› Forums › General Melanoma Community › jvictoria – wondering how your CLND went and how you are doing
- This topic has 27 replies, 4 voices, and was last updated 9 years, 10 months ago by
Linny.
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- August 3, 2015 at 8:27 pm
Hi, there-
I just wanted to check in with you and see how you are doing. I think your CLND was scheduled for this past Friday.
Thoughts and prayers –
Sheila
- Replies
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- August 5, 2015 at 2:23 am
Thanks for checking in Sheila… I'm doing really well… Much much better than I expected. I hope it continues in this fashion. Surgery pain is almost gone except for some basic soreness and arm movement challenges. The drain is a pain and sleeping with it is a huge challenge and somewhat scary, I keep thinking I'm going to yank it out in my sleep. But, that hasn't happend yet… I have created pillow motes on either side of me to prevent the desire of turning to one side or the other and I'm sleeping in an almost upright postiion which make things better but not ideal. Showering was easy also, thanks to the laynard concept.
But good news came today with none of the nodes that were removed having any signs of cancer…
Juan
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- August 5, 2015 at 3:29 am
Great news!! So happy for you.
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- August 5, 2015 at 3:29 am
Great news!! So happy for you.
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- August 5, 2015 at 3:29 am
Great news!! So happy for you.
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- August 5, 2015 at 12:00 pm
Glad to hear things went well and that you are not in discomfort. The drain definitely is a pain in the butt, but manageable. Just remember to keep changing the position of any medical tape you are using to keep the tuning in place. This will help keep your skin from getting irritated.
If you haven't done so already, you may want to consider seeking out a physical therapist who specializes in lymphedema. Your arm is at risk for swelling now due to lymph nodes having been removed. This individual should be able to teach you how to keep the swelling risk at a minimum as well as fit you for a compression sleeve, which you can wear while cycling. You probably already have hand protection and may want to get elbow protection for the affected arm because with the missing lymph nodes, you are also at risk for infection in the event you sustain a fall and get a cut on your arm. It sounds daunting, but actually it's not all that bad.
Again, congratulations on the NED (No Evidence of Disease) status!!!!
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- August 5, 2015 at 12:00 pm
Glad to hear things went well and that you are not in discomfort. The drain definitely is a pain in the butt, but manageable. Just remember to keep changing the position of any medical tape you are using to keep the tuning in place. This will help keep your skin from getting irritated.
If you haven't done so already, you may want to consider seeking out a physical therapist who specializes in lymphedema. Your arm is at risk for swelling now due to lymph nodes having been removed. This individual should be able to teach you how to keep the swelling risk at a minimum as well as fit you for a compression sleeve, which you can wear while cycling. You probably already have hand protection and may want to get elbow protection for the affected arm because with the missing lymph nodes, you are also at risk for infection in the event you sustain a fall and get a cut on your arm. It sounds daunting, but actually it's not all that bad.
Again, congratulations on the NED (No Evidence of Disease) status!!!!
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- August 5, 2015 at 12:00 pm
Glad to hear things went well and that you are not in discomfort. The drain definitely is a pain in the butt, but manageable. Just remember to keep changing the position of any medical tape you are using to keep the tuning in place. This will help keep your skin from getting irritated.
If you haven't done so already, you may want to consider seeking out a physical therapist who specializes in lymphedema. Your arm is at risk for swelling now due to lymph nodes having been removed. This individual should be able to teach you how to keep the swelling risk at a minimum as well as fit you for a compression sleeve, which you can wear while cycling. You probably already have hand protection and may want to get elbow protection for the affected arm because with the missing lymph nodes, you are also at risk for infection in the event you sustain a fall and get a cut on your arm. It sounds daunting, but actually it's not all that bad.
Again, congratulations on the NED (No Evidence of Disease) status!!!!
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- August 5, 2015 at 2:23 am
Thanks for checking in Sheila… I'm doing really well… Much much better than I expected. I hope it continues in this fashion. Surgery pain is almost gone except for some basic soreness and arm movement challenges. The drain is a pain and sleeping with it is a huge challenge and somewhat scary, I keep thinking I'm going to yank it out in my sleep. But, that hasn't happend yet… I have created pillow motes on either side of me to prevent the desire of turning to one side or the other and I'm sleeping in an almost upright postiion which make things better but not ideal. Showering was easy also, thanks to the laynard concept.
But good news came today with none of the nodes that were removed having any signs of cancer…
Juan
-
- August 5, 2015 at 2:23 am
Thanks for checking in Sheila… I'm doing really well… Much much better than I expected. I hope it continues in this fashion. Surgery pain is almost gone except for some basic soreness and arm movement challenges. The drain is a pain and sleeping with it is a huge challenge and somewhat scary, I keep thinking I'm going to yank it out in my sleep. But, that hasn't happend yet… I have created pillow motes on either side of me to prevent the desire of turning to one side or the other and I'm sleeping in an almost upright postiion which make things better but not ideal. Showering was easy also, thanks to the laynard concept.
But good news came today with none of the nodes that were removed having any signs of cancer…
Juan
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- August 5, 2015 at 1:26 pm
Yay for no further node involvement! Great news indeed!!
It sounds like things are progressing as well as could be expected, which I'm so happy to hear. Keep moving that arm as much as possible and be aware of any changes that could signal lymphadema.
Very best wishes to you for a great recovery and (hopefully) putting melanoma in your rear-view mirror 🙂
Sheila
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- August 5, 2015 at 1:26 pm
Yay for no further node involvement! Great news indeed!!
It sounds like things are progressing as well as could be expected, which I'm so happy to hear. Keep moving that arm as much as possible and be aware of any changes that could signal lymphadema.
Very best wishes to you for a great recovery and (hopefully) putting melanoma in your rear-view mirror 🙂
Sheila
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- August 5, 2015 at 1:26 pm
Yay for no further node involvement! Great news indeed!!
It sounds like things are progressing as well as could be expected, which I'm so happy to hear. Keep moving that arm as much as possible and be aware of any changes that could signal lymphadema.
Very best wishes to you for a great recovery and (hopefully) putting melanoma in your rear-view mirror 🙂
Sheila
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- August 6, 2015 at 12:36 am
Thanks everyone for the good wishes…
Does anyone know of somewhere to research for Therapist for Lymphedema?
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- August 6, 2015 at 1:07 am
Hi Juan,
You can try these sites:
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm
http://www.lymphnotes.com/article.php/id/16/
You can also contact a local breast cancer support group to find out where these ladies go. Breast cancer patients also have surgery to remove axillary lymph nodes, so we have something in common with them. There also are some pretty cool sleeves designed for men, at least I think they're pretty cool-looking.
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- August 7, 2015 at 12:29 am
Here's one:
https://www.lymphedivas.com/en/shop/cyborg
Other possibilities:
https://www.lymphedivas.com/en/shop/fierce-beige
https://www.lymphedivas.com/en/shop/bones
https://www.lymphedivas.com/en/shop/military-camouflage
https://www.lymphedivas.com/en/shop/phoenix
The rest are really girly.
Here are some from a different manufacturer. There are some non-girly solid colors to choose from.
http://www.lymphedemaproducts.com/products/juzo-dreamsleeve-cg.html
You will want a therapist to measure you for one. You want one with the correct fit because an improper fit can do more harm than good.
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- August 7, 2015 at 12:29 am
Here's one:
https://www.lymphedivas.com/en/shop/cyborg
Other possibilities:
https://www.lymphedivas.com/en/shop/fierce-beige
https://www.lymphedivas.com/en/shop/bones
https://www.lymphedivas.com/en/shop/military-camouflage
https://www.lymphedivas.com/en/shop/phoenix
The rest are really girly.
Here are some from a different manufacturer. There are some non-girly solid colors to choose from.
http://www.lymphedemaproducts.com/products/juzo-dreamsleeve-cg.html
You will want a therapist to measure you for one. You want one with the correct fit because an improper fit can do more harm than good.
-
- August 7, 2015 at 12:29 am
Here's one:
https://www.lymphedivas.com/en/shop/cyborg
Other possibilities:
https://www.lymphedivas.com/en/shop/fierce-beige
https://www.lymphedivas.com/en/shop/bones
https://www.lymphedivas.com/en/shop/military-camouflage
https://www.lymphedivas.com/en/shop/phoenix
The rest are really girly.
Here are some from a different manufacturer. There are some non-girly solid colors to choose from.
http://www.lymphedemaproducts.com/products/juzo-dreamsleeve-cg.html
You will want a therapist to measure you for one. You want one with the correct fit because an improper fit can do more harm than good.
-
- August 7, 2015 at 12:30 am
Here's one:
https://www.lymphedivas.com/en/shop/cyborg
Other possibilities:
https://www.lymphedivas.com/en/shop/fierce-beige
https://www.lymphedivas.com/en/shop/bones
https://www.lymphedivas.com/en/shop/military-camouflage
https://www.lymphedivas.com/en/shop/phoenix
The rest are really girly.
Here are some from a different manufacturer. There are some non-girly solid colors to choose from.
http://www.lymphedemaproducts.com/products/juzo-dreamsleeve-cg.html
You will want a therapist to measure you for one. You want one with the correct fit because an improper fit can do more harm than good.
-
- August 7, 2015 at 12:30 am
Here's one:
https://www.lymphedivas.com/en/shop/cyborg
Other possibilities:
https://www.lymphedivas.com/en/shop/fierce-beige
https://www.lymphedivas.com/en/shop/bones
https://www.lymphedivas.com/en/shop/military-camouflage
https://www.lymphedivas.com/en/shop/phoenix
The rest are really girly.
Here are some from a different manufacturer. There are some non-girly solid colors to choose from.
http://www.lymphedemaproducts.com/products/juzo-dreamsleeve-cg.html
You will want a therapist to measure you for one. You want one with the correct fit because an improper fit can do more harm than good.
-
- August 7, 2015 at 12:30 am
Here's one:
https://www.lymphedivas.com/en/shop/cyborg
Other possibilities:
https://www.lymphedivas.com/en/shop/fierce-beige
https://www.lymphedivas.com/en/shop/bones
https://www.lymphedivas.com/en/shop/military-camouflage
https://www.lymphedivas.com/en/shop/phoenix
The rest are really girly.
Here are some from a different manufacturer. There are some non-girly solid colors to choose from.
http://www.lymphedemaproducts.com/products/juzo-dreamsleeve-cg.html
You will want a therapist to measure you for one. You want one with the correct fit because an improper fit can do more harm than good.
-
- August 6, 2015 at 1:07 am
Hi Juan,
You can try these sites:
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm
http://www.lymphnotes.com/article.php/id/16/
You can also contact a local breast cancer support group to find out where these ladies go. Breast cancer patients also have surgery to remove axillary lymph nodes, so we have something in common with them. There also are some pretty cool sleeves designed for men, at least I think they're pretty cool-looking.
-
- August 6, 2015 at 1:07 am
Hi Juan,
You can try these sites:
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm
http://www.lymphnotes.com/article.php/id/16/
You can also contact a local breast cancer support group to find out where these ladies go. Breast cancer patients also have surgery to remove axillary lymph nodes, so we have something in common with them. There also are some pretty cool sleeves designed for men, at least I think they're pretty cool-looking.
-
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