenny,

                                                    I'm really sorry to hear about your sister advancing to Stage 4.  I know your sister and your family are probably scared, but there are a few more options for melanoma now that wern't available even a year ago.

                                                    I have heard good things about the Anit-PD1 clinical trial, but this trial is not available once you've done ipi (or not right away).   I chose ipi over IL-2 because my lung nodules were small (all under 1cm, except for one was 1.2cm). ipi needs time to work and I knew I had time to see if it did work. If this doesn't work for me (and I have to believe it will), then at least I'm healthy enough to do IL-2 or other trials. 

                                                    I'm sure being Chinese, there arn't alot of melanoma Dr's – obviously because this may be rare in your Country. However, if your sister can enter a clinical trial for ipi or Anti-PD1, then it's great to start something right away. 

                                                    Best of luck to your sister!

                                                    Lisa

                                                    • November 1, 2011 at 2:17 pm
                                                    Lisa13
                                                    Participant

                                                      Hi Fenny,

                                                      I'm really sorry to hear about your sister advancing to Stage 4.  I know your sister and your family are probably scared, but there are a few more options for melanoma now that wern't available even a year ago.

                                                      I have heard good things about the Anit-PD1 clinical trial, but this trial is not available once you've done ipi (or not right away).   I chose ipi over IL-2 because my lung nodules were small (all under 1cm, except for one was 1.2cm). ipi needs time to work and I knew I had time to see if it did work. If this doesn't work for me (and I have to believe it will), then at least I'm healthy enough to do IL-2 or other trials. 

                                                      I'm sure being Chinese, there arn't alot of melanoma Dr's – obviously because this may be rare in your Country. However, if your sister can enter a clinical trial for ipi or Anti-PD1, then it's great to start something right away. 

                                                      Best of luck to your sister!

                                                      Lisa

                                                    • November 1, 2011 at 1:52 pm
                                                    Lauri England
                                                    Participant

                                                      My prayers are with you Lisa.  It is so good to hear you had some great times with your little one.  Best of luck to you!!

                                                      • November 1, 2011 at 1:52 pm
                                                      Lauri England
                                                      Participant

                                                        My prayers are with you Lisa.  It is so good to hear you had some great times with your little one.  Best of luck to you!!

                                                        • November 1, 2011 at 5:58 pm
                                                        mombase
                                                        Participant

                                                          Awesome, Lisa!! You make me want to go out and jog, too! (JK!!!) I pray that your scans show great progress. Aren't the lungs an amazing organ??

                                                          Cristy, Stage IV

                                                          • November 1, 2011 at 5:58 pm
                                                          mombase
                                                          Participant

                                                            Awesome, Lisa!! You make me want to go out and jog, too! (JK!!!) I pray that your scans show great progress. Aren't the lungs an amazing organ??

                                                            Cristy, Stage IV

                                                            • November 1, 2011 at 5:58 pm
                                                            mombase
                                                            Participant

                                                              Awesome, Lisa!! You make me want to go out and jog, too! (JK!!!) I pray that your scans show great progress. Aren't the lungs an amazing organ??

                                                              Cristy, Stage IV

                                                              • November 1, 2011 at 7:16 pm
                                                              cwu
                                                              Participant

                                                                Hi Lisa,

                                                                Keep your spirits and hopes up and hope you have positive news tomorrow!

                                                                Chau

                                                                • November 1, 2011 at 7:16 pm
                                                                cwu
                                                                Participant

                                                                  Hi Lisa,

                                                                  Keep your spirits and hopes up and hope you have positive news tomorrow!

                                                                  Chau

                                                                  • November 1, 2011 at 7:16 pm
                                                                  cwu
                                                                  Participant

                                                                    Hi Lisa,

                                                                    Keep your spirits and hopes up and hope you have positive news tomorrow!

                                                                    Chau

                                                                    • November 1, 2011 at 7:23 pm
                                                                    momof2kids
                                                                    Participant

                                                                      Good luck with the results Lisa, I really hope the first scans show good results.

                                                                       

                                                                      I'm extremely nervous about my last infusion this Friday, and then my scans 🙁

                                                                      • November 1, 2011 at 7:23 pm
                                                                      momof2kids
                                                                      Participant

                                                                        Good luck with the results Lisa, I really hope the first scans show good results.

                                                                         

                                                                        I'm extremely nervous about my last infusion this Friday, and then my scans 🙁

                                                                        • November 1, 2011 at 7:23 pm
                                                                        momof2kids
                                                                        Participant

                                                                          Good luck with the results Lisa, I really hope the first scans show good results.

                                                                           

                                                                          I'm extremely nervous about my last infusion this Friday, and then my scans 🙁

                                                                          • November 1, 2011 at 7:42 pm
                                                                          willtolive
                                                                          Participant

                                                                            Good luck tomorrow Lisa, we all know the feeling of deep anxiety from the scans is taken to the results is told. To get you cheered up a little bit mayby: My wife, aged 39, had about 15 mets in her lungs, the biggest 36 mm and active. Ipilimumab took care of most of them. Now only 4-5 remaining, not active, all of them most likely necrotic tissue according to our doctor. Ipilimumab is a miracle, I hope for you too 🙂

                                                                             

                                                                            • November 1, 2011 at 7:42 pm
                                                                            willtolive
                                                                            Participant

                                                                              Good luck tomorrow Lisa, we all know the feeling of deep anxiety from the scans is taken to the results is told. To get you cheered up a little bit mayby: My wife, aged 39, had about 15 mets in her lungs, the biggest 36 mm and active. Ipilimumab took care of most of them. Now only 4-5 remaining, not active, all of them most likely necrotic tissue according to our doctor. Ipilimumab is a miracle, I hope for you too 🙂

                                                                               

                                                                              • November 1, 2011 at 7:42 pm
                                                                              willtolive
                                                                              Participant

                                                                                Good luck tomorrow Lisa, we all know the feeling of deep anxiety from the scans is taken to the results is told. To get you cheered up a little bit mayby: My wife, aged 39, had about 15 mets in her lungs, the biggest 36 mm and active. Ipilimumab took care of most of them. Now only 4-5 remaining, not active, all of them most likely necrotic tissue according to our doctor. Ipilimumab is a miracle, I hope for you too 🙂

                                                                                 

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