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Looking for good melanoma center for monitoring and Total Body Photography

Forums General Melanoma Community Looking for good melanoma center for monitoring and Total Body Photography

  • Post
    kelty
    Participant

      I am a woman in my 60s and was diagnosed about 6 years ago with a Clark's level 11 melanoma on my forearm (Breslow .25mm – no more info.) that my husband insisted I have checked. Had WLE and was told to come back yearly. I really never gave it another thought, and certainly never expected to have another one. A few weeks ago, I was diagnosed with one melanoma in situ on my lower leg, and a severely atypical mole on my upper arm. I had WLE on each.

      I am a woman in my 60s and was diagnosed about 6 years ago with a Clark's level 11 melanoma on my forearm (Breslow .25mm – no more info.) that my husband insisted I have checked. Had WLE and was told to come back yearly. I really never gave it another thought, and certainly never expected to have another one. A few weeks ago, I was diagnosed with one melanoma in situ on my lower leg, and a severely atypical mole on my upper arm. I had WLE on each. My current dermatologist said I will need to be vigilant with self-exam, because the mole that turned out to be melanoma in situ did not look at all suspicious to her. She biopsied it because I asked her to. She is very supportive of my finding a good melanoma clinic and also seeing her at 3 month intervals. Most convenient would be Pittsburgh (Hillman?), Philadelphia, Baltimore, or Washington, but I would also consider Chicago or Minneapolis. I am looking for a center in which monitoring for new primaries via total body photography is a focus. It has been hard to find information about this because centers are emphasizing their expertise in detecting and treating metasasized melanomas. I would of course value their expertise in these areas as well, because I hope to have a long-term relationship with the center I choose, and realize I may be in a position to need those services in the future. For now, though, my focus is on catching any new ones at an early stage, and I have no confidence in my ability to do this on my own. I am hoping that one of you may know something about centers in these cities, and give me a place to start at least. I've been impressed with the level of expertise and plain old wisdon on this board. Thanks for your help!

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        Janner
        Participant

          I have no words of wisdom for you regarding melanoma centers, but if you can get some baseline photos, I think you can monitor yourself very effectively.  I've had 3 primaries.  I caught them all.  Two of them wouldn't have looked suspicious except I knew they had changed.  For me, change is THE most important factor.  My cancer center also believes strongly in mole mapping, however, I don't do traditional mole mapping any more.  I just use baseline photos for comparison purposes.  If I had a large number of moles, I'd be doing mole mapping.  (This is where they take pictures at each visit and compare against the previous visit or earlier visits.  Software and doctors can both do comparisons).   I'm seen twice a year and that works for me.   Just remember, most atypical lesions will NEVER turn into melanoma.  Both your primaries were caught very early and it's unlikely you'll have something deeper now – you're on top of the game.  (People with multiple primaries actually have better survival stats).

          Best wishes,

          Janner

          Janner
          Participant

            I have no words of wisdom for you regarding melanoma centers, but if you can get some baseline photos, I think you can monitor yourself very effectively.  I've had 3 primaries.  I caught them all.  Two of them wouldn't have looked suspicious except I knew they had changed.  For me, change is THE most important factor.  My cancer center also believes strongly in mole mapping, however, I don't do traditional mole mapping any more.  I just use baseline photos for comparison purposes.  If I had a large number of moles, I'd be doing mole mapping.  (This is where they take pictures at each visit and compare against the previous visit or earlier visits.  Software and doctors can both do comparisons).   I'm seen twice a year and that works for me.   Just remember, most atypical lesions will NEVER turn into melanoma.  Both your primaries were caught very early and it's unlikely you'll have something deeper now – you're on top of the game.  (People with multiple primaries actually have better survival stats).

            Best wishes,

            Janner

              kelty
              Participant
                Thank you for your reassuring and sensible words. Your message calmed me.
                kelty
                Participant
                  Thank you for your reassuring and sensible words. Your message calmed me.
                  kelty
                  Participant
                    Thank you for your reassuring and sensible words. Your message calmed me.
                  Janner
                  Participant

                    I have no words of wisdom for you regarding melanoma centers, but if you can get some baseline photos, I think you can monitor yourself very effectively.  I've had 3 primaries.  I caught them all.  Two of them wouldn't have looked suspicious except I knew they had changed.  For me, change is THE most important factor.  My cancer center also believes strongly in mole mapping, however, I don't do traditional mole mapping any more.  I just use baseline photos for comparison purposes.  If I had a large number of moles, I'd be doing mole mapping.  (This is where they take pictures at each visit and compare against the previous visit or earlier visits.  Software and doctors can both do comparisons).   I'm seen twice a year and that works for me.   Just remember, most atypical lesions will NEVER turn into melanoma.  Both your primaries were caught very early and it's unlikely you'll have something deeper now – you're on top of the game.  (People with multiple primaries actually have better survival stats).

                    Best wishes,

                    Janner

                      kelty
                      Participant
                        Thanks so much. Somehow I hadn’t found these places.
                        kelty
                        Participant
                          Thanks so much. Somehow I hadn’t found these places.
                          kelty
                          Participant
                            Thanks so much. Somehow I hadn’t found these places.
                          sjl
                          Participant

                            My husband just started down this road in April.  His situation is much different that yours, as he has mucosal melanoma ini the nasal cavity.  He is going to the Hillman Cancer Center in Pittsburgh.  Dr. Tarhini is a melanoma specialist there.    I saw that you are in Warriors Mark.  We are in Altoona.  The ride to Pittsburgh isn't so bad anymore. The roads are much better.

                            sjl
                            Participant

                              My husband just started down this road in April.  His situation is much different that yours, as he has mucosal melanoma ini the nasal cavity.  He is going to the Hillman Cancer Center in Pittsburgh.  Dr. Tarhini is a melanoma specialist there.    I saw that you are in Warriors Mark.  We are in Altoona.  The ride to Pittsburgh isn't so bad anymore. The roads are much better.

                                kelty
                                Participant
                                  Thank you. I wish the best for you and your husband.
                                  kelty
                                  Participant
                                    Thank you. I wish the best for you and your husband.
                                    kelty
                                    Participant
                                      Thank you. I wish the best for you and your husband.
                                    sjl
                                    Participant

                                      My husband just started down this road in April.  His situation is much different that yours, as he has mucosal melanoma ini the nasal cavity.  He is going to the Hillman Cancer Center in Pittsburgh.  Dr. Tarhini is a melanoma specialist there.    I saw that you are in Warriors Mark.  We are in Altoona.  The ride to Pittsburgh isn't so bad anymore. The roads are much better.

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