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Keytruda and arthritis

Forums General Melanoma Community Keytruda and arthritis

  • Post
    Roxy1453
    Participant

      I don't get on here very often and it's been awhile now.  I have stage IV metastatic Melanoma.  I've been fighting for 10 years now.  But I can say, for the first time, I am NED!  I took keytruda but had to stop due to colitis.  Now I find out I have arthritis in my hips.  I just thought it was old age (I'm 63).  I have never had it anywhere before.  Then, this weekend, I read that it could be from keytruda.  Has anyone had any experience with this?

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    • Replies
        Jubes
        Participant

          YES!!!! I have been struggling with this for a year and had to stop keytruda because of it. I am waiting to get remicade next month. I have been on an antibiotic against tuberculosis, as remicade can bring out latent tb. It is really debilitating and I have been on lots of meds from my rheumatologist, but nothing works so I am counting on remicade. Did you take remicade for the colitis?

          jubes

            Roxy1453
            Participant

              I am not familiar with remicade.  Is it a steroid? I did take a steroid. 

              Jubes
              Participant

                No it's a biological drug that counteracts the keytruda. I am still taking steroids for the pain but the remicade is the big guns. 

                Jubes
                Participant

                  No it's a biological drug that counteracts the keytruda. I am still taking steroids for the pain but the remicade is the big guns. 

                  Jubes
                  Participant

                    No it's a biological drug that counteracts the keytruda. I am still taking steroids for the pain but the remicade is the big guns. 

                    Roxy1453
                    Participant

                      I am not familiar with remicade.  Is it a steroid? I did take a steroid. 

                      Roxy1453
                      Participant

                        I am not familiar with remicade.  Is it a steroid? I did take a steroid. 

                      Jubes
                      Participant

                        YES!!!! I have been struggling with this for a year and had to stop keytruda because of it. I am waiting to get remicade next month. I have been on an antibiotic against tuberculosis, as remicade can bring out latent tb. It is really debilitating and I have been on lots of meds from my rheumatologist, but nothing works so I am counting on remicade. Did you take remicade for the colitis?

                        jubes

                        Jubes
                        Participant

                          YES!!!! I have been struggling with this for a year and had to stop keytruda because of it. I am waiting to get remicade next month. I have been on an antibiotic against tuberculosis, as remicade can bring out latent tb. It is really debilitating and I have been on lots of meds from my rheumatologist, but nothing works so I am counting on remicade. Did you take remicade for the colitis?

                          jubes

                          AllysonRuth
                          Participant

                            Yes, I have had it.  It started after infusion number 5.  Mostly in my hands and feet.  Hurts all of the time, but not so much that I can't do things.  Doctor is considering steriods now.  

                            Allyson

                            AllysonRuth
                            Participant

                              Yes, I have had it.  It started after infusion number 5.  Mostly in my hands and feet.  Hurts all of the time, but not so much that I can't do things.  Doctor is considering steriods now.  

                              Allyson

                              AllysonRuth
                              Participant

                                Yes, I have had it.  It started after infusion number 5.  Mostly in my hands and feet.  Hurts all of the time, but not so much that I can't do things.  Doctor is considering steriods now.  

                                Allyson

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