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Looking For Some Inspiration

› Forums › General Melanoma Community › Looking For Some Inspiration

  • Post
    • April 20, 2015 at 1:49 pm
    newmanmark
    Participant

      Hello,

      I started Mekinist and Tafinlar today and I'm looking for some positive stories from people who are having success with this treatment.  I am 35 years old and stage 4.

      Thanks

      Mark

    Viewing 8 reply threads
    • Replies
        • April 20, 2015 at 2:06 pm
        MattF
        Participant

          i had a good 8 month run and shrunk everything while it worked!

          then jumped to Ipi

          M

            • April 20, 2015 at 2:59 pm
            newmanmark
            Participant

              Thanks Matt.  I'm sorry to hear that it didn't work longer for you.  Did you have many side effects with the combo?  Also, how did you do on Ipi?

              Mark

              • April 20, 2015 at 2:59 pm
              newmanmark
              Participant

                Thanks Matt.  I'm sorry to hear that it didn't work longer for you.  Did you have many side effects with the combo?  Also, how did you do on Ipi?

                Mark

                • April 20, 2015 at 2:59 pm
                newmanmark
                Participant

                  Thanks Matt.  I'm sorry to hear that it didn't work longer for you.  Did you have many side effects with the combo?  Also, how did you do on Ipi?

                  Mark

                • April 20, 2015 at 2:06 pm
                MattF
                Participant

                  i had a good 8 month run and shrunk everything while it worked!

                  then jumped to Ipi

                  M

                  • April 20, 2015 at 2:06 pm
                  MattF
                  Participant

                    i had a good 8 month run and shrunk everything while it worked!

                    then jumped to Ipi

                    M

                    • April 20, 2015 at 4:55 pm
                    Mat
                    Participant

                      I had an 18 mos run on Taf and Mek with few and manageable side effects.  See my prior posts.  Good luck.

                      • April 20, 2015 at 4:55 pm
                      Mat
                      Participant

                        I had an 18 mos run on Taf and Mek with few and manageable side effects.  See my prior posts.  Good luck.

                        • April 20, 2015 at 4:55 pm
                        Mat
                        Participant

                          I had an 18 mos run on Taf and Mek with few and manageable side effects.  See my prior posts.  Good luck.

                          • April 22, 2015 at 1:51 am
                          bonusfries
                          Participant

                            Mark, you saved me from starting a new thread, so everyone thanks you in advance. I'm in your age range and one month ahead of you on the Taf + Mek combo.

                            So far so good. Only two rashes, left ankle (gone in two days) and right calf (one week and counting). Two small bouts of chills, both gone within an hour. Only one fever, again gone within an hour after taking Tylenol.

                            The fatigue side effects have been the most noticeable, but hard to isolate how much is from this medicine. Overall I've felt very good, can work full-time, but have needed more sleep than usual and had some real 'stay in bed' days. I underwent SRS follow-up treatments after a craniotomy during this first month, and I think they are the biggest contributor to the fatigue.

                            Stay well hydrated, stay active, and your days will be very close to normal. Good luck to you and I'm hoping for clear scans in your future.

                            • April 22, 2015 at 1:51 am
                            bonusfries
                            Participant

                              Mark, you saved me from starting a new thread, so everyone thanks you in advance. I'm in your age range and one month ahead of you on the Taf + Mek combo.

                              So far so good. Only two rashes, left ankle (gone in two days) and right calf (one week and counting). Two small bouts of chills, both gone within an hour. Only one fever, again gone within an hour after taking Tylenol.

                              The fatigue side effects have been the most noticeable, but hard to isolate how much is from this medicine. Overall I've felt very good, can work full-time, but have needed more sleep than usual and had some real 'stay in bed' days. I underwent SRS follow-up treatments after a craniotomy during this first month, and I think they are the biggest contributor to the fatigue.

                              Stay well hydrated, stay active, and your days will be very close to normal. Good luck to you and I'm hoping for clear scans in your future.

                              • April 22, 2015 at 1:51 am
                              bonusfries
                              Participant

                                Mark, you saved me from starting a new thread, so everyone thanks you in advance. I'm in your age range and one month ahead of you on the Taf + Mek combo.

                                So far so good. Only two rashes, left ankle (gone in two days) and right calf (one week and counting). Two small bouts of chills, both gone within an hour. Only one fever, again gone within an hour after taking Tylenol.

                                The fatigue side effects have been the most noticeable, but hard to isolate how much is from this medicine. Overall I've felt very good, can work full-time, but have needed more sleep than usual and had some real 'stay in bed' days. I underwent SRS follow-up treatments after a craniotomy during this first month, and I think they are the biggest contributor to the fatigue.

                                Stay well hydrated, stay active, and your days will be very close to normal. Good luck to you and I'm hoping for clear scans in your future.

                                  • April 22, 2015 at 3:55 pm
                                  newmanmark
                                  Participant

                                    Thanks for replying Bonusfries!  It's nice to know I'm not the only one out here on this therapy.  Good luck to you as well.

                                    Mark

                                    • April 22, 2015 at 3:55 pm
                                    newmanmark
                                    Participant

                                      Thanks for replying Bonusfries!  It's nice to know I'm not the only one out here on this therapy.  Good luck to you as well.

                                      Mark

                                      • April 22, 2015 at 3:55 pm
                                      newmanmark
                                      Participant

                                        Thanks for replying Bonusfries!  It's nice to know I'm not the only one out here on this therapy.  Good luck to you as well.

                                        Mark

                                  Viewing 8 reply threads
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