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  • Post
    • December 27, 2015 at 2:53 pm
    blastr11
    Participant

      Hi all, I have just joined the MRF and have started reading some in the forum. I am stage 3c, diagnosed on Oct 13th of this year. My tumor looked nothing like Melanoma. It is called Amelonotic as it had no pigment or color to it. I waited a long time to have it checked. It was 5mm external, 8mm internal with cells found in 4 lymph nodes under my arm. I was sent by my Oncologist for a brain scan immediately, it was clear, thank God. I had to wait some time before my PET to let my surgical area heal. My PET was clear, thank God.

      I now have started ipi in the 10mg/kg dose as it was approved for stage 3 by FDA 15 days after my diagnosis.I have had one treatment and the next one is due in 3 days. My side effects have mostly been fatigue up until the past week. The itching and rash has progressively been getting worse.

      I was looking to see if anyone else may be at my stage and be using the ipi as their treatment.

      God bless you all……Mike

    Viewing 5 reply threads
    • Replies
        • December 27, 2015 at 6:42 pm
        gregor913
        Participant
          I’m stage 3b. I start yervoy tomorrow. There’s been major advancements in melanoma treatment. My sister friends Dad has been stage 4 18 years and counting. I think yervoy is a good start. I’ll see how I handle it tomorrow. Greg
          • December 27, 2015 at 6:42 pm
          gregor913
          Participant
            I’m stage 3b. I start yervoy tomorrow. There’s been major advancements in melanoma treatment. My sister friends Dad has been stage 4 18 years and counting. I think yervoy is a good start. I’ll see how I handle it tomorrow. Greg
            • December 27, 2015 at 6:42 pm
            gregor913
            Participant
              I’m stage 3b. I start yervoy tomorrow. There’s been major advancements in melanoma treatment. My sister friends Dad has been stage 4 18 years and counting. I think yervoy is a good start. I’ll see how I handle it tomorrow. Greg
                • December 27, 2015 at 7:28 pm
                geriakt
                Participant

                  Greg,

                  I know Monday will be a nervous day for you.  I was scared on my 1st day of treatment as I did not know if I would react or know what was flowing through my veins.  It turned out to be nothing so please relax on your first day.

                  Tom

                  • December 27, 2015 at 7:28 pm
                  geriakt
                  Participant

                    Greg,

                    I know Monday will be a nervous day for you.  I was scared on my 1st day of treatment as I did not know if I would react or know what was flowing through my veins.  It turned out to be nothing so please relax on your first day.

                    Tom

                    • December 27, 2015 at 7:28 pm
                    geriakt
                    Participant

                      Greg,

                      I know Monday will be a nervous day for you.  I was scared on my 1st day of treatment as I did not know if I would react or know what was flowing through my veins.  It turned out to be nothing so please relax on your first day.

                      Tom

                    • December 28, 2015 at 2:37 pm
                    barb3246
                    Participant

                      Mike,  Could you give us a description of what your amelanotic melanoma looked like? Thanks

                      • December 28, 2015 at 2:37 pm
                      barb3246
                      Participant

                        Mike,  Could you give us a description of what your amelanotic melanoma looked like? Thanks

                        • December 28, 2015 at 2:37 pm
                        barb3246
                        Participant

                          Mike,  Could you give us a description of what your amelanotic melanoma looked like? Thanks

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