Hello all, I havnt been on the site in forever it seems. Most might not know my boyfriend Randys journey, but I’m sure someone will remember us.
Randy has been getting pembrolizumab, or keytruda as they call it now for 3 1/2 years and counting. He’s had his ups and downs but had a good response then stable disease thereafter. He’s had many multiple hospital stays from pnumonia turned septic, but recovered. A tumor in his lower lung is blocking the lowest part of the lung so he gets pnumonia easily.
He has to take pills everyday because his adrenal gland failed from the treatment.
After his recent pnumonia/sepsis episode where he was unconcious for 3 days we learned 2 new Mets were in his right and left thigh respectively with all other tumors slightly smaller or stable. They did a biopsy on one of the thigh tumors I assume to test for mutations etc. On the plus side one tumor on his chest has disappeared and the other on the chest is a bit smaller. He’s still receiving the keytruda and this last dose has him feeling sick for a week after infusion. Severe fatigue. He was in bed all day for 4 days and then came out of it by day 7 and is back to feeling good and being really active.
So Dr. Ribas says the good guys and the bad guys are fighting right now. Will know more about biopsy on 2 weeks.
Oh and the side effects he was feeling this week which he didn’t really get in the beginning were extreme fatigue hot and cold flashes and sweating. Sleeping a lot but still feeling tired. But a week after infusion he feels good again. Oh yeah nausea and stomach ache too. Couldn’t eat. No appetite. But that’s all back to normal a week after.
-Amanda-
.
