› Forums › General Melanoma Community › Lesions in the Bones
- This topic has 18 replies, 4 voices, and was last updated 13 years, 8 months ago by
Strongdaughter.
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- October 12, 2011 at 6:15 pm
My father was diagnosed with Melanoma in 1999. At that time he had a Clark's 4 stage IIB melanoma, I think. A couple of his lymph nodes were removed at that time along with a large excision from his back. He was clear all the way through his 5 year check-up.
My father was diagnosed with Melanoma in 1999. At that time he had a Clark's 4 stage IIB melanoma, I think. A couple of his lymph nodes were removed at that time along with a large excision from his back. He was clear all the way through his 5 year check-up.
Fast forward to this year. About 3 months ago he was having some lower back pain that he felt might have been kidney stones so he went to his urologist and was cleared of that. The pain then migrated to his mid back on the left hand side and he felt that he really needed to do something about it because it was beginning to be unbearable. At that time a chest x-ray was taken and the results showed a mass. From there the accelerator pedal has been pushed to the floor. He went through the PET scan to discover that he had lesions all over his body mostly concentrated to his bones. He also has cells in one of the lymph nodes in his chest. He is in Stage IV now. He has had a complication that we were not expecting; he broke the top part of his pelvic bone while rotating to get out of the car about 1 1/2 weeks ago. Radiation was started yesterday so we are hoping for good results and possibly some pain relief from this process. He is BRAF-. He is also slated to start Yervoy sometime this week or next. The oncologist that he has is wonderful and I would highly recommend him to anyone in the Charlotte, NC area. His name is Asim Amin.
So now that you have a little background on what is going on I am looking for information from other patients or family members that have a similar spread of cancer. Most of the people that I have read about have a soft tissue spread. Also, my interest in this whole process is about my future. I have had 20+ dysplastic nevi removed and I am concerned about the chances of Melanoma happening to me. I am here for any information that anyone is willing to provide because I have a firm belief that knowledge important in a time like this. I will be passing everything on to my father and mother.
Thank you!
- Replies
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- October 12, 2011 at 7:52 pm
Also, my dad has asked if anyone has any information they would like to share on how they are reacting to Yervoy?
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- October 12, 2011 at 7:52 pm
Also, my dad has asked if anyone has any information they would like to share on how they are reacting to Yervoy?
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- October 12, 2011 at 8:46 pm
I just had my second dose of yervoy. Two more to go then they scan. !!!!!
With all the possible side effects I read about, so far so good. More tired, some stomach problems to manage, odd thing with buzzing in my head. Not sure about that one. But yervoy seems to be worth the shot. Hope for manageable side effects and good effects on the tumors. Good luck
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- October 12, 2011 at 8:46 pm
I just had my second dose of yervoy. Two more to go then they scan. !!!!!
With all the possible side effects I read about, so far so good. More tired, some stomach problems to manage, odd thing with buzzing in my head. Not sure about that one. But yervoy seems to be worth the shot. Hope for manageable side effects and good effects on the tumors. Good luck
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- October 12, 2011 at 8:46 pm
I just had my second dose of yervoy. Two more to go then they scan. !!!!!
With all the possible side effects I read about, so far so good. More tired, some stomach problems to manage, odd thing with buzzing in my head. Not sure about that one. But yervoy seems to be worth the shot. Hope for manageable side effects and good effects on the tumors. Good luck
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- October 13, 2011 at 1:38 am
My husband had his 4th yervoy dose 9-30-11 has a rash where his wasit band is and itches all over! He uses Aveeno lotion and soap. The Dr told me to wash everything that touches his body in hypoallergenic detergent. This seems to help. He has only taken benadryl twice. His third treatment was delayed 2 weeks due to the rash.
God bless you and your family
Samantha
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- October 13, 2011 at 1:38 am
My husband had his 4th yervoy dose 9-30-11 has a rash where his wasit band is and itches all over! He uses Aveeno lotion and soap. The Dr told me to wash everything that touches his body in hypoallergenic detergent. This seems to help. He has only taken benadryl twice. His third treatment was delayed 2 weeks due to the rash.
God bless you and your family
Samantha
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- October 14, 2011 at 12:41 pm
Thank you all so much for the valuable information. It has helped to put my Dad at ease. He is starting to have some good results on the pain management side of Radiation therepy. I will keep up with everyone once he starts Yervoy.
Katie
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- October 14, 2011 at 12:41 pm
Thank you all so much for the valuable information. It has helped to put my Dad at ease. He is starting to have some good results on the pain management side of Radiation therepy. I will keep up with everyone once he starts Yervoy.
Katie
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- October 14, 2011 at 12:41 pm
Thank you all so much for the valuable information. It has helped to put my Dad at ease. He is starting to have some good results on the pain management side of Radiation therepy. I will keep up with everyone once he starts Yervoy.
Katie
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- October 13, 2011 at 1:38 am
My husband had his 4th yervoy dose 9-30-11 has a rash where his wasit band is and itches all over! He uses Aveeno lotion and soap. The Dr told me to wash everything that touches his body in hypoallergenic detergent. This seems to help. He has only taken benadryl twice. His third treatment was delayed 2 weeks due to the rash.
God bless you and your family
Samantha
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- October 12, 2011 at 7:52 pm
Also, my dad has asked if anyone has any information they would like to share on how they are reacting to Yervoy?
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- October 13, 2011 at 12:19 pm
In conjuction with Yervoy, you may want to ask Dr. Asim Amin about a new drug that is up and coming, called Cabozantinib. It is for Bone metastases.
Rates of overall disease control with Cabozantinib at week 12 exceeding 40% were observed melanoma (47%).
Source:http://www.exelixis.com/cabozantinib/clinical-trial-information/randomized-discontinuation-trial
I wish you all the best
Jimmy B
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- October 13, 2011 at 12:19 pm
In conjuction with Yervoy, you may want to ask Dr. Asim Amin about a new drug that is up and coming, called Cabozantinib. It is for Bone metastases.
Rates of overall disease control with Cabozantinib at week 12 exceeding 40% were observed melanoma (47%).
Source:http://www.exelixis.com/cabozantinib/clinical-trial-information/randomized-discontinuation-trial
I wish you all the best
Jimmy B
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- October 14, 2011 at 12:46 pm
Hello Jimmy,
We will be sure to follow up on this information with Dr. Amin. It looks promising.
Thanks,
Katie
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- October 14, 2011 at 12:46 pm
Hello Jimmy,
We will be sure to follow up on this information with Dr. Amin. It looks promising.
Thanks,
Katie
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- October 14, 2011 at 12:46 pm
Hello Jimmy,
We will be sure to follow up on this information with Dr. Amin. It looks promising.
Thanks,
Katie
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- October 13, 2011 at 12:19 pm
In conjuction with Yervoy, you may want to ask Dr. Asim Amin about a new drug that is up and coming, called Cabozantinib. It is for Bone metastases.
Rates of overall disease control with Cabozantinib at week 12 exceeding 40% were observed melanoma (47%).
Source:http://www.exelixis.com/cabozantinib/clinical-trial-information/randomized-discontinuation-trial
I wish you all the best
Jimmy B
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